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Could I Have Celiac Disease?

mjcoelnc

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mjcoelnc Rookie
mjcoelnc
Posted

Hi, I have't been tested yet but my older and younger brothers both have Celiacs Disease.

 

Normally I eat alot of skinless chicken and Tilaptia fish. Well about a month ago I had Digournos 5 cheese pizza and had 3 slices. 2 hours after eating it I started to feel sick to my stomach. Then the gurgling started. I went to the bathroom and I started with fire hose diarrhea. Then I started vomiting. This all lasted for 3 hours. Next day I was fine cause I ate fish again. 2 weeks ago i had elbow noodles with sauce and the same thing happened. Well last night I had white rice and a box of sweet and our chicken that I have had severl times over the last 3 years. I was sick again. Only this time the vomiting was worse and i had chills and a slight fever of 99.9 afterward. I was fine by morning. I have constipation a lot and after i go I have cramping.

 

I also have Fibromyalgia, Ostopeenia in back and Oteoporosis in hips, Hashimoto/hypothyroidism, high blood pressure,joint pain, eye floaters and cateracts in both eyes.

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kareng Grand Master
kareng
Posted

How often are you getting the blood tests for Celiac? If you have a " first- degree" relative, you should be tested every few years. And if you aren't following that recommendation - you would want to get tested when you have some symptoms .

You have symptoms & related conditions, so I would say you need to get tested.

mjcoelnc Rookie
mjcoelnc
Posted
  • Author

I haven't been tested yet. I have a doctor appointment July 31 so I am going to bring this up.

kareng Grand Master
kareng
Posted

Open Original Shared Link

Open Original Shared Link

You need to continue to eat gluten to help you get accurate tests.

mjcoelnc Rookie
mjcoelnc
Posted
  • Author

Even if it makes me vomit  horribly and have horrible fire hoe diarrhea and made me lose 10 pound in  month?

kareng Grand Master
kareng
Posted

Open Original Shared Link

"A gluten challenge is the period of time when gluten is added back into a person’s diet to assist in the diagnosis of celiac disease. Antibodies take time to build into the blood stream before they can be detected through blood analysis. For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for the duration of the challenge.

Prior to blood testing we recommend 12 weeks of eating gluten.

Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten.

In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy."

And some info for your doc

Open Original Shared Link

mjcoelnc Rookie
mjcoelnc
Posted
  • Author

So today I had a cup of tea and a half slice of bread.. Now 2 hours later,I have a headache, i feel like throwing up but haven't thrown up yet. I have been having lots of gas, burping and passing gas. I feel totally wiped out. I noticed a have a sore in the bck of my mouth today.

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nvsmom Community Regular
nvsmom
Posted

Even if it makes me vomit  horribly and have horrible fire hoe diarrhea and made me lose 10 pound in  month?

Not everyone can make it through the gluten challenge.  Worn your doctor that it could be an impossibility for you, and perhaps he can get you in soon for a biopsy (requires only 2-4 weeks of 1-2 slices of bread per day or equivalent).  He might advise against all testing if it is that bad.

 

You can TRY to test on what you are eating now much chances are that it would be negative. Some people have higher levels of auto-antibodies that don't correlate to gluten consumption. After a long time gluten-free, most celiacs will have negative tests though.

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      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
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      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
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      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
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