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    Do you have questions about celiac disease or the gluten-free diet?

Becky6

Any Thoughts?

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My daughter has been dairy free since July and gluten-free for almost 2 months now. Now clearly she is doing way better gluten-free! Her runny nose and sinus infection are gone and it had been there for over a year and no meds helped! Her bm's have improved but are not totally better. That is where my question comes in: She used to have 10 watery running down her legs bms a day before going dairy free. Then they went to 2-3 a day blowouts but not watery. Now off of gluten she will go 1-2 days w/o a bm and we had a few solid ones here and there. But they are still loose but def have more texture to them and are more thick than they were. But they will still go up her back and up to her belly button some days. I am wondering if she is still healing or if she could be getting gluten some where (I don't think she is but you never know!) or could she need to be casein free too? I know if she gets any ounce of lactose she is a disaster! Thanks!!

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Hmm. I'm not really sure, since my son was almost six when he was diagnosed, and pretty much asymptomatic.

I do know that there are a couple of good Gluten-free Casein-free websites out there that may have more info, but I'm not sure if they have forums or not. Just google Gluten-free Casein-free diet and see what happens. One might be called Gluten-free Casein-free Utah, and I can't remember the other one. I am sure that a Mom with a child who was diagnosed younger than mine will come along soon to help you.

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I think your daughter could definately still be healing but, check all of your hygeine products again. Do you have pets? Make sure pet food is out of reach. Playdough?

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I would take casein out of her diet and see what happens. That could definitely be the problem.

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Guest nini

she may still be getting some gluten, ck vitamins too, food preparation surfaces, or it may be that she needs to be casein free too, or again, could be that she's still just healing... honestly I wish I had a better answer for you. trial and error may be your best friend right now...

I'm thinking... thinking... nope, got nothin...

sorry, brain not working tonight

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First I would double check everything she eats, bathes with and plays with. I've had to do this several times just to help me eliminate the source of problems. I've even re-called companies to double check, re-check my lists, etc.

If everything checks out okay, then my guess would be that she is still healing. Emmie's stools took a while before they were what I would call normal. Some days, they would seem normal, then she would have one that was similar to pre-gluten-free days. I always worried it was gluten, but I think it just took quite some time for her to heal. Things are still improving for us in the poo dept. and it's been nearly nine months. Glad to hear your daughter is headed in the right direction....hope she just keeps getting better and better!

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