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- trents replied to Ben Cohen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7How much gluten do I need to eat prior to testing?
@Ben Cohen, make sure you ask your physician to order a test called "Immunoglobulin A (IgA)" (aka, "total IGA"), which tests for IGA deficiency, along with the tTG-IgA. The tTG-IgA is the primary test used these days to check for celiac disease but if you are IGA deficient, the tTG-IgA will not be accurate. Some physicians neglect to check for IGA deficiency...- 1
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- Dr. Gunn replied to Ben Cohen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7How much gluten do I need to eat prior to testing?
Before putting yourself through the disruption of a gluten challenge, you might want to check and see if you carry the celiac risk genes DQ2 and/or DQ8. If you don't carry the genes your celiac disease risk is below 1%. If you do have the genes, a gluten challenge followed by antibody testing would be the next steps for a proper medical diagnosis.- 1
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- trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15
Disaccharide deficient, confusing biopsy results, no blood test
Typical, I suppose. -
- jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15Disaccharide deficient, confusing biopsy results, no blood test
yes, i told my brother that, but he’s fine with never getting an official diagnosis he says! he doesn’t often take my advice LOL
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@Ben Cohen, make sure you ask your physician to order a test called "Immunoglobulin A (IgA)" (aka, "total IGA"), which tests for IGA deficiency, along with the tTG-IgA. The tTG-IgA is the primary test used these days to check for celiac disease but if you are IGA deficient, the tTG-IgA will not be accurate. Some physicians neglect to check for IGA deficiency, operating on the outdated assumption that it only occurs in young children. Here is an article outlining the various antibody tests that can be ordered to detect celiac disease: Another thing to keep in mind is that, as Dr. Gunn indicated, if the antibody testing is positive, your physician will likely want to confirm those results with a biopsy which would require you to remain on the gluten challenge.
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Before putting yourself through the disruption of a gluten challenge, you might want to check and see if you carry the celiac risk genes DQ2 and/or DQ8. If you don't carry the genes your celiac disease risk is below 1%. If you do have the genes, a gluten challenge followed by antibody testing would be the next steps for a proper medical diagnosis.
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Typical, I suppose.
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yes, i told my brother that, but he’s fine with never getting an official diagnosis he says! he doesn’t often take my advice LOL
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I'm 63 and was diagnosed in 2010. Prior to diagnosis I was suspected of having to strokes and medicated according each time. A neurologist called me in to discuss my scan. From that discussion I had a camera down and celiac disease was confirmed. I suffered continued pain and numbness down my left side and was offered amitriptyline, and antidepressants that was also diagnosed for nerve pain. I said no as I didn't want the stigma of being on antidepressants. Seven years later I begged my GP to prescribe them and my life was changed almost immediately. If I'm glutened accidentally whilst eating out then my nerves pain/symptoms get worse but it's nothing compared to taking the medication and feeling a little drowsy every now and then. The best of luck for the future.
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