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PJP

Me again, small update

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Hello, 

I had my blood tests and decided to go gluten free and the pain was too much. That was almost a week ago. I ate something out today and now the pain is back.. I think it had gluten in :/ oops. I'm ringing up to get my results (well hopefully) Being gluten free has made things so much better, See what the bloods say. I'll update tomorrow :)

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33 minutes ago, PJP said:

Hello, 

I had my blood tests and decided to go gluten free and the pain was too much. That was almost a week ago. I ate something out today and now the pain is back.. I think it had gluten in :/ oops. I'm ringing up to get my results (well hopefully) Being gluten free has made things so much better, See what the bloods say. I'll update tomorrow :)

Yeah we normally suggest not eating out til you have it under control and only eating out at places you can trust after talking at length with the manager and staff. Check FindMeGluten Free app if you insist on eating out, and look for places with multiple good reviews.  Perhaps invest in a tester like nima or EZ-strips (tricks to use them right and they sometimes are iffy)

Stick to a whole foods diet for the first few months to help boost healing, many find removing dairy and oats for the first few months also is a huge help. You can try reintroducing dairy later on but celaics disease damages your villi and the tips of those produce the enzymes to break down dairy so issues are very common til some healing is done. Oats in some cases for celiacs can cause the same reaction as gluten (10% of celiacs if I recall) and even the gluten-free ones can not be consumed by them.

Take it you have checked the 101 thread and cleaned out the kitchen, and done all the things you need to do. Be careful of CC, and what products you trust, Sticking with whole foods is a safe bet but otherwise look for the gluten-free certification marks. and read ingredients like a hawk.   Soon you will have it down, and even the veterans like me mess up or get tricked sometimes by products so no worries just get back on that horse to healing,

Good Luck


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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