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TexasJen last won the day on July 11 2017

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  1. I like all the ideas above! You've gotten some great advice. I wouldn't tell her until after it's official. No need to get her all worked up for no reason. Don't go into a lot of specifics until the diagnosis is final. After that, reach out to other parents in your school and find the other kids with celiac. Invite them over for dinner and hopefully she will connect and befriend one of them. Even in our very small school, there are at least 8 kids who are gluten free and/or celiac along with at least 2 teachers. They could really help with the transition. Also, consider having the whole household eat gluten free at home. Then you won't be making multiple meals, she'll be safe and won't feel left out.
  2. Hi and Welcome to the Forum. I am glad that you are here! As with a lot of things in life, try not to compare yourself to other people. You are trying to be the best version of yourself - not Jill, Annie, or Maya. People make a lot of foolish decisions in the world and it does not mean that you should do it too. Also, many people are gluten free for a lot of reasons that aren't celiac. One of my best friends has gluten sensitivity but not celiac. He eats a lot of food that I won't touch due to possible cross contamination which he doesn't worry about too much. Be true to yourself and keep your self healthy. It is so hard, but it's better than getting sick! I hate not being able to partake in yummy food at parties, but I have learned what junk food I can eat. I will make sure to buy some tortilla chips or Fritos for picnics. I freeze gluten-free cupcakes to eat when we celebrate birthday parties (I can just take one out of the freezer and go). I make sure to take a dish to share to potlucks. I ask permission at restaurants and parties to bring my own food - no one has ever said no, and when there is a time to celebrate, I splurge on something I really like. Fortunately, there are a lot of gluten-free foods that I really like. Do i miss pizza and really good burger? YES! And sometimes, I still feel awkward, but life is so much more than food.
  3. San Antonio is a lovely place. I lived there for a couple of years but I didn't have celiac at the time, so I can't really comment on eating out there with celiacs. It definitely would be on my list of cities to live in, though. There are a lot of fun celebrations in SA so you should visit during Fiesta, or at Christmas time - the riverwalk is beautiful then......
  4. Hi Joseph- The anti-transglutaminase IGA (Anti-TTG) is positive. It's hard to know about the endomysial Antibody without the reference range but usually positive is more than 1:10. So that's probably positive as well. Along with the endoscopy showing villous blunting, that usually makes the diagnosis of celiac. Celiac has over 200 symptoms and about 50% of people do not have GI issues at the time of diagnosis. For me, I did not have any abdominal symptoms. I had anemia, heart racing, restless leg symptoms. As for your doctor, you should get a new one. Any doctor that can't take 10 min to answer the questions for a patient with a disease that will upend their whole life is not worth it. That being said your doctor probably won't be the person to actually help you with the treatment for celiac disease. The treatment is a lifelong, strict gluten free diet. Read the Newbie 101 section here and find a good dietician that is familiar with celiac. Search this website for questions you have, making sure to check the date of the posts. People have probably already asked the questions you have and a lot of great answers are here. (but some of the answers are outdated) Ask questions if you have them. This community is here to help support each other. Good luck!
  5. In Austin, all the gluten free eating is pretty spread out. In central Austin/downtown, Wildwood Bake House which is 100% gluten-free. There are also restaurants that are mostly gluten free - Piknik and Casa de Luz are almost 100% gluten-free. There is a new bakery called Zucchini Kill that is 100% gluten-free. In north Austin, GuacoTaco is 100% gluten-free. Fresh Heim is almost 100% gluten-free (they serve cheesecake for dessert but that's the only thing). There are 2 local restaurants: The Salt Lick and Jack Allen's which have several locations and are relatively safe. Salt Lick's menu has bread as their only item with gluten. Your waiter can pull the meat straight out of the pit so there is no CC. In Round Rock (northern suburb), there is a new gluten-free bakery called Pie Jacked. In Lakeway, there is a gluten-free bakery called Blackbird. Other restaurants that I have been told are fairly safe but not 100% gluten-free : Odd Duck, Uchi, The Steeping Room, Koriente, and Taco Deli. Good luck!
  6. Hi Boat Life- 2 things: You don't mention why you had the blood work done in the first place. Are you having symptoms? Do you have a family history of celiac? Certainly, the lab work is very suspicious for celiac but it's possible to have false positives. So get the biopsy to confirm, esp if you don't have many symptoms. Also, it looks like you have IgA deficiency. Not all people have symptoms but it can be serious. If I am reading this correctly, you should also be referred to an immunologist. Good luck!
  7. Between Worlds of Fun and Liberty.....
  8. Karen - what restaurants do you like to frequent in KC right now? My in-laws live there and we are headed up next week. I have not found too many places in the northeast part of town that I feel comfortable at.
  9. Austin, Texas would actually be a pretty good choice. We have 3 gluten free restaurants and several others that are almost completely gluten free. We also have 3 additional gluten free bakeries spread out around the area...... Downside is that everyone else has figured out that Austin is a pretty great place to live so you'll have to compete for housing and space on the freeways!
  10. TexasJen

    Treatments for Post-Contamination GERD

    About a year after my diagnosis of celiac, I developed GERD out of the blue. My symptoms don't appear to be related to CC but to be honest, I'm still not 100% sure. I have found, though, in addition to cyclinglady's recommendations, that eating small meals with mostly whole foods, avoiding alcohol, dairy and all coffee/tea really seems to help. Hope she feels better soon!
  11. I was sad too! I think that's part of a normal reaction to something that will change your life so much. But, it hasn't stopped us. My kids are young but seem to have a travel bug. Traveling is by far the hardest part! We went to New Jersey, DC, LA, Houston, and the mid-west this summer and I'm alive and healthy! I usually try to stay in a hotel or VRBO with a kitchen. We eat our breakfasts in the hotel/cabin. Lunch for me is usually light - fruit, nuts, yogurt, Kind bars. Things I can take anywhere so that I can give the kids opportunities to eat different or ethnic foods that may not be safe for me. For dinner, we try to find restaurants that I can safely eat at. We do have to do some research and sometimes I'm heating up soup after dinner in the hotel room after my kids eat pizza. :0 I love watching them try new foods. Fortunately, for me, I was diagnosed after I had the chance to travel a lot. I miss trying new foods, but I'm ok eating a banana and some pecans while they get to try French crepes. When we were in DC, the kids got to eat Czech, South African, and Portuguese foods (and the South African restaurant was next door to the Little Beet - a gluten free restaurant). So, I grabbed some food next door and ate with them. (I asked the server first and they were fine with it) Then I bought a second meal to go to eat the next day. And, I think as time goes on, there will be more gluten-free restaurants popping up and it might get even easier to travel. Good luck!
  12. TexasJen


    I would say that your doc is wrong. There is some evidence that negative TTG levels does not mean that you are not getting some cross contamination here and there. So, annual antibody checking does give a bit of a false reassurance when the results are negative. The problem with repeat endoscopy is that changes seen on pathology can take 1-2 years to improve and small amounts of cross contamination can easily lead to Marsh 1 type changes. SO, if you get the endoscopy, what does it mean? If you have persistent villous atrophy, then you know you are getting some persistent changes but if you have intraepithelial lymphocytes with no atrophy (Stage 1), does it mean you made a mistake at a restaurant 2 weeks ago or you are constantly getting cross contamination and have chronic inflammation leading to malabsorption. There's almost no way to tell the difference! I think this is just an area of science that hasn't caught up to the questions we have. I think if you were persistently losing weight, had some other persistent symptoms, or had nutritional deficiencies on labs (low ferritin, B12, folic acid, anemia etc), it would make sense to have a repeat endoscopy. But, if your weight is stable, no nutritional deficiencies and you feel good, is it worth it? Do you ever go back to your GI for a review? What did he/she say?
  13. TexasJen


    Reese's pieces and Reese's PB cups are safe. Also, plain Hershey kisses say gluten free on the package here in the US if you would prefer something labeled.
  14. TexasJen


    Oh, I missed the part about Canadian candy. Maybe you can buy some American candy on line - then you would know it's safe. Can you buy American candy on Amazon? I buy everything on Amazon! Can you call the Hershey's in Canada and ask them? Pick your favorite candy or two and research it? Just a thought....
  15. Actually, an endoscopy refers to any scope inside the GI tract. An esophagoduodenoscopy refers to a scope in the upper GI tract - esophagus, stomach, duodenum and a colonoscopy is a scope through the colon. Typically, both are done when the diagnosis is blood in the stool as the blood can originate anywhere along the GI tract (or even in the sinuses/nasal passages). Typically, they are done at the same time to avoid repeat anesthesia, prep etc - if you need both, of course. You do have my curiosity peaked about "gut bacteria" test that tests for RBC. I am not sure what kind of test you are referring to.