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Latest Celiac Disease News & Research:
Everything posted by trents
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Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
Live, does the h1 make you sleepy? Why not some of the newer antihistamines (like Zyrtec) that aren't so sedative? Do they not have the same beneficial effect for the the symptoms you are treating? -
Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
I have recently begun a three day rotation of breakfast foods and supper variation takes care of itself. I sometimes get in a rut with lunches (Kirkland protein bars and I ate all the oatmeal ones and now on the dark chocolate ones, unfortunately). Doing in a turkey cheese sandwich for lunch every two to four days. Haven't had a migraine of late. -
Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
I'm still not seeing it in those links. The connection between tryamines and histamines, I mean. Are you equating them? -
Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
Posterboy, sorry if there was confusion about what I said regarding Imitrex. To be clear, for me, Imitrex is an effective antidote for migraines. Works best if I take it at the first signs of headache coming on but if I wait longer it still works well but takes about 45 minutes to begin working. -
Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
Posterboy, I did not see in this link you provided any mention of a connection between tryamine and histamine storms. "But my bet is on Tyramine ....it is connected to a histamine storm. Here is a nice Webmd article on it. https://www.webmd.com/migraines-headaches/tyramine-and-migraines#1" Did I miss something? -
Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
"The reason the Imitrex triggers your histamine storm is MAO/DAO shares the same pathway." Huh? Imitrex seems to counteract the effects of histamine storms I'm thinking. It takes away a migraine which can be triggered by high histamine levels. Imitrex is a vasoconstrictor. Most medical people feel migraines are brought on by dilation of the blood... -
Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
My head is spinning! -
Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
My labs are all in the normal range now. Total protein and albumin are near the low end of normal but that is an improvement. For 20 years one or both were below normal. That includes about a 6 or 7 year pre celiac disease Dx span. I've been on PPI therapy for GERD/hiatal hernia for 16-17 years. But all this discussion has started me thinking that when... -
Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
Yes, I am aware that the sulfites in wine can be the culprit. But thanks for the reminder. Sometimes with multiple options it can be difficult to sort out. I recently switched to Mg Gycinate and so far no issues. -
Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
If the pills don't work with the wine test, I can take my Imitrex which does. -
Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
Thanks for the info and the links, Posterboy. I note one factoid from the last link you gave that caught my eye and that is a risk factor for SIBO associated with low gastric acid. Since I'm on long term PPI therapy, that could be relevant to me. I wonder how hard it would be to get a primary care provider to order a breath test. But then again, those breath... -
Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
Well the DAO pills came last week but I'm kind of at a loss as to how test their efficacy. I've been migraine free of late. I'm thinking I'll have to buy a bottle of wine to test this. If I drink a full glass of wine it will almost always give me a headache and alcoholic beverages are one of the high histamine foods you see in most lists. But some people... -
I recently had an upper GI endoscopy and a follow-up visit with my gastro doc. While waiting for him in the exam room I was reading the headlines of some medical research articles he had pinned to the bulletin board that had to do with PPI research. At the end of my follow-up visit with him I asked him about some of those things on the bulletin board. The...
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I was diagnosed with celiac disease about 16 years ago but a couple of upper GI endoscopies within the first three years of diagnosis showed villi blunting still unchanged. I was discouraged then because I was making every effort to eat gluten-free. I had pretty much concluded I had the refractory type of celiac disease. A couple of weeks ago, however, I...
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Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
Will do. I'm already taking loads of B vitamins and some magnesium supplementation. I have to be careful with magnesium and zinc supplementation because they definitely have a laxative effect on me. -
Diamine oxidase deficiency in untreated celiac patients
trents replied to Iiv's topic in Related Issues & Disorders
Also found this: https://www.ncbi.nlm.nih.gov/pubmed/29475774 The link above particularly relates low DAO with migraines, which is what I need help with as a Celiac. Sounds promising and I note there seemed to be no side effects with the supplementation: "No adverse effects were registered in patients treated with DAO enzyme." Where can... -
I may have small intestine bacterial overgrowth (SIBO)
trents replied to Scott Adams's topic in Related Issues & Disorders
Scott, What does the testing involve? -
It's no secrete that foods high in nitrates (found in bacon and other processed meats, for example) seem to trigger migraines in some people. Now there is research to indicate that an abundance of certain bacteria in the digestive system may be the key to this phenomenon. These bacteria convert nitrates into nitrites that then enter the blood stream and are...
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No, I do not use aspirin but do use other NSAIDs occasionally. I am on warfarin for a genetic blood clotting disorder and that, together with the damage to SB already caused by Celiac Disease, I am very careful to not use NSAIDs frequently. I do use them occasionally for ortho-related pain because they work so well and are non-narcotic. Acetaminaphen doesn...
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I suspect the same thing, notme! There are times when I can eat something and it doesn't bother me and other times it makes me quite ill. I think there are a lot of variables here. One of them is how things are processed. There are several seed foods that give me no problem if they are washed and/or cooked. But they reliably make me ill if I consume them...
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Our systems are all so different. Corn (and rice) are easiest on me whereas I know corn and corn products give lots of others issues. Good suggestion, notme! about varying the diet to avoid histamine buildup. I've thought about that. I tend to get in ruts with my menus.
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https://www.beyondceliac.org/research-news/View-Research-News/1394/postid--114197/?utm_campaign=Research Opt-In&utm_source=hs_email&utm_medium=email&utm_content=72478196&_hsenc=p2ANqtz-8cBCeWpQSG8tjxT3AC5kO9JlVU9sKiGcArKDefDbz0UI0-FrJiSWvmuEAJ7HWszix_3WVyFj1AaK8h8iqwb5bG0LBdew&_hsmi=72478196 A potpourri of issues discussed in this...
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Meat and dairy seem to be the easiest things for me to digest. I know that is the opposite of many peoples' experience. I can do essentially all veggies as long as they are cooked well. I don't do good with "woody" things. Posterboy, sometimes it just boils down to pick your poison. None of us likes taking these prescription meds but it might...