Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

newly diagnosed and looking for help


gabsmom

Recommended Posts

gabsmom Newbie

My 5 year old was just diagnosed this summer with celiacs.  We are trying very hard to remove all gluten in hopes that the hair loss she is experiencing will be reversed.  She is a very picky eater and is not happy about this.  Do celiac parents allow their child to eat the following:

Doritos (nacho cheese)

Trader Joes hash browns

snow cones from Mr. Softee (packaged)

 

These are items that I have researched and have been confused by the information I have seen online.

Thank you for your help. 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced

Nacho cheese Doritos are my one processed food I allow myself as a treat. I check the label each time I get them though, always amazed I can eat them. But I couldn't have any dairy for nearly a year after going gluten-free. Made me sick. But thankfully afterwards it was ok. This is similar to many people on the board.

i do not know anything about the other 2 foods mentioned, sorry.

usually as a precaution and to speed healing, we recommend going about a year with zero processed foods and no eating out. Just eating whole, simple foods. Very healthy too! 

RMJ Mentor

Frito-Lay does not test this type of Doritos to see if it is gluten free.  They don't have gluten-containing ingredients, but could be contaminated.

Open Original Shared Link

Ennis-TX Grand Master
40 minutes ago, Victoria1234 said:

Nacho cheese Doritos are my one processed food I allow myself as a treat. I check the label each time I get them though, always amazed I can eat them. But I couldn't have any dairy for nearly a year after going gluten-free. Made me sick. But thankfully afterwards it was ok. This is similar to many people on the board.

i do not know anything about the other 2 foods mentioned, sorry.

usually as a precaution and to speed healing, we recommend going about a year with zero processed foods and no eating out. Just eating whole, simple foods. Very healthy too! 

BeanFields, and Beanitos makes a certified gluten free, corn free, version, and the beanfields one is vegan being dairy free. I can give you links where to get them online if you wish. I personally use Protes which are a carb and dairy free version but the flavor is very weak in them and the texture is VERY toasted and a acquired taste. You can find most of these on LuckyVitamin.com.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

celiacmom774 Apprentice

Doritos in Canada have gluten free on the packaging. There are definitely a staple in our house with 4 kids 13-21.  Unfortunately, my daughter who is the one with Celiac has never liked them, so it is in the house as an extra gluten-free food for her brothers to enjoy.  I am only six weeks into the diet and have crossed the border to the US to find gluten-free products we don't have here in Canada.  Don't know if you live close to the border, but you could definitely have our Doritos.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,108
    • Most Online (within 30 mins)
      10,442

    MiaPiwo
    Newest Member
    MiaPiwo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Chronic fatigue in the producer was the inspiration for the episode but I feel it touches on anyone that suffers and is dismissed as psycosomatic. The patient expressed my feelings elequently.  In episode 2 the doctor explains the problem well. I stopped all commercial milk protein like skim milk added to processed foods and in a few days there was a definate improvement in my  gut, bowel movements, discomfort etc. Still drinking several glasses of Pasture Fed grass fed milk with no negative effects.   Specifically, for myself Clonidine is the only medication that lowers my BP and the doctor did not renew it, insisting that I continue Losartan.  I think that she thinks I am abusing Clonidine and the reason the Losartan doesn't work is because I am non-compliant.  Absolutely not. Surprisingly after a few days withdrawal from the Clonidine my fasting blood sugar has gotten under control.  Fasting blood sugar near normal instead of over 160.  Last few days its been below 100.  I still need Glimiperide.  Without the clonidine my pulse rate is around 100 bpm, with it around 60.   Prescription of angiotensin receptor blockers in celiac disease is associated with persistent symptoms and surrogate markers of malabsorption.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12323722/ Angiotensin receptor blocker-associated enteropathy (ARB-e) is an increasingly recognised clinical entity with symptoms and histological findings identical to coeliac disease (celiac disease). There is evidence to suggest immune-mediated mucosal injury in ARB-e with a high prevalence of DQ2/DQ8; however, as IgA anti-tissue transglutaminase (anti-TTG) is usually negative   https://onlinelibrary.wiley.com/doi/full/10.1002/ueg2.12117 NEW research [Nov 2024] presented at the American College of Gastroenterology (ACG) Annual Scientific Meeting suggests that angiotensin receptor blockers (ARBs), a class of drugs commonly used to manage hypertension, may be associated with poorer outcomes in patients with coeliac disease. Findings indicated that patients taking ARBs had a higher likelihood of experiencing persistent symptoms and markers of poor small bowel healing, such as anaemia and iron deficiency.  https://www.emjreviews.com/en-us/amj/gastroenterology/news/angiotensin-receptor-blockers-may-worsen-coeliac-disease-outcomes/
    • mermaidluver22
      @BarcinoHi! I am so sorry abt your son but also relieved to know I am not alone! My ttg iga is still mildly elevated but going down. Last time we checked I had some small erosions in my ileum but recently got an MRE that showed no inflammation. Calpro 70. We are still in limbo but we are taking a conservative approach as well. Please keep me updated about his situation and outcomes! I always love to hear others opinions/experiences especially ibd specialists. 
    • Scott Adams
      Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • BelleDeJour
      Oh, thank you all so so much! I have found my people.   ❤️ I am so sorry that we have all suffered with this torturous itching and resulting sore skin. Sue, I can relate to what you wrote about the dark thoughts, I have had them, too. It's very tough and painful.  I have now had a 2 day straight run of only minor itching. I woke up this morning and did not want to get out of bed because it is the first time in months that I have felt comfortable and actually been able to appreciate the lovely feeling of the duvet on my skin, rather than just waking in pain and thinking about where I need to put cream on before I dress for work. If I can continue like this, then I think I could manage without medication but every time I say this, I then have a flare up. I plan to be very careful about what I eat over the weekend and it won't be easy as we are out with friends for dinner on Saturday (the pub do have very good gluten-free options, I checked of course!).  I really, REALLY appreciate your words so much and am so glad to have found this forum. I am going to read the articles kindly posted now, thank you Scott.
    • Scott Adams
      I don’t know how common this is with celiac disease specifically, but significant inflammation, weight changes, aging, genetics, and skin elasticity can all play a role. It may be worth talking with both your doctor and a board-certified dermatologist or plastic surgeon to see what options are realistic, from skin-tightening treatments to surgical approaches, while also making sure there isn’t ongoing inflammation, thyroid imbalance, or nutritional deficiency contributing. You deserve support for both the physical and emotional side of this.
×
×
  • Create New...