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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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So I have a small infection in my gums seems to be way up there under my right nostril. I feel a tiny bit of pressure when i  press there. Now it forms a white head above my right front incisor in my mouth about 1/8" above my gum line and is on the tooth where I had a crown put in few months ago. I lance it daily and apply pressure from just inside my nostril and roll down to drain it out getting several drops of pus and clear and red fluid out of it. Then rinse with hydrogen peroxide, this has been going on for about a month. Wondering if I should take a antibiotic like amoxicillin.   I do not have dental insurance and unsure how the doctors would deal with it.  Thoughts and suggestions?

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I  just had this exact thing. Never figured out what from, food intolerance or medication withdrawal. In any case it kept filling and I kept emptying. What cured it is sea salt which I rubbed up under the gum. It stung but getting up in the wound is what made it heal in 2 days. I also rinsed with sea salt water before bed. Key is to sleep with salty mouth, no water rinse after sea salt rinse. Hang in there.

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I would start with your doctor and get a prescription for an antibiotic.  Amoxicillin is usually a first-line antibiotic for dental issues.  Then, I think you will need to go back to the dentist.  Your root might have cracked allowing for bacteria to enter.  You will need an x-ray.  You may need to have an Endodontist look for the crack.  This happened to me.  Infection, failed root canal re-treat,  and then extraction because my  "dead" tooth could not be saved.  The infection caused a lot of bone loss.  I had no pain at all during the infection.   It was caught when I experienced facial swelling and developed a sinus infection as well.  

I am now waiting for my bone grafting to heal before my implant.  More bad news....the two teeth on either side have lost enamel on the sides that used to face my old tooth.  That will need to be fixed.   We are blaming celiac disease.....ugh!  

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I agree please go to your doctor and get an antibiotic as soon as you can. In addition to what Cyclinglady mentioned the area that you have the abcess can spread the infection to your brain. This is not a time for self care. By the way you may not want to tell the dentist that you have been lancing the abcess yourself. Know from personal experience it will bring you a lecture. 

Hope this resolves for you soon.

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So on the amoxicillin 500mg twice a like I thought. Started last night and it did not have pus this morning. Supposed to be on this for a week then go back in for an assessment. Hopefully I do not need a root canal or anything lo!. I could not afford it. 

On a side note noticed some side effects, joint pain today, frequent bowl movements, and thirsty. Bright side is the constant insane cravings for sweets is gone. Been replaced with the old binge craving for almonds and pumpkin seeds.

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Update going in next week for xrays, The pus is gone now, it just drains clear fluid and blood now, no lancing just gets a tad bit of pressure pain and when I rub above the gums under my nose it just drains out that little spot that used to have the pimple like thing seems to be a duct for draining now.  I have also incorporated using a hydrogen peroxide rinse twice a day, and using listerine a few days a day. Trying to contain and keep the bacteria in my mouth down for now.

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Glad to hear about the improvement!  🤗

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Update, black area on x rays, I need to get a root canal. Can not afford the $920 and I shopped around and did my research with coverage options and financing. Pain is the tooth is capped and it raises even the best options prices and limits who will work on it.

Ran out of anti biotics infection came back a week later I am making do with the same stuff but bought for use in fishtanks....works at least and cheap.  I think I will have to pulse use antibiotics to keep it under control for a while. Unless my new business gets the fundraising it needs, or a miracle I am looking at over 6+ months of slowing getting savings for the surgery to fix this -_- PRAY for me it does not get worse til I can get this done, or I find a philanthropist to pay for it lol.

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Can you find an endodontist who will take payments?

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Hi Ennis,

Sorry to see you are still having tooth problems.  Some people say oil pulling is helpful for dental health.  I am not sure  myself.  I do find Plax dental rinse before brushing is helpful for getting rid of dental tatar buildup.  Hold it in your mouth for 30 seconds prior to brushing.  It softens tartar and makes it easier for a brush to remove.

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1 hour ago, squirmingitch said:

Can you find an endodontist who will take payments?

Only found d 2 in the area that will work with my current complications. They did not mention payment plans will double check with this.

20 minutes ago, GFinDC said:

Hi Ennis,

Sorry to see you are still having tooth problems.  Some people say oil pulling is helpful for dental health.  I am not sure  myself.  I do find Plax dental rinse before brushing is helpful for getting rid of dental tatar buildup.  Hold it in your mouth for 30 seconds prior to brushing.  It softens tartar and makes it easier for a brush to remove.

I have no issues with tarter etc. I do not consume sugars, I brush a hour after each meal and mouth wash (you supposed to wait a bit after eating I was told or you could damage your teeth) Just for some odd reason I get some issues.....comes with celiac I know.

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Did you call the person who put the crown on a couple of months ago?  It sounds like a complication from his/her procedure?  Maybe you could work a discount/payment plan since this sounds like it was an unexpected outcome?

Hope you feel better soon!

 

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Even if they don't have payment plans, ask them if they will work on a sliding scale.

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If there is a dental college near you check and see if they can help.  You should also give the doctor who prescribed the antibiotic a call and see if you can get a refill or a different antibiotic. The office may even have sample packs of meds that they could give you if the cost of the scripts is too much.  You really shouldn't be taking an antibiotic meant for fish.

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Figured I would update on this, up to 1000mg of amoxicillin (500mg twice a day) it does nothing anymore the infection is constant, white area above the tooth, pressure and issues breathing out my right nostril some days, pressure behind my right eye, and ringing in my right ear.  Checked around as suggested still only 2 places willing to work with me (do to the infection and nature of it most will not) they charge a good amount of money and the upfront fee on payment plans is outside my ability to pay. Xray show a large black area heading up into the jaw and apparently this is the issue that has caused most to shun working on it.... I no longer have medicaid due to paper work issues. Bakery business has gone really bad this past month. I am honestly not been able to even afford fresh veggies this month and been living on canned spinach for my veggies, and eating the same meals over and over (omelettes, shakes, nut based porridge). 

I am honestly just trying to ignore it and live my life the best I can with the knowledge it is going to probably kill me in the next year and there is nothing I can do about it. Just hoping some philanthropist offers to cover my medical bills or say screw it and let it kill me. I will keep posting on other topics and avoiding this one while I can and hopefully keep contributing to the community with my knowledge base, suggestions, etc in the mean time.

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9 minutes ago, Ennis_TX said:

Figured I would update on this, up to 1000mg of amoxicillin (500mg twice a day) it does nothing anymore the infection is constant, white area above the tooth, pressure and issues breathing out my right nostril some days, pressure behind my right eye, and ringing in my right ear.  Checked around as suggested still only 2 places willing to work with me (do to the infection and nature of it most will not) they charge a good amount of money and the upfront fee on payment plans is outside my ability to pay. Xray show a large black area heading up into the jaw and apparently this is the issue that has caused most to shun working on it.... I no longer have medicaid due to paper work issues. Bakery business has gone really bad this past month. I am honestly not been able to even afford fresh veggies this month and been living on canned spinach for my veggies, and eating the same meals over and over (omelettes, shakes, nut based porridge). 

I am honestly just trying to ignore it and live my life the best I can with the knowledge it is going to probably kill me in the next year and there is nothing I can do about it. Just hoping some philanthropist offers to cover my medical bills or say screw it and let it kill me. I will keep posting on other topics and avoiding this one while I can and hopefully keep contributing to the community with my knowledge base, suggestions, etc in the mean time.

Do you have a dental school anywhere close?  Even a couple of hour drive might be worth looking into.  See if you can talk to one of the clinical supervisors/dentists.  This would be a case they would like.

Or just show up to an Emergency room at a big hospital - if its serious, they can't turn you away.  Because that is what will happen eventually.

 

Edit - Call up Texas A & M school of dentistry and get your butt up to Dallas!

Edited by kareng
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    WHAT IS CELIAC DISEASE?
    Celiac disease is an autoimmune condition that affects around 1% of the population. People with celiac disease suffer an autoimmune reaction when they consume wheat, rye or barley. The immune reaction is triggered by certain proteins in the wheat, rye, or barley, and, left untreated, causes damage to the small, finger-like structures, called villi, that line the gut. The damage occurs as shortening and villous flattening in the lamina propria and crypt regions of the intestines. The damage to these villi then leads to numerous other issues that commonly plague people with untreated celiac disease, including poor nutritional uptake, fatigue, and myriad other problems.
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    CLASSIC CELIAC DISEASE SYMPTOMS
    Symptoms of celiac disease can range from the classic features, such as diarrhea, upset stomach, bloating, gas, weight loss, and malnutrition, among others.
    LESS OBVIOUS SYMPTOMS
    Celiac disease can often less obvious symptoms, such fatigue, vitamin and nutrient deficiencies, anemia, to name a few. Often, these symptoms are regarded as less obvious because they are not gastrointestinal in nature. You got that right, it is not uncommon for people with celiac disease to have few or no gastrointestinal symptoms. That makes spotting and connecting these seemingly unrelated and unclear celiac symptoms so important.
    NO SYMPTOMS
    Currently, most people diagnosed with celiac disease do not show symptoms, but are diagnosed on the basis of referral for elevated risk factors. 

    CELIAC DISEASE VS. GLUTEN INTOLERANCE
    Gluten intolerance is a generic term for people who have some sort of sensitivity to gluten. These people may or may not have celiac disease. Researchers generally agree that there is a condition called non-celiac gluten sensitivity. That term has largely replaced the term gluten-intolerance. What’s the difference between celiac disease and non-celiac gluten-sensitivity? 
    CELIAC DISEASE VS. NON-CELIAC GLUTEN SENSITIVITY (NCGS)
    Gluten triggers symptoms and immune reactions in people with celiac disease. Gluten can also trigger symptoms in some people with NCGS, but the similarities largely end there.

    There are four main differences between celiac disease and non-celiac gluten sensitivity:
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    Unlike celiac disease, NCGS is so far not associated with malabsorption, nutritional deficiencies, or a higher risk of autoimmune disorders or intestinal malignancies. No Immunological or Serological Markers
    People with celiac disease nearly always test positive for antibodies to gluten proteins. Researchers have, as yet, identified no such antobodies or serologic markers for NCGS. That means that, unlike with celiac disease, there are no telltale screening tests that can point to NCGS. Absence of Celiac Disease or Wheat Allergy
    Doctors diagnose NCGS only by excluding both celiac disease, an IgE-mediated allergy to wheat, and by the noting ongoing adverse symptoms associated with gluten consumption. WHAT ABOUT IRRITABLE BOWEL SYNDROME (IBS) AND IRRITABLE BOWEL DISEASE (IBD)?
    IBS and IBD are usually diagnosed in part by ruling out celiac disease. Many patients with irritable bowel syndrome are sensitive to gluten. Many experience celiac disease-like symptoms in reaction to wheat. However, patients with IBS generally show no gut damage, and do not test positive for antibodies to gliadin and other proteins as do people with celiac disease. Some IBS patients also suffer from NCGS.

    To add more confusion, many cases of IBS are, in fact, celiac disease in disguise.

    That said, people with IBS generally react to more than just wheat. People with NCGS generally react to wheat and not to other things, but that’s not always the case. Doctors generally try to rule out celiac disease before making a diagnosis of IBS or NCGS. 
    Crohn’s Disease and celiac disease share many common symptoms, though causes are different.  In Crohn’s disease, the immune system can cause disruption anywhere along the gastrointestinal tract, and a diagnosis of Crohn’s disease typically requires more diagnostic testing than does a celiac diagnosis.  
    Crohn’s treatment consists of changes to diet and possible surgery.  Up to 10% of Crohn's patients can have both of conditions, which suggests a genetic connection, and researchers continue to examine that connection.
    Is There a Connection Between Celiac Disease, Non-Celiac Gluten Sensitivity and Irritable Bowel Syndrome? Large Number of Irritable Bowel Syndrome Patients Sensitive To Gluten Some IBD Patients also Suffer from Non-Celiac Gluten Sensitivity Many Cases of IBS and Fibromyalgia Actually Celiac Disease in Disguise CELIAC DISEASE DIAGNOSIS
    Diagnosis of celiac disease can be difficult. 

    Perhaps because celiac disease presents clinically in such a variety of ways, proper diagnosis often takes years. A positive serological test for antibodies against tissue transglutaminase is considered a very strong diagnostic indicator, and a duodenal biopsy revealing villous atrophy is still considered by many to be the diagnostic gold standard. 
    But this idea is being questioned; some think the biopsy is unnecessary in the face of clear serological tests and obvious symptoms. Also, researchers are developing accurate and reliable ways to test for celiac disease even when patients are already avoiding wheat. In the past, patients needed to be consuming wheat to get an accurate test result. 
    Celiac disease can have numerous vague, or confusing symptoms that can make diagnosis difficult.  Celiac disease is commonly misdiagnosed by doctors. Read a Personal Story About Celiac Disease Diagnosis from the Founder of Celiac.com Currently, testing and biopsy still form the cornerstone of celiac diagnosis.
    TESTING
    There are several serologic (blood) tests available that screen for celiac disease antibodies, but the most commonly used is called a tTG-IgA test. If blood test results suggest celiac disease, your physician will recommend a biopsy of your small intestine to confirm the diagnosis.
    Testing is fairly simple and involves screening the patients blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. Also, it is now possible to test people for celiac disease without making them concume wheat products.

    BIOPSY
    Until recently, biopsy confirmation of a positive gluten antibody test was the gold standard for celiac diagnosis. It still is, but things are changing fairly quickly. Children can now be accurately diagnosed for celiac disease without biopsy. Diagnosis based on level of TGA-IgA 10-fold or more the ULN, a positive result from the EMA tests in a second blood sample, and the presence of at least 1 symptom could avoid risks and costs of endoscopy for more than half the children with celiac disease worldwide.

    WHY A GLUTEN-FREE DIET?
    Currently the only effective, medically approved treatment for celiac disease is a strict gluten-free diet. Following a gluten-free diet relieves symptoms, promotes gut healing, and prevents nearly all celiac-related complications. 
    A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. Still, with effort, most people with celiac disease manage to make the transition. The vast majority of celiac disease patients who follow a gluten-free diet see symptom relief and experience gut healing within two years.
    For these reasons, a gluten-free diet remains the only effective, medically proven treatment for celiac disease.
    WHAT ABOUT ENZYMES, VACCINES, ETC.?
    There is currently no enzyme or vaccine that can replace a gluten-free diet for people with celiac disease.
    There are enzyme supplements currently available, such as AN-PEP, Latiglutetenase, GluteGuard, and KumaMax, which may help to mitigate accidental gluten ingestion by celiacs. KumaMax, has been shown to survive the stomach, and to break down gluten in the small intestine. Latiglutenase, formerly known as ALV003, is an enzyme therapy designed to be taken with meals. GluteGuard has been shown to significantly protect celiac patients from the serious symptoms they would normally experience after gluten ingestion. There are other enzymes, including those based on papaya enzymes.

    Additionally, there are many celiac disease drugs, enzymes, and therapies in various stages of development by pharmaceutical companies, including at least one vaccine that has received financial backing. At some point in the not too distant future there will likely be new treatments available for those who seek an alternative to a lifelong gluten-free diet. 

    For now though, there are no products on the market that can take the place of a gluten-free diet. Any enzyme or other treatment for celiac disease is intended to be used in conjunction with a gluten-free diet, not as a replacement.

    ASSOCIATED DISEASES
    The most common disorders associated with celiac disease are thyroid disease and Type 1 Diabetes, however, celiac disease is associated with many other conditions, including but not limited to the following autoimmune conditions:
    Type 1 Diabetes Mellitus: 2.4-16.4% Multiple Sclerosis (MS): 11% Hashimoto’s thyroiditis: 4-6% Autoimmune hepatitis: 6-15% Addison disease: 6% Arthritis: 1.5-7.5% Sjögren’s syndrome: 2-15% Idiopathic dilated cardiomyopathy: 5.7% IgA Nephropathy (Berger’s Disease): 3.6% Other celiac co-morditities include:
    Crohn’s Disease; Inflammatory Bowel Disease Chronic Pancreatitis Down Syndrome Irritable Bowel Syndrome (IBS) Lupus Multiple Sclerosis Primary Biliary Cirrhosis Primary Sclerosing Cholangitis Psoriasis Rheumatoid Arthritis Scleroderma Turner Syndrome Ulcerative Colitis; Inflammatory Bowel Disease Williams Syndrome Cancers:
    Non-Hodgkin lymphoma (intestinal and extra-intestinal, T- and B-cell types) Small intestinal adenocarcinoma Esophageal carcinoma Papillary thyroid cancer Melanoma CELIAC DISEASE REFERENCES:
    Celiac Disease Center, Columbia University
    Gluten Intolerance Group
    National Institutes of Health
    U.S. National Library of Medicine
    Mayo Clinic
    University of Chicago Celiac Disease Center