Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-m):


Changing Symptoms?

Rate this topic

Recommended Posts

My daughter is 4.5yo and has had celiac disease since birth.  We have been gluten free since she was 2.  Her typical symptoms of being glutened were primarily and initially a skin rash.  The rash, which is very specific and easy to spot, was always the symptom we saw when she got glutened due to cross contamination as well.  Anything more than CC and she had symptoms which include diarrhea, vomiting, constipating, fever, bloating, incontinence, mood swings, extreme fatigue, etc.


However, recently (past month or so) she has started having a lot of unexplained tummy aches.  Probably a couple times a week, with no known cause or other symptoms (sometimes fatigue).


Could her symptom 'patterns' be changing as she gets older?  Has anyone had any experience with this?  



Share this post

Link to post
Share on other sites

Join eNewsletter

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

Well, I am not a kid, but celiac disease symptoms seem to evolve. Anemia was my primary symptom at the time of my diagnosis but tummy troubles occur when I get accidentally glutened. When were her antibodies for celiac disease last checked? Could she be getting gluten?

Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

Share this post

Link to post
Share on other sites

Join eNewsletter

Have you noticed any link to dairy consumption with the symptoms? I was very slow to go dairy free but after I had switched gastro doctors and he said sorry there is nothing more I can do than what you are doing and the meds you are using and then said a lot of times dairy is a problem for people with Celiac. I tried dairy free and have had good results. Not that I don't have other issues from time to time because I have IBS as well but certainly improvement has taken place. I wouldn't do anything too drastic right away because it takes me longer than a month to feel right after even a drop of gluten accidentally or cross contamination. Good luck. It's a journey and people on this site can provide assistance better than most doctors. Yes I'm jaded, it took the doctors way too long to find Celiac and they didn]t find it till I told them to check for it.

Share this post

Link to post
Share on other sites

Join eNewsletter

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


Join eNewsletter

  • Popular Now

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):

    Celiac.com Sponsors (A17-m):

  • Celiac.com Sponsors (A19):

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member

  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
    • Total Posts

  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Celiac.com Sponsor (A22):

  • Blog Entries