Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

DH?

Msr87

By Msr87
in Dermatitis Herpetiformis

Recommended Posts

Msr87 Newbie
Msr87
Posted

Alright. My turn to create a new post I suppose.

Last Friday I got home from work and my elbows were itching like crazy. Finally I complained out loud after scratching them like a mad man and my gluten-free noticed that my right elbow was one big hive. (Probably from the scratching).I put triple antibiotic on it, wrapped it, and tried to not touch it. An hour later...it was gone.

 

Ever since then, I get a very small rash,mainly a few small bumps, on my left elbow about 8 hours after eating bread of any sort. I found out about DH mid last week and took 2 days of no gluten. Whaddya know, no hives.. 

 

Yesterday I have a fancy pants artisanal donut with coffee for a late breakfast at about 1030a. 1130pm rolls around and all of a sudden my left elbow starts to itch like mad. I look at it, and sure enough 2 or 3 small bumps are surfacing. 

Everytime it has happened this week it has been fewer and fewer bumps, and they all go away within 20 minutes or so.

 

I thought I had it figured out as DH(grandpa had Celiac's late in his life) but the short lifespan of the blisters seems to go against that. They itch like crazy, but no gut pain or anything like that to go along with the gluten theory. I'll probably call a dermatologist Monday, but with the bumps being so short lived I don't know how useful that will be.  

 

Thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Get tested for celiac disease before you go gluten free.  Antibodies take a while to ramp up, so cutting out gluten for a few days is not going to help you determine if you have celiac disease.  Autoimmune hives is common with celiac disease.  I get them for months after a gluten exposure.  Antihistamines will help with the itch, but will not necessarily reduce the hives for me.  Avoid first generation antihistamines that cross the blood brain barrier, if you take any.  

Learn  more about testing:

Open Original Shared Link

Be sure to mention your family history.

Jmg Mentor
Jmg
Posted
4 hours ago, Msr87 said:

I thought I had it figured out as DH(grandpa had Celiac's late in his life) but the short lifespan of the blisters seems to go against that. They itch like crazy, but no gut pain or anything like that to go along with the gluten theory. I'l

Hello and welcome :)

i tested negative for celiac but was advised to be gluten free for life due to my reaction to the gluten challenge. It affects me in a lot of ways but digestive is not in any way my main symptom.

about a year in to gluten free I switched cereal brands to one which I thought had a 'safe' level of barley malt. Within a very short time I got a rash on my elbows exactly like the one you describe. I was already nervous about the cereal and immediately removed it from the diet" the rash, luckily, went soon after.

i have no idea if it was dh but I'm convinced it was a reaction to the gluten. 

I think you need to stay on gluten and get tested. 

 

Best of luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat. In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue. A wedge...
    2. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired. I haven’t been to an allergist in a few years, I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young...
    3. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply
    4. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways. I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux. Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following...
    5. trents
      - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442
    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Anyone else get a lot of upper respiratory infections?

      By trents · Posted

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...