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Painful Glands - So Over It


IWantCookies

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IWantCookies Newbie

My name is Danielle. I am 24 and live in New York City - and I can't eat gluten and I love to eat - Starting to see the problem?

I'm not certified by a doctor but it all started in January  - I went from normal human adult to someone I didn't recognize. I had a major sinus infection. It lasted for weeks - now I'm use to having a stuffy nose as I suffer from hay fever from birth - but nothing like this, It was scary. I had major stomach pains and even went to ER because I was nauseated and couldn't keep anything down - along with major constipation. I was sent home with a slap on the wrist and pills - it did nothing. My cold did go away along with the stomach problems - but it got worse before better - for about two months I dealt with on again off again sinus pressure ( It felt like an elephant was on head - everyday!) twitching muscles - nerve pain - joint pain -a popping jaw - wrist and feet pain (it felt like needles!) - a clogged ear a painful throat - a swollen tongue - painful swollen lymph nodes - always tired -headaches everyday and gum pain. Seriously if you put this into Web MD it would say your dead. I thought that I was falling apart. At times I even cried because I thought that this was my life and it would be a tumor or cancer. I got anxious and depressed. It turned into hypochondria. The youthful girl who loved to eat and laugh was no more and it happened in a mere few months. I was in constant pain and was prepared to live my life like this.

 

Until one day I was reading Fitness Magazine and it had an article about being tired. I read through it and just like it was written for me. It was an article on Gluten Intolerance. Now I heard of it, as I had a friend from work who could not eat it either - but I didn't believe it. I was 24, why now would my stomach decide to not accept carbs anymore. But just as my thigh twitching right now I knew something was wrong with me. Followed by rashes and the doctor telling me I was anemic I had developed a food allergy against my bread and butter(literately!).

 

All symptoms are pretty much gone except these glands mostly behind my ears and my neck hurt on and off everyday but they are not swollen. Is this withdrawal? Its been a full week with absolutely no cheating and im still in pain - should I be patient?

 

Any advice is loved and welcomed 

 

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kareng Grand Master

I wish you would have gotten tested before going gluten free to see is you have Celiac disease. If it's only been a week, you could start eating a little gluten each day and get tested. Then you would know if you have an actual disease or not.

IWantCookies Newbie

I wish you would have gotten tested before going gluten free to see is you have Celiac disease. If it's only been a week, you could start eating a little gluten each day and get tested. Then you would know if you have an actual disease or not.

Im in the process of that as I am seeing an allergist but when I eat it I feel worse - I ate a hot dog bun last week and had to take a nap and woke up to ringing in my ears. I work at Starbucks and when I eat anything out the pasty case its hell - once my tongue even ached after I ate banana bread so something is bothering me - but thanks for the reply 

kareng Grand Master

Celiac disease isn't an allergy but an allergist could certainly order the tests. But for the tests to be accurate, you need to be eating gluten.

NatureChick Rookie

Gluten withdrawal has nothing to do with allergies or intolerances and would happen to anyone who quit consuming gluten. You could expect to be really tired, lethargic, have a headache and cravings, sleep more than normal and have brain fog. That is because gluten is an opiod, fitting into the same sensors in your brain as opiates, and having similar withdrawal symptoms. This would be one of the reasons people "love" bread products - because it literally gives them a high. Withdrawal normally takes a week or two but is mainly bad the first couple days.

Swollen glands is not a symptom of withdrawal from gluten, but could be part of a reaction to gluten ... or a reaction to other invaders such as catching a virus. If you do have a gluten intolerance and this was part of your autoimmune response, yes, it could take longer than just one week in order to get over the autoimmune reactions like that.

But you appear to be really early in the process of figuring things out. If you are feeling that much better by not consuming gluten, I'd say stick with it, but also do a lot more research into celiac and wheat allergies, what the differences are, and seriously consider doing a gluten challenge in the future so that you can get the correct tests done.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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