Sick all the time

[zoe1994]

I was diagnosed with celiac disease when I was about 16, and now I'm 23. In addition, I also do not eat dairy, eggs, corn or beans due to allergies and sensitivities. I have IBS that varies between C and D, although I'm not sure what triggers what symptom (I avoid all of my known triggers). I never 'cheat' and I rarely eat anything that I haven't prepared myself (I live alone so no cross contamination). However, I am sick almost every single day. I am either nauseous or have severe stomach pain, sometimes both, and I am constantly bloated to the point of looking pregnant. Recently the pain has been so bad that I can't sleep, and I have been losing my appetite. I am also tired all the time. I have no idea what is causing this. I eat buckwheat with protein powder and fruit for breakfast, salad for lunch, grilled vegetables with fish for dinner, and a rice cake with almond butter after I work out. I have cut out each of these things at some point, but my symptoms have not improved. They are only getting worse over time. My symptoms don't hit at the same time every day, and they are not the exact same every day, so I don't know what is causing it. Has anyone else ever experienced this, or know what could be making me sick? I have been to countless doctors both alternative and western, as well as gastroenterologists, but have found no relief. Please help if you can.

[Ennis-TX]

1 hour ago, zoe1994 said:

I was diagnosed with celiac disease when I was about 16, and now I'm 23. In addition, I also do not eat dairy, eggs, corn or beans due to allergies and sensitivities. I have IBS that varies between C and D, although I'm not sure what triggers what symptom (I avoid all of my known triggers). I never 'cheat' and I rarely eat anything that I haven't prepared myself (I live alone so no cross contamination). However, I am sick almost every single day. I am either nauseous or have severe stomach pain, sometimes both, and I am constantly bloated to the point of looking pregnant. Recently the pain has been so bad that I can't sleep, and I have been losing my appetite. I am also tired all the time. I have no idea what is causing this. I eat buckwheat with protein powder and fruit for breakfast, salad for lunch, grilled vegetables with fish for dinner, and a rice cake with almond butter after I work out. I have cut out each of these things at some point, but my symptoms have not improved. They are only getting worse over time. My symptoms don't hit at the same time every day, and they are not the exact same every day, so I don't know what is causing it. Has anyone else ever experienced this, or know what could be making me sick? I have been to countless doctors both alternative and western, as well as gastroenterologists, but have found no relief. Please help if you can.

There is the rare chance of it being Refractory Celiac Disease, but I think it might be more of a issue like crohns or Ulcerative Colitis. For a couple of years after going gluten-free I found that fruits, sugar, grains, were making me bloat, distend, and have bloody stool. I later found via a colon scope that I had Ulcerative Colitis and those were my triggers so I went to a almost keto version of a high fat/protein low carb paleo diet and resolved most of it.

What type of protein powder are you taking? If a vegan version is it a blend like orgain etc with gums like xantham and added in probioitics etc? This could be a issue as many gain intolerance to them. A more pure blend of protein like plain pea (being a legume can cause issues) or Pumpkin Seed protein by either Jarrow or Julian Bakery might be easier on the stomach.

Other thoughts, SIBO, or Candida are common issues with celiac disease especially if you eat processed or high carb/starch foods.

Have you gotten a follow up test to see if your antibodies have come down? I would check that first to see if your celiac is still flaring. A follow up of both scopes to check for other issues is also in order. I would like to recommend that you aslo see about having a vitamin/nutrient panel down and see if you low in anything. Those of us with this disease will often have issues with Magnesium, the whole B vitamin spectrum, vitamin D etc.

[trents]

I was thinking refractory as well and it's turning out to not be so rare as was previously assumed.

You might also look at a experimenting with a ketogenic diet which would essentially eliminate starches and most of the sugar in your diet. If you are suffering candida (yeast) overgrowth it likely would really help with that. But with no eggs in your diet going keto would be a challenge.