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Ennis_TX

Current Issues and New GI Doc

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So my primary physician has scheduled to see a new Gi Doctor for a scope to check on my bleeding and updates on intestinal health. They have me coming in for a evaluation, and talk this week, I am honestly worried this new doctor is going to dismiss my celiac and want to retest me. I have this overly defiant idea that if he tells me to do the gluten challenge I will order a monte cristo (bucket list food item) and eat it in his office and let me watch me for the next 8 hours laid out on his office floor vomiting and drifting int and out of it in pain.....Call me crazy but my reactions are so bad and my weight so low I fear it would kill me.   Anyway going in there to get a colonoscopy and a endoscopy later to look and try to find why I have random bloody stools and sometimes bloody globs of yellow mucus. Thinking this might also be connected to my night sweats and weight issues. Thoughts, ideas, and prayers welcome.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Ennis, 

In your case, a gluten challenge would be crazy!   A severe glutening could trigger something even more serious.   It is a good idea to check for other issues that may be happening.  Something is wrong for sure.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

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GI doctor was in doubt about my Celiac disease, he ordered a full celiac panel and scheduled a colonoscopy and endoscopy along with biopsy. I told him I have been gluten free for over 3 years and  not been major poisoned since June. They took the blood anyway sorta blowing this fact of the matter off and I told them I would probably test negative since I have not been eating it......Now I have a feeling they are going to try to discredit my previous diagnoses. Previous diagnosis was done between a doctor I had a while back and my dietician at the time. No one has any of the paperwork it seems anymore.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Sorry to hear that.  Lesson learned:  obtain and maintain copies of ALL of your medical records!  I started doing this back in 1996.  I even maintain a spreadsheet for my family as well.    Impresses any new doctor.  the family history chart helped my niece get her Crohn's diagnosis.  Her GI said he had never seen one so detailed.  

Well, you should get celiac antibody testing done annually anyway.  Hopefully, they'll find the source of your current issues.  

 


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

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