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trents

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Everything posted by trents

  1. trents
    Find out what's in the matches that you are craving? Sulfur? I might suggest using black strap molasses regularly. It is high in iron and sulfur. Tastes yummy, too. I used to just gulp a couple of tablespoons every evening.
  2. trents
    Yes, I had cellulitis 8 or 9 years ago. I never did figure out the source of the infection. There was no wound evident. This was before my celiac disease dx. Had a dickens of a time getting rid of it. Dr. put me on appropriate oral antibiotics that did not do the job. As soon as he switiched me to IM shots it made a dramatic difference. He was stumped in...
  3. trents
    Possibly. Someone may not be intolerant of whey just because they are intolerant of caseine. They are different proteins.
  4. trents
    Two questions: 1. Does the problem you describe pertain to your husband (whose journey to celiac disease dx you describe in detail at the bottom of your post)? I assume it does but you never really say that. And 2. How long does it take for what he eats to show up in his stool, i.e., what is the turn around time? Normal digestive turn around time is about...
  5. trents
    I was one of those whose liver enzymes were elevated because of celiac disease. It was what led to my diagnosis, in fact, because my GI symptoms were very minor. However, once going on a gluten free diet those liver enzymes returned to normal and have been ever since. My ALT and AST numbers were in the 40's and 50's before going gluten-free and the fact that...
  6. trents
    I don't think there is a link between celiac disease and colon cancer. The two diseases affect opposite ends of the 25' long intestinal tube.
  7. trents
    Do you live in a farming area where wheat, barley or rye is being grown? Grains seeded in the autumn (i.e. "winter wheat") may be pollinating by now. Don't know if that would be a possible connection but the thought crossed my mind.
  8. trents
    I agree with Mamma Gooses' advice and I would also ask you if when you do consume gluten are you symptomatic? If you are then it will be easier for you to tell if food items produced on equipment that also is used to process wheat items is giving you a Celiac reaction. If not, well, you are just guessing.
  9. trents
    Good point in distinguishing between precision and accuracy. The ELISA testing results should not be looked at as definitive with regard to symptoms you actually experience. Not only is there not a particularly good correlation between the lab results and what you feel and experience when eating the foods the testing identifies as allergens or intolerance...
  10. trents

    Happy birthday and may God bless you today!

  11. trents
    I wonder if you don't have some kind of yeast or other micro biologic infection in your bowel.
  12. trents
    Rolling, I recently had an ELISA food allergy panel done. All my research indicates they aren't very reliable but "milk' was one that turned up strong. Unfortunately, "milk" wasn't broken down into its various components that, each one, can cause problems. Where can you get casein intlolerance done? Is it a blood test? I had this test done to try and run...
  13. trents
    Thanks, GFinDC, for that old string. I am contemplating eliminating as much soy and dairy from my diet as I reasonably can. One thing that I can't figure out is with all this inflammation still present, why don't I have any pain or discomfort? I fully realize that most celiacs don't exhibit the classic symptoms of GI distress but you'd thing that even if...
  14. trents
    Thanks for your encouragement, JodiC. I ran into my GI doc this week at lunch (we both work at the same hospital). He had just gotten back from vacation and I hadn't talked to him since the biopsy and now had the lab results back. I commented that the gliadin antibodies were very low and and that I thought this demonstrated I was not being glutened. He said...
  15. trents
    I have somewhat the same problem. After 5 years of very conscientious gluten free eating (including attention to pills and oral hygiene products) I recently had a follow-up endoscopy and biopsy. Inflammation and flattening of villi are still present. I was very discouraged. My local doc has thrown his hands up. Refractory sprue is when celiac symptoms and...
  16. trents
    Recently I posted concerning my frustration following a biopsy that revealed continuing villi flattening and inflammation after five years of being gluten free. The GI doc felt I must be still getting gluten somewhere on a consistent basis and urged me to take a closer look at what I eat. Well, I was certain I was not overlooking anything but to be sure I...
  17. trents
    Iron is best absorbed in an acidic environment and it binds with many foods like things that are calcium rich, egg yokes, and tannins (coffee, tea) so that these foods render it ineffective as a supplement. I take a 65mg ferrous sulfate tab between meals to avoid this and take the iron with a vitamin C tablet to create an acidic environment. I tolerate it...
  18. trents
    I have scoliosis and kyphosis. Kyphosis runs in my mother's family and I have an uncle on my father's side who was dx with celiac about two years ago.
  19. trents
    After disappointing news from my second biopsy in 5 years since dx I am beginning to think I may have refractory sprue. I have reviewed my diet, meds and oral hygiene products for possible gluten contamination and I just don't see any. Anyone out there been clinically diagnosed with refractory sprue? I want to here about your experience. I am a soon-to...
  20. trents
    I think low RDW (red cell distribution width) is good. It indicates little variance in the diameter of the red blood cells, i.e. few poorly formed ones. Normal MCV is also good. Just looking at those two indcators, I would not think you have low iron stores. What about your hemaglobin and hematocrit levels? Blood cells parameters don't affect folic acid...
  21. trents
    Yeah, I googled "refractory sprue" and found this article myself early this morning. Seems to be saying that refractory sprue is a condition that has a foundation in gluten intolerance/celiac disease but then takes on a life of its own apart from the presence or absence of gluten in the diet. It's an excellent article to give to m GI doc. If nothing else...
  22. trents
    Thanks for this resource, happygirl.
  23. trents
    Thanks for those suggestions about the consultation services and the GIG conference. Those tips sound promising.
  24. trents
    Thanks for all of your encouragement. It really means a lot to me. A few months after being dx 5 years ago and working to be gluten free this doc ordered repeat antibody tests and they were in the safe range. Also, my liver enzymes (which had been elevated for 7-8 yrs.) were back into normal range and have been ever sense. So there was evidence that I was...
  25. trents
    I was diagnosed with celiac disease 5 years ago with blood antibiodes and biopsy positive. I have been very conscientious about gluten-free living. I am aware of all the places gluten can be hidden in sauces, medications, seasonings, oral hygiene products, food ingredient label nomenclature, etc. and have been very careful. Recently I had an endoscopy done...
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