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geneticist

Nebraskamommy

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Nebraskamommy Rookie
Nebraskamommy
Posted

has anyone seen a geneticist to confirm a diagnosis for their child? We have seen 4 drs. 2 said our test results say Celiacs and 2 drs said they do not show Celiacs. we never did a biopsy and he has been gluten-free for 2 yrs now. He does have one of the Celiac genes, however as i understand so does 40% of the population. since other automoimmune conditions can exsist where there is one, i'm considering seeing a geneticist to see what other genes he has and then weighing weather or not to put him back on gluten to get a biopsy done. my fear is starting another autoimmune condition if we reintroduce gluten again.

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StephanieL Enthusiast
StephanieL
Posted

Genetic can not confirm a dx. The genes associated with Celiac disease aren't diagnostic so I'm not sure a geneticist will be able to 100% confirm.  What were the signs and symptoms was he having that lead you to testing to begin with? Did they resolve when going gluten-free? 

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  • Posts

    • Newhere19
      New to all of this

      By Newhere19 · Posted

      Thank you both. I haven't had access to the test results but will get them and post here.
    • jjiillee
      Daughter waiting for appointment

      By jjiillee · Posted

      The ulcers are prepyloric ulcers. Not sure if that makes any difference. 
    • trents
      Daughter waiting for appointment

      By trents · Posted

      Duodenal ulcers are not uncommon either and often result from H.Pylori infections. https://www.healthdirect.gov.au/duodenal-ulcer
    • trents
      Rigorous exercise + inflammation/fatigue?

      By trents · Posted

      Just vitamin b1?
    • Scott Adams
      Daughter waiting for appointment

      By Scott Adams · Posted

      I had what was termed "lesions," and normally ulcers are in the stomach, rather than the small intestines. I'm not sure why they would want you to have her continue to eat gluten, since she had a positive blood test, but as her doctor said, if she is uncomfortable and having symptoms why not have her go gluten-free at this point? If her symptoms improve, it would be another indicator that she has celiac disease and/or gluten sensitivity. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
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