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Suspect Thyroid Problems & Still Feel Miserable


sillyker0nian

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sillyker0nian Rookie

(Here is my Celiac Blood Panel results to see them - it might help shed some light on things.)

 

Hey, everyone! I'm back. And, I have new things to ask. I think I have Thyroid problems. And, I'm also still eating gluten regularly to make sure I keep up on it just in case my G.I doctor which I'm still waiting to get refereed to  does decide to do the endoscopy and biopsy. But, right now within the past few days I feel horrible - miserable even. I feel like lava (really warm) which isn't fun....

 

Anyways, my suspected non-Celiac symptoms are

 

  • Increased sensitivity to cold
  • Dry skin
  • Puffy face
  • Muscle weakness
  • Muscle aches, tenderness and stiffness
  • Thinning hair

My grandmother also had thyroid problems which makes me suspect that I have them since they were passed down. And, I have low hormones and my overall IgA is low. My neck feels a little painful&puffy recently plus a little lump possibly, too. 

 

Can anyone help?? Thank you!  :)


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icelandgirl Proficient

Hi there...those could certainly be thyroid symptoms. Have you had any blood work done for your thyroid? If not, please do that. Ask for TSH, free T3, free T4, TPOAB and TgAb. The last 2 are antibody tests for Hashimotos, an autoimmune thyroid disease. A number of people on this board, including me, have that as well.

Testing is a simple blood test that your GP should be able to order for you. Low thyroid symptoms are no fun. I hope you get this figured out quickly!

cyclinglady Grand Master

Only testing can determine a thyroid issue. See if your doctor can order the complete panel as ice has suggested. Take care!

sillyker0nian Rookie

Hi there...those could certainly be thyroid symptoms. Have you had any blood work done for your thyroid? If not, please do that. Ask for TSH, free T3, free T4, TPOAB and TgAb. The last 2 are antibody tests for Hashimotos, an autoimmune thyroid disease. A number of people on this board, including me, have that as well.

Testing is a simple blood test that your GP should be able to order for you. Low thyroid symptoms are no fun. I hope you get this figured out quickly!

 

Thank you!! I wrote down all of those tests you said. I'm going to my first ever endocrinologist visit on the 22nd. I'm sure she is going to be a more educated doctor on this particular issue than my "general" doctors at the nearby clinic. Do you know what she is going to need? What tests she's going to want to do? Or, can I just visit her once and see what she says and go to my general doctors? 

 

 

Only testing can determine a thyroid issue. See if your doctor can order the complete panel as ice has suggested. Take care!

 

I understand - it's just everyone on this board seems so knowledgeable so I wanted to ask anyways. Thank you, too, as well :)  

cyclinglady Grand Master

The tests IcelandGirl listed are specifically for the thyroid. Your endo may order other tests to rule out anything else. I have never seen an endo. My GP doctors have been good about managing my Hashi's, though it is important that you are educated as well.

Here are my suggestions for your visit. Make sure your endo feels your thyroid. Ask him to order the thyroid panel. Take in a family chart of illnesses. I find it invaluable and doctors love it. It has helped everyone in my family. Bring copies of past lab tests (you should always maintain health records).

Good luck!

icelandgirl Proficient

Take in a list of your symptoms and a list of the tests you want done.  The endo should examine you, including your thyroid.  She should order blood work.  When she does that, make sure that it includes what you want tested.  You may also want to ask for tests for B12 and D...lots of celiacs are deficient in those and in my reading I've found that lots of Hypothyroid people are as well.  Good luck to you!  Let us know how it goes!

sillyker0nian Rookie

UPDATE

 

Sorry - just too much to put into this post  :(


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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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