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Hey I just got diagnosed with cilia's disease. I moved two days after I found out clear across the country. I don't know anyone and am on my own. I accidentally ate some wheat about two days ago and I have had this staging pain in my stomach just under my diagpragm in the center of my chest. Is this a normal reaction? how long does this usually last for? Should I be worried about anything else going on, or is this just a reaction to wheat? Not sure what I am doing or should be feeling. could use some help Im just out in ohio for a summer job and don't have a doctor, and don't know if i need to go see one or not

 

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Sorry that you are going though this after moving and not knowing anyone, that has to be hard. Just know this, you aren't alone and this site is a wealth if information with some very knowledgeable people.  We will help get you through this.  It is very frustrating at first but I have learned so much on here, it helps make it easier.

 

I would suggest reading the newbie thread on here and learning about cross contamination.  They are both informative threads. Read every label and check all your beauty products, some of them contain gluten ( surprisingly, a lot of them do).  I look it as EVERYTHING that could possibly end up in my mouth needs to be checked.  You wash your hair and sometimes it runs in your mouth, your pets try and give you kisses ( their food is laden with gluten), your boyfriend or spouse eat gluten and could cc you without brushing their teeth and then kissing them.  Make sure you check any prescriptions or supplements you are taking, never expect the pharmacist to know (they don't).

 

As I have noticed on here everyone has different symptoms of a glutening, some have no noticeable symptoms.  It takes a while to figure out what they are, but you will soon figure out your own body.

 

I had a reoccurring pain under my diaphragm for months before my diagnosis, I could never figure out what it was. It was like a stabbing pain right where my esophagus meets my stomach. I think I walked around with my hand there a lot, other people were noticing me doing it and pointed it out.  All the damage that gluten does to our intestines has to hurt though, and after going gluten free it has since disappeared unless I am glutened, but I have found Pepto to help with that. I am not sure if you have your gallbladder or not but I had sort of the same pain with that only it was across my whole chest underneath my rib cage.

 

It takes some people weeks to get over a glutening, some a few days.  It's all a learning process right now. If the pain is unbearable or persists, I would see a doctor.  Celiac really does a number on our systems but it does get better, it just takes time.

 

I really hope you start feeling better and good luck in your new journey!

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Hi, I'm new around here too.  I agree with Beth, the hardest thing at first is stopping yourself from just tasting things.  When you stop eating gluten all the time your body freaks out when it gets in.  I glutened myself accidentally once a week for about a month before I got the hang of it.  You will get the hang of it.  Another thing is not to eat out for awhile.  I've stopped eating stuff unless it's from places with gluten-free menus or says gluten-free next to some options.  Oh yeah and in case you are ever going to Disney world, you can eat anywhere there.  They are amazing with making sure there is no cross contamination.  When I first went gluten-free I felt awful too.  It took like 3 weeks to feel better.  Now if I get glutened it is mostly better in a week.  I hope you feel better soon.

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