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Dh Possible Outbreak Locations, Please Share. Thank You!

Amrita

By Amrita
in Dermatitis Herpetiformis

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Amrita Newbie
Amrita
Posted

Is it possible to get outbreaks of DH in areas that are not Knees, Elbows, Back, Shoulder Blades?

 

Hello,

 

If you have been tested positively for DH can you please share with me about the locations of the outbreaks on your body? 

 

My dermatologist insists that my itchy, recurring rash is not DH, but maybe a contact Dermatitis that my non-existent cat gave me, or from poison oak despite that I am no wilderness girl these days...I have been told by a gastroenterologist that I most likely have Celiac as I have been dealing with all the things....all the symptoms and I have never had a biopsy. 

 

I have this "OMFG WT!!!! AHHHHH" rash all over the backs of my legs, shins, and a couple spots on my arms right now, I swear, I can't believe how intensely the itching is, my goodness!!!

 

If you can share the locations of your breakouts with me, it will help to inform and answer the question:

 

Is it possible to get outbreaks of DH in areas that are not Knees, Elbows, Back, Shoulder Blades?

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Georgia-guy Enthusiast
Georgia-guy
Posted

I have never had a DH rash (or recognized one at least), but someone I know gets it all over her arms and her abdominal region.

Amrita Newbie
Amrita
Posted
  • Author

I have never had a DH rash (or recognized one at least), but someone I know gets it all over her arms and her abdominal region.

Hi Georgia_guy, thank you for your reply. This is really helpful to know. I have it on my abdominal also. Thank you for sharing. This forum helps to not feel alone. :)

BlessedMommy Rising Star
BlessedMommy
Posted

I had to laugh at your comment about your non-existent cat. LOL! :)

 

Does your doctor really think that you'd get a rash from a cat if you didn't have one?

GF Lover Rising Star
GF Lover
Posted

There are other locations it can effect, yes.  Scalp is a common one.  If you have time, look through the DH sections and especially posts by Squirming Itch.  I know some DH sufferers have to avoid iodine for a time to get fully cleared.  

 

Colleen

mendylou Rookie
mendylou
Posted

I am self diagnosed DH. The only 2 places I have NOT had a breakout are the palms of my hand and the soles of my feet. I tend to break out the worst in the same areas.  My worst areas are the underside of my lower arms and the backside of my upper legs.  I do get scattered break outs in other places, but the ones I mentioned are the worst.

squirmingitch Veteran
squirmingitch
Posted

You can get dh ANYWHERE on your body!!!!!!! The only places I have not had it are my lips. I have even had some (only a few thank goodness) on the bottom of my feet. 

Have a look:

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      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Celiac flare years after diagnosis

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