Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

After Appointment

dalek100

Recommended Posts

dalek100 Apprentice
dalek100
Posted

Hi,

I am sorry for again posting back here and for being a massive pain and nuisance to everyone. I have had a follow-up appointment and they have put me on steroids and something called Creon. I have been advised to go back on the gluten free diet as well. My small intenstines are very inflammed. 

I was wondering that after being on the digestive enzyme Creon, I have noticed that the foods feel less difficult for me to eat. I have been on them for a few days with the gluten free diet. I was wondering as I only away the upper end of six stone in weight, whether my GP will continue to allow me to have this medication as my consultant said if they work, I need to stay on them for life? I am just worried as my GP has been very difficult in the past and I don't want to go like this ever again. 

Thank you for all your help and support. I finally feel like I have got somewhere. 

I value everything that people on this forum have done for me. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

It is likely that once you are healed on the gluten-free diet you won't need them any longer. If you do still need digestive enzyme there are some that are over the counter. Right now you have no way of knowing whether it is the steroids, the enzymes or the diet that is the most responsible for your improvement. The steroids will be a short time course I would imagine since they can have some nasty side effects.  In addition never feel you have to apologize or that you are being a pest for posting. The purpose of the board is to help folks and you can't get that help without posting. I hope you heal quickly but be patient with your body. It can take a bit of time.

Ennis-TX Grand Master
Ennis-TX
Posted
2 hours ago, dalek100 said:

Hi,

I am sorry for again posting back here and for being a massive pain and nuisance to everyone. I have had a follow-up appointment and they have put me on steroids and something called Creon. I have been advised to go back on the gluten free diet as well. My small intenstines are very inflammed. 

I was wondering that after being on the digestive enzyme Creon, I have noticed that the foods feel less difficult for me to eat. I have been on them for a few days with the gluten free diet. I was wondering as I only away the upper end of six stone in weight, whether my GP will continue to allow me to have this medication as my consultant said if they work, I need to stay on them for life? I am just worried as my GP has been very difficult in the past and I don't want to go like this ever again. 

Thank you for all your help and support. I finally feel like I have got somewhere. 

I value everything that people on this forum have done for me. 

I buy OTC digestive enzymes and take 2-3times the recommended dose so I can eat. Food is much easier to digest, less indigestion, less chance of puking. and weight gain. I use both Jarrow Enzymes Plus (I was on the vegan version but found the normal one works better) and Jarrow Bromelaine. I was taking a supper papaya enzyme but recent reformulation led to me having a intolerance to it.

Few things to consider EPI? Open Original Shared Link
 

And I did a post with some enzyme info if from a bit of cross references information sites.
https://www.celiac.com/forums/topic/119919-digestive-enzymes/?tab=comments#comment-984650

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,034
    • Most Online (within 30 mins)
      10,442
    Waneta Cox
    Newest Member
    Waneta Cox
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Worsening vision 🕵🏽‍♀️

      By trents · Posted

      Vitamin A is important for vision health. But be careful in supplementing it as it can lead to toxicity. Research it and consult with your medical professional. I do not have a definite answer to your original question but I was pursuing the possible cause of nutritional deficiency. But your visual deterioration could be unrelated to your celiac disease so don't rule that out.
    • Name
      Worsening vision 🕵🏽‍♀️

      By Name · Posted

      Currently 19. Doctors think I was 1 year old when celiac started, but I wasn't diagnosed until 18, because they didn't do lab work on minors. I've been on a strict gluten-free diet for 14 months now. For example only certified gluten-free nuts and I've researched best brands a lot. I take B vitamins, vitamin D, vitamin C, Curcumin with black pepper, black sesame and green tea extract, magnesium, iron, and a little selenium and zinc, beef liver capsules. I recently had my vitamin and mineral levels retested and D is the only one I don't have enough of now. I had my eyes tested at 17 and they were good back then.
    • Scott Adams
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By Scott Adams · Posted

      Not everyone with dermatitis herpetiformis needs to avoid iodine. DH is caused by gluten exposure, but iodine can worsen or trigger flares in a subset of people, especially when the rash is active or not yet controlled by a strict gluten-free diet. Some people react to iodized salt, seaweed, shellfish, or iodine supplements, while others tolerate normal dietary iodine without problems. In most cases, iodine restriction is individualized and often temporary, not a lifelong rule for everyone.
    • trents
      Worsening vision 🕵🏽‍♀️

      By trents · Posted

      Questions: How old are you now? How long ago were you diagnosed as having celiac disease? Do you practice a strict gluten-free diet? Are you taking vitamin and mineral supplements to offset the nutrient malabsorption issues typical of celiac disease and if so, can you elaborate on what you are taking?
    • Name
      Worsening vision 🕵🏽‍♀️

      By Name · Posted

      My vision was good as a teen and now has gotten worse in the last year. Could that be caused by my celiac disease?🤓😎🥸👓🕶️
×
×
  • Create New...