Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

What Should I Ask From My Doctor When I Get My Biopsy Results Next Week?


spirit-walk

Recommended Posts

spirit-walk Contributor

I had an upper endoscopy and colonoscopy done Monday. They said it would be about a week before I received results. I've been to so many doctors over the last 2 years and been told that everything looks good, so I'm no longer optimistic that I'm going to get answers. But, since this is my first run-through with the gastroenterologist and biopsies, what should I be asking from them? On a side note, the doctor told my wife that the inside of my stomach was reddish and said it might be gastritis. Maybe that's a start down the path to understanding what's going on. I've been eating as healthy as I can for the last nine months. I drink only water and only use honey or molasses for sweeteners. Pretty much stay away from all processed food except for a few gluten-free cereals, and I think they cause issues. Nine months of this diet, and I still have a reddish stomach? This makes me wonder if there is any real healing going on. Sorry to ramble, but I'm just looking for advice on what to ask and what to get for my records. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Maybe read up about gastritis. Ask what you should do about it. Did he biopsy the stomach to check for things listed in the link?

Open Original Shared Link

For the Celiac portion - ask why he thinks its negative or positive. Make sure you understand his explanation.

Get a copy of the path reports

spirit-walk Contributor

Maybe read up about gastritis. Ask what you should do about it. Did he biopsy the stomach to check for things listed in the link?

Open Original Shared Link

For the Celiac portion - ask why he thinks its negative or positive. Make sure you understand his explanation.

Get a copy of the path reports

 

 

Maybe read up about gastritis. Ask what you should do about it. Did he biopsy the stomach to check for things listed in the link?

Open Original Shared Link

For the Celiac portion - ask why he thinks its negative or positive. Make sure you understand his explanation.

Get a copy of the path reports

 

Thanks. He did biopsies, but I'm not sure what all he is checking for. I'm pretty sure he was checking for Celiac's Disease even though I have been off gluten for 9 months. I know he really wanted to the procedures to see what he'd find.

 

I have several of the symptoms listed for gastritis.

kareng Grand Master

Thanks. He did biopsies, but I'm not sure what all he is checking for. I'm pretty sure he was checking for Celiac's Disease even though I have been off gluten for 9 months. I know he really wanted to the procedures to see what he'd find.

 

I have several of the symptoms listed for gastritis.

Sorry I was so abrupt. I got a call to go to the hospital when I was typing.

Anyway....if you have been off gluten for 9 months, it isn't likely there will be any Celiac type damage found in the small intestines.

What I was trying to say is the gluten-free diet might not have any effect on gastritis.

w8in4dave Community Regular

Maby you should ask them where you go from here because your having so many problems , tell them you have taken your self off of gluten for 9 months. Make sure you tell them your very concerned about your health and want some answers ... Sometimes when you get these things done and don't say anything they don't do anything!! Make sure you tell them how concerned you are for your own health!! 

spirit-walk Contributor

Maby you should ask them where you go from here because your having so many problems , tell them you have taken your self off of gluten for 9 months. Make sure you tell them your very concerned about your health and want some answers ... Sometimes when you get these things done and don't say anything they don't do anything!! Make sure you tell them how concerned you are for your own health!! 

 

Will do that for sure! And I've learned this lesson from the rheumatologists I've seen.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - glucel replied to glucel's topic in Super Sensitive People
      16

      iron digestibility

    2. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    3. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

    4. - knitty kitty replied to Aileen Cregan's topic in Related Issues & Disorders
      5

      Coeliac And Cardio Vascular Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442

    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
    • gregoryC
×
×
  • Create New...