Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Getting Frustrated -- Anyone Else Have These Symptoms?


bepack

Recommended Posts

bepack Newbie

Hello all! I've recently been diagnosed with Celiac Disease. It's been a month since I found out and I've been doing very well with not eating gluten. The classic symptoms I had were an upset stomach - mostly in the small intestine area - and feeling nauseous.

 

But lately I've been getting headaches, I've had a sore throat for almost two weeks now and I sometimes get a nauseous feeling. I've been eating gluten-free foods for a month now. Does anyone else get these symptoms? Or since it's flu season perhaps I'm getting the flu? It's getting really frustrating and it's making me really depressed. It's hard to talk to my friends about it and I've had to cancel on almost all plans because of either my headache and nausea or because of my stomach.

 

Also, does anyone else feel nauseous in the morning? I usually need to sit in the shower for 20 minutes in the morning before I can function well. Perhaps I should get checked for another allergy?

 

Thanks so much guys, this has been really hard for me and I appreciate anything you have to say -- even if just having similar symptoms! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I've had those symptoms. I still get some of them.... I tend to get autoimmune flare-ups and I'm not sure what causes them. I have a few problems so perhaps it's one of those, or it could be something else.

 

Anyway, when a flare-up happens, I generally feel like I'm fighting a flu but not getting the flu; I'll be tired and achey, glands might even swell, I lose hair, get sores in my mouth and often end up with an arthritic like pain. I've actually been experiencing this for a couple of weeks - the first time in about 6 months - and now I'm holding my breath and crossing my fingers that the arthritis doesn't come back with it.

 

It could be a simpler explanation of the flu. And morning sickness? Is there a chance that it really is morning sickness?

 

I hope you feel well soon.

bepack Newbie

I've had those symptoms. I still get some of them.... I tend to get autoimmune flare-ups and I'm not sure what causes them. I have a few problems so perhaps it's one of those, or it could be something else.

 

Anyway, when a flare-up happens, I generally feel like I'm fighting a flu but not getting the flu; I'll be tired and achey, glands might even swell, I lose hair, get sores in my mouth and often end up with an arthritic like pain. I've actually been experiencing this for a couple of weeks - the first time in about 6 months - and now I'm holding my breath and crossing my fingers that the arthritis doesn't come back with it.

 

It could be a simpler explanation of the flu. And morning sickness? Is there a chance that it really is morning sickness?

 

I hope you feel well soon.

Yeah I get almost the same symptoms aside from arthritis and mouth sores. I'm glad I'm not the only one!

 

Perhaps I'm still trying to get all of the gluten out of my system as well. And it's strange, I'm not pregnant for sure so it can't be morning sickness. I think perhaps it might be the lack of food in my stomach. I usually finish eating at around 7:30/8pm at night and get up at 8:30am. So I suppose the 12 hours could do it.

 

Thanks so much, I hope you feel better as well :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    2. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    3. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    4. - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

    5. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
×
×
  • Create New...