Jump to content

trents

Moderators
 View Profile  See their activity

  • Posts

    8,488

  • Joined

  • Last visited

  • Days Won

    515

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Thanks, Rachel. The info about washing the seed may be the key to the whole issue as now that I've thought about it the processed quinoi products I've had (noodles, ect.) have not bothered me. Hum, I'm tempted to test it but also afraid. Steve
  2. trents
    Rachel, Thanks. That was very helpful. My symptoms are similar to yours except I don't get the burning sensations around the mouth. Like you, the discomfort and distress I get from quinoi far exceeds any reactions I get with gluten. I don't think its the oxalates as I can eat other high oxalate foods such as spinach without a problem. It must be some protein...
  3. trents
    Friends had me over for a gluten free lunch today and trust me, it was gluten free. They consulted with me extensively in planning the meal. Later in the afternoon I developed intense gut pain like I had swallowed a burning fire brand. It has largely subsided now. One of the things they served at lunch was quinoa. While writhing in pain on my couch my mind...
  4. trents
    Thanks, everyone. The edit button disappeared on me in, I'm thinking, less than two hours.
  5. trents
    Can you edit your reply to a post more than once? I found a typo in my reply and edited it. Later when reading it again I found another typo but did not find the edit button.
  6. trents
    You take cortico steriods to reduce inflamation in your airway passages. Inflamation is an immune system reponse designed to kill foreign invaders. Normally its a good thing but it is bad when the body mistakenly detects harmless substances as invaders, as is the case with asthma and anaphylaxys (i.e., people who die from bee stings, peanuts, etc.). Cortico...
  7. trents
    I've been gluten free for almost 5 years now and still have to supplement my iron. I was worried about taking iron routinely because I didn't want to saturate my organs and tissues to toxic levels. I shoud also mention that I am a 57 year old male. Men usually have a probem with too much iron unless there is a specific disease process going on that dictates...
  8. trents

    ARCHIVED Help!

    trents replied to md395's topic in Related Issues & Disorders

    Arm yourself with information and research when you go to your doctor. That he will know much about Celiac disease is highly unlikely. Avoid being a know it all but try to educate him/her with lead in questions and comments like, "Doctor, I read that . . ." "Should we look at . . .?" "Do you think . . .?" Occasionally bring something in print to show him...
  9. trents
    Tetracycline is one of the safest antibiotics to take on a longterm basis. At least that's what my ENT doc told me when he put me on it for 6 months for a chronic sinus infection a few years ago. I never had a problem with GI distress at all while I was on it. As I recall, I use to be on it pretty regularly when I was a teenager for acne. Don't think it ever...
  10. trents
    I think your doctor is all wet. Never heard that position before of weaning yourself off wheat. The sooner you go gluten free, the sooner you will begin healing and unless you are completely gluten free your healing will be delayed or set back. There are lots of ways to get fiber besides wheat. In fact, most peole get their wheat in the form of white flour...
  11. trents
    Think about the large number of contributors to this forum lately who complain that they felt much better for the first few months after going gluten free but then seem to start feeling crummy again despite not cheating on their guten elimination. Makes me wonder if going gluten free brings on other food allergies/intolerances. This is not exactly what this...
  12. trents
    Yeah, the Costco product mentioned above is a good one and a good value. I would also supplement with more D3 however. 1000 IU is generally therapeutic but not too much to be toxic. Costco sells Vit D3 tablets at that dosage as well.
  13. trents
    I wish to make a correction on my earlier recommendation about vitamin D3 supplementation. Not 1000 mg but 1000 IU.
  14. trents
    You really need to get the bone scan done and I would highly recommend you consider putting yourself on 1000 mg of Vitamin D3 daily. Bone density, once lost, can be very difficult to regain.
  15. trents
    I think it's more likely the case we have outsmarted ourselves via hybridization/genetic maipulation as we have sought to engineer wheat varieties with more and more gluten that makes bread hold together better and better. Original wild stocks of wheat had a two-stranded gene for gluten whereas our modern varieties have a six-stranded gene for making gluten...
  16. trents
    Hemoglobin and hematorcrit measure the amount of iron in the blood immediately available for use by the body. Ferritin is an iron storage protein that measures the body's iron reserves, or at least that's my understanding. The question is, why is there such a differential in your case? Neither am I sure how taking an iron supplement will impact one vs. the...
  17. trents
    Just an aside as the present discussion reminds me about the same question with regard to "modified food starch". In the US, the convention is to use corn to make modified food starch, even though the source may not be specified. This would not necessarily hold true for food products coming from other countries, even Canada. Also, "monsodium gutamate"...
  18. trents
    That is a matter of controversy these days. The terminology seems to have evolved in the past several years as more has been learned about the toxic effect of gluten on the body. My impression is that the term Celiac disease is generally being used to refer to the damage that gluten does to the mucosa of the small bowel as demonstrated by biopsy and microscopic...
  19. trents
    Jules, how old are you? Could this be "floaters"?
  20. trents
    Sunny26, Why are you taking 1-2 aspirin a day? Arthritis? Or, are you taking it as a prophilatic to prevent stroke? Even taking one or two aspirin if you do it everyday for a long time might have more blood thinning effect than you might realize. I used to take one adult aspirin a day and noticed that I was bruising easy. Since I was taking it as a prophilactic...
  21. trents
    Yep, the symptoms you described sound like allergic reactions. Do you see a pattern connected with certain foods you eat or environmental conditions?
  22. trents
    Thumper, Many newly diagnosed celiacs are unaware of the many places gluten is hidden in our food supply, medicines (wheat starch is sometimes used as a filler or a binder in pills), personal hygiene products (some mouth washes, tooth pastes, ect.). It's not just enough to avoid macro sources of gluten such as sandwhiches and pasta and pizza. Gluten can...
  23. trents
    Not really. A few are slightly out of the normal range but not enough to cause concern. If you had them done three days later they would be different yet. Docs only get concerned if something is grossly out of norm and then they will repeat lab work to see if that was a lab error, a temporary aberration or a real pattern of abnormality. Then, too, some serum...
  24. trents
    Don't just assume you have ordinary B12 deficiency. If oral supplementation doesn't make you feel better, look into pernicios anemia which seems to be more common among Celiacs than the general population. Steve
  25. trents
    Check with EnteroLab to see how they acquire and handle the antigens they use for testing. One common problem with labs is they will use food sources from common places such as the supermarket to make their antigens. If they have not been sterilized they may be cross-contaminated with other proteins that you may have an allegic reaction to instead of the...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.