Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Blood Test -- Dr Didn't Specify The Celiac Panel :(


CanadianK

Recommended Posts

CanadianK Apprentice

Hi all

 

I was here awhile ago asking about blood tests and my daughters anxiety, etc. Anyways, I finally got her blood test done and the Dr called with the results but then said, there are no celiac results, but her IGA is fine. What?!? Turns out my dr. didn't specify on the form that she wanted the celiac panel, instead she just wrote IgA. I'm annoyed and feeling so stupid with myself. I just went through this with myself and requested all the tests, but it felt like I had to work to convince my dr. to request the test for my daughter, that when she wrote out the requisition I didn't go over it and I didn't request all the tests I had asked for myself. 

 

I'm so disheartened. 

 

It took all my daughter's courage to get it done and in my haste I dropped the ball…

 

Of the tests she did get done:

 

Ferritin 26.8 (range 30.7-177)

Hemoglobin 129 (range 120-160)

White Blood Cell Count 3.7 (range 4-10) 

 

Her B12, sugar, kidney, thyroid and all of that is fine and normal. 

 

She's exhausted all the time and pale with dark circles under her eyes when she eats gluten (as well as the tummy aches, headaches, etc) She's continuing to eat gluten and we've been referred to a Peds GI.

 

Anyone have input about what the appt at the GI will be like? How to they usually handle things with children? 

 

Thanks for listening. I'm beating myself up over here…

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JodyM75 Apprentice

If you hurry and follow up fast, the lab may still have the vials of blood and they can do the correct test.  I was told my lab keeps the vials for at least 3 days. 

Link to comment
Share on other sites
CanadianK Apprentice

THANK YOU!! I called the lab and they keep kids blood for a month! I'm in the process of calling my Dr. to get her to add it in. I can't thank you enough!!

 

 

If you hurry and follow up fast, the lab may still have the vials of blood and they can do the correct test.  I was told my lab keeps the vials for at least 3 days. 

Link to comment
Share on other sites
africanqueen99 Contributor

Wow, this is just mind blowing that they keep the blood.  What awesome information to keep on hand!

Link to comment
Share on other sites
beth01 Enthusiast

Most labs keep blood that they have run testing on for at least a few days. Some tests like complete blood counts, the vial of blood is only good for 24 hours, but tests that use serum or plasma, it can be good for up to 7 days to still have testing done on it if it is refrigerated or up to a month if frozen. It's all in how the lab processes the original sample though. This might not be the case for all labs. Some tests they automatically freeze the sample in case further testing is needed.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    2. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj posted a topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,219
    • Most Online (within 30 mins)
      7,748

    SoCalSuzy
    Newest Member
    SoCalSuzy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
    • mishyj
      My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any kind of hidden glue? Help!
×
×
  • Create New...