Gluten induced body odor?

[justwantcure]

Hi everyone, I'm getting a blood test for Celiac next week, but I've been dealing with this really embarrassing problem and it's really made my life difficult. For the past 2 years I've had strong body odor, described as fecal/sulfur like. This body odor only began when I was hired to work in a bakery (it's so gross, I'm sorry). Before this I've been on long plane rides and out in public with no complaints, but now it's impossible for me to even go to the movie theater.

 

I've seen ENTs for this, dentists, etc. -- no tonsil stones, gum disease, cavities. No doctors seem to have any idea what this could be. My only clue is it began when I started working at the bakery, and I'm constantly inhaling gluten for hours each day. The weird thing is I can't smell this on myself but everyone around reacts the same, so it has to be from me. Also forgot to mention, I had a blood panel done to see if it could be diabetes - and it came back with a severe B12 deficiency and vitamin D deficiency. My doctor said the normal level for B12 should be 1200, but mine was at 200.

 

Has anyone here dealt with something similar? I'm not sure what else I can do. I know for a fact it's not TMAU since my in-laws reacted to me recently, but before that I would see them often and there was no complaints about any smells. And I traveled a lot on planes before all of this too (maybe 6 or more times a year) and there was zero reactions.

Edited April 18, 2019 by justwantcure
important detail added

[Scott Adams]

There are others who have posted on this topic, and these links might help:

 

[Awol cast iron stomach]

Hi i don't recall that I had a smell per se. I do know that after detoxing after the Gluten challenge. I was sweating out at night rest time as if I was running a high fever from illness. My husband even noticed it was unusual.

Are you still working at the bakery? Did you finish all your celiac testing?

If so then my opinion would be to support your body in detoxing and support your gi tract in replacing microflora-probiotic to hopefully get back your homeostasis and natural scent.  It's possible your body was actively fighting hard with constant exposure at the bakery to detox any inhalation\ possible ingestion.  I am not a Dr but someone with gi issues and  DH who went a long time misdiagnosed. I went alternative routes to cope with whatever I had that didn't seem to be fixed by my former misdiagnosis'.

It sounds like you are on right track getting that vitamin d deficiency and b12 issue addressed. 

For me I use several ways to detox depending on what feels right for you

Drinks tons of water

Dandelion tea

Acupuncture

Epsom salt bath

Exercise

Many of these help me you could find the one that works best for you or a combination of them. 

Best wishes

[Posterboy]

On 4/18/2019 at 11:28 AM, justwantcure said:

Hi everyone, I'm getting a blood test for Celiac next week, but I've been dealing with this really embarrassing problem and it's really made my life difficult. For the past 2 years I've had strong body odor, described as fecal/sulfur like. This body odor only began when I was hired to work in a bakery (it's so gross, I'm sorry). Before this I've been on long plane rides and out in public with no complaints, but now it's impossible for me to even go to the movie theater.

 

I've seen ENTs for this, dentists, etc. -- no tonsil stones, gum disease, cavities. No doctors seem to have any idea what this could be. My only clue is it began when I started working at the bakery, and I'm constantly inhaling gluten for hours each day. The weird thing is I can't smell this on myself but everyone around reacts the same, so it has to be from me. Also forgot to mention, I had a blood panel done to see if it could be diabetes - and it came back with a severe B12 deficiency and vitamin D deficiency. My doctor said the normal level for B12 should be 1200, but mine was at 200.

 

Has anyone here dealt with something similar? I'm not sure what else I can do. I know for a fact it's not TMAU since my in-laws reacted to me recently, but before that I would see them often and there was no complaints about any smells. And I traveled a lot on planes before all of this too (maybe 6 or more times a year) and there was zero reactions.

justwantcure,

I don't know if this will help you are not ...but it is worth a shot.

There  is a genetic condition than cause you to smell like rotting fish.

https://www.medicinenet.com/fish_odor_syndrome_trimethylaminuria/article.htm#how_do_people_inherit_fish_odor_syndrome_trimethylaminuria

You said B.O. but are you sure it's not your breath?

I used to have an ulcer (being undiagnosed) that caused a condition called "dragon breath" or bad breath on steroids....my friends would tell me I had bad breath ...despite brushing my teach regullarly.

https://www.sciencedaily.com/releases/2008/11/081123222846.htm

It was bad enough ...I could cup my hand and test my breath for it's smell and I was repulsed by the smell and when I have encountered other's with dragon breath ....I can usually tell them it' an ulcer (I can stand 10 feet away) and still smell their breath....It is quite an abnormal thing.

Bad breath is also known as Halitosis ...but when it is ruining your life...it is probably most likely from an ulcer and you don't know you have one.

try buying your some mastic gum ...it really works wonders for ulcers.

https://www.dailymail.co.uk/health/article-97549/A-gum-cure-stomach-ulcers.html

I hope this is helpful but it is not medical advice.

Posterboy,