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trents

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Everything posted by trents

  1. trents
    I find it interesting that the doctors have ruled out congestive heart failure because most or all of the symptoms your pop is having would seem to fit with CHF. When there is fluid buildup in the body like that the serum protein levels become diluted and those numbers will be low.
  2. trents
    I wonder if he has refractory celiac disease. Also, has he been checked for pernicious anemia? Are they giving him diuretics to remove the water?
  3. trents

    ARCHIVED Please help!

    trents replied to Mommyx2's topic in Related Issues & Disorders

    10-15 years ago there was not much general awareness in the medical community about celiac disease. I was diagnosed 15 years ago with celiac disease and what actually led to the diagnosis was I had mildly elevated liver enzymes for about 15 years previous to that which could not otherwise be explained. It all started with a rejection of my donated blood...
  4. trents
    The thrombocytopenia may not be related to the celiac disease. Our 34 year old adopted daughter has had thrombocytopenia since her teenage years. Initially it was thought to be either from aplastic anemia or myelodysplastic syndrome but in actuality the bone marrow cellular studies don't quite fit either of those. So it seems to be idiopathic in nature and...
  5. trents
    So after reading on the net recently that discontinuing long term PPI therapy can give you dyspepsic rebound, the light went on why I had always gotten heartburn within 2 days of attempting to quit daily PPI therapy, which I have been on for close to 15 years. Experts are now advising a slow taper when you try to quit. I was not aware of that and I...
  6. trents

    ARCHIVED Acid Reflux?!

    trents replied to BarryC's topic in Related Issues & Disorders

    I'm not aware that nocturia is connected to gluten intolerance but they are finding more connections all the time. I too suffered from nocturia but it was mostly related to enlarged prostrate which was fixed with a TURP. As we age most things get smaller but some keep growing.
  7. trents

    ARCHIVED Acid Reflux?!

    trents replied to BarryC's topic in Related Issues & Disorders

    Plumbago has good advice. Several years ago I purchased an articulating bed for back problems and the reflux seems to have benefited from it as well. I have difficulty with not eating for 3 hours before bed. I typically get terribly hungry right before bed and can't sleep if I get in the sack that way. And I know losing about 30 lbs. wold help...
  8. trents

    ARCHIVED Acid Reflux?!

    trents replied to BarryC's topic in Related Issues & Disorders

    I have acid reflux, eat gluten free but I still must take PPIs regularly. If I try to go off them I start getting heartburn within two days. The old esophageal sphincter just doesn't seal like it used to. There may have been nerve and muscle damage to the sphincter from all those years of heartburn. Plus, I have a hiatal hernia. I've got some naturopathic...
  9. trents
    It certainly wouldn't hurt anything to try it. As you know, B12 and folate are interdependent. Question for you though, where does a person go to get tested for vitamin an mineral levels? Most primary care docs don't seem interested in this. Does insurance pay for it? If not, how much does it cost? Is this something a naturopath would be inclined to...
  10. trents
    I am a celiac who has experienced low total protein and albumin numbers for many years. One or the other might be barely into the normal range but not both at the same time. However, finally within the last year for the first time in probably 20 years they were both into the normal range but just barely. My understanding is that this phenomenon is thought...
  11. trents
    What Ranvenwoodglass said. It smells for everything like one of those web infomercials from "a sponsor" that goes on and on before it ever gets to the point. There is some element of truth to what he says but it is exaggerated by selective statistics.
  12. trents
    Yes, I do take a sublingual B12 supplement and B complex as well. Those are water soluble vitamins so no danger with overdose. The B vitamins play a role in iron absorption. People with pernicious anemia must get B12 injections. They lack an enzyme called "intrinsic factor" that enables them to assimilate B12 from the gut. I think folic acid comes into play...
  13. trents
    It may take awhile for your ferritin levels to catch up. If your hemoglobin level has responded so well to iron therapy it could be that going on a gluten free diet has allowed your gut to heal and now it's absorbing iron from your diet adequately. Just keep an eye on your iron levels. It could be that you just need a lower dose supplement. Chronically high...
  14. trents
    My wife who is not a Celiac has vaginal yeast infections from time to time and her obgyn doc is willing to prescribe the nystatin/diflukin meds without hesitation. Those drugs are effective but really can tax the liver. You don't want to be on them for extended periods of time or often. Of if you do, make sure you have your liver enzymes checked regularly...
  15. trents

    ARCHIVED Headache

    trents replied to Ankita12's topic in Related Issues & Disorders

    Headaches are one of the documented medical conditions associated with celiac disease. They are more common in the Celiac population than the non Celiac population. But as others have said, they can be due to something else. It's important to figure out what kind of headaches they are and what triggers them if possible. Do they seem to center at the base...
  16. trents
    Gallbladder? Open Original Shared Link Let me correct one thing you said about Pataprozole as this is a medication I also am on and have been for a long time to treat acid reflux. It's a proton pump inhibitor type acid reducer and doesn't need to be taken before meals. It's not an acid neutalizer. I take 40 mg in the morning after breakfast and it works...
  17. trents
    And these symptoms appeared after you have been trying to eat gluten-free? Or have these been present all along? Is there a chance you have been significantly exposed to some environmental toxin, perhaps in the work place?
  18. trents
    What you describe sounds like it could be a nutrient deficiency like low magnesium or one of the B vitamins. Celiac disease results in the mal absorbing of nutrients because of damage to the micro villi that line the small bowel. There is also something called restless body syndrome that is rather a mystery (similar to restless leg syndrome). My wife takes...
  19. trents
    I think it's pretty common for autoimmune diseases to come in multiples. After all, we are talking about an immune system that is malfunctioning to begin with.
  20. trents
    Did anyone see this? Open Original Shared Link I wonder if it has promise for Celiac disease?
  21. trents
    Hello, Joy. I know it must be frustrating to have so going wrong with you and never seeming to climb out of the hole. I work in a healthcare setting and I can tell you many medical professionals suspect you may never really get rid of MRSA once you have it. You an beat it back so that it goes into hiding ("colonizes") but it's hanging around waiting for...
  22. trents
    Okay then, its the ELISA test. When you get the results, don't take it as absolute gospel. There are a number of problems with ELISA testing that can produce inaccurate, misleading results. You should do some research on this issue on the internet. What is really telltale in this regard is if you were to have your blood sample sent to several different labs...
  23. trents
    Is this a blood draw allergy test or a skin prick test? No, the fact that you are eating gluten free will not change the test results as in the testing the various allergens will be introduced either into your blood or your subcutaneous tissues.
  24. trents
    Basically, Celiac Disease is an "auto immune" condition, meaning the body attacks its own tissues. In this case, we know that gluten triggers the body's immune system to attack the lining of the small bowel. The lining of the small bowel, when looked at under a microscope, is normally a highly textured surface with lots of little finger-like projections sticking...
  25. trents
    How old are you if you don't mind me asking? Could this be unrelated to going to gluten free? Are you at the age where arthritis might be starting or is there a strong family history of RA?
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