Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter
0
MandyP

help-old test results

Rate this topic

Recommended Posts

Hi!

I'm new here, and am learning what everything means.  I just realized my old test results from 2012 were available in my online chart.  My symptoms have increased since then, and I am requesting a retest tomorrow.  I have awful skin rash/itching that only goes away with steroids OR eating gluten free.  I also have migraines that seems related to gluten.  All the GI issues--yep, when eating gluten.

Here's what it said in 2012:

Gliadin igA 5.0

Gliadin igG 5.2

TTg <1.2 U/ml

TTG IgG < 1.2 U/ml

I feel like I need something that says clearly I can't eat gluten.  Otherwise, I can't but help to see it as a 'choice' even though I am SO incredibly ill when I do eat it.

Any help is greatly appreciated!

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


I hope your not eating gluten free at this point. You need to be eating gluten for any celiac testing. If you are gluten free you need to be eating at least a couple slices of bread worth of gluten for a couple months before you have testing done.

You also may have DH but if you have recently been on prednisone for the rash you will need to wait for testing by a Derm. If you do go for testing for DH try to find a doctor who is knowledgeable about how to do the biopsy properly. They need to do the biopsy next to active lesions.

I hope you can get some clear answers soon.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites

1.  Need the lab ranges as they vary from lab to lab.

2. Make sure you have been eating gluten daily for 8 to 12 weeks prior to a blood draw (celiac test) or tests will be invalid.  

3.   Read up on DH for advice and skin biopsy information.  

 


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Share this post


Link to post
Share on other sites

Yes I've been eating gluten for the last couple of months and I have been miserable.  Me asking for a retest tomorrow is hopefully one way I can convince myself that I just have to be gluten free and that it is no longer a choice.

I did have a skin biopsy--years ago when the rash first started.  He was a regular dermatologist.  I can't remember the specifics, but in the end it was a 'uticaria' of an unknown origin.  5 doctors and several years of misery later I went to a more 'wholistic' doctor.  The first question she asked me was if I had every tried out a month of not eating wheat.  I had not--and when I did, it was the first time that the rash went away without steroids.

Right now I am eating gluten.  And I am sooo sick.  I just can't imagine how this is not celiac.  How can I be THIS ill and it just be a 'sensitivity?'

Share this post


Link to post
Share on other sites

All of these results just say U/ml, and only the Tissue Transglutaminase IgG gives a range: < 6.0 (Negative) U/ml

So my results were negative.  But I'm so sick!  And my symptoms have increased since 2012.

Edited by MandyP

Share this post


Link to post
Share on other sites

Celiac disease can develop at any time in your life.  So, it would be good to get re-tested.  Some celiacs do not get a positive on the blood tests, especially those with DH.  You should rule out other GI issues too.  

A gluten sensitivity can cause all your symptoms, but you just do not have intestinal damage.  

 

 


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0