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Hey guys. So this is my story

December had an endoscopy after bloods. Stressed/exhausted/memory Loss/concentration lacking. Turns out after only finding out my results in July I do have celiacs. this proven by the biopsy.

Though I was told at the hospital they didnt think I had it

Anywho. Ive begun the gluten free diet. Ive been at it a few weeks. Started going well. However the past 3 days ive woken up with really painful chest and stomach pains, I started to feel better but now it seems to have got worse.

My mood for a few days was higher then it has ever been. I am a generally psoitive guy, but the drops in mood are unreal and the unbeliveable fatique, memory loss, diziness etc. Is it usually an up and down process> Cutting out gluten I mean?


Also, the extreme tiredness after eating is knowing me out! ha ha

Edited by johnojohno

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Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

Probably in the withdrawal phase, like a drug addiction withdrawal but with gluten. Keep on going it gets better, there are some supplements to help make it better, and some you will find you might have to start taking. Magnesium, and B-vitamins are common issues among celiacs, and can cause all kinds of fatigue, fog, etc. These become much more noticeable as must gluten free food is non fortified with these nutrients.   It is suggested you eat a whole foods only diet to jump start your healing and to help avoid getting cross contamination. Lactose intolerance is also common, but in some goes away after healing, so we suggest avoiding dairy and oats for the first few months (the enzyme to break down lactose is produced by the tips of the villi in the intestines which are damaged or destoryed by celiac).  Also I take it you cleaned out everything and replaced the pots, pans, utensils, colander, toaster, and threw out the old Tupperware? I might suggest reading over the newbie 101, I will also provide a link of where to find and get gluten free alternatives for some staples.

I do suggest taking Liquid Health Stress & Energy and Nurological support for B-vitamins, it is in a sublingual form you just add to tea, juice, or water and drink it. I take 1 tbsp each 3 times a day to avoid that up and down feeling. Might check with Magnesium and see if your having any issues with it, if so Doctors Best or Natural Vitality Calm is suggested to help with these.



Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Usually, it takes more than a couple of weeks for the symptoms to really improve. Often times the GI symptoms will improve in a couple of weeks-months but the neuro symptoms like brain fog, mode issues can take 1-2 years. 

So, this may be a silly question, but you said you had the scope in December, but have only been doing the gluten-free lifestyle for a couple of weeks?  

Also, are you getting plenty of sleep and exercise? Are you eating an otherwise healthy diet (mostly whole foods)? Could you be getting small amounts of gluten hidden in your diet - hence not completely healing?  Lots of reasons to consider.....

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