Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Questions About Entrolab?

Lollie

Recommended Posts

Lollie Enthusiast
Lollie
Posted

I've read alot about tesing and entrolab keeps coming up.... I'm wondering if you have already gone gluten-free will the test still be accurate? I really don't want to go back on gluten, the diet has shown me there is a definant correlation and i'd rather not be sick again. :unsure: But at the same time, a Dx would be helpful when I'm weak. ;) I did get blood tests done prior to going gluten-free, but my doctor sent a letter saying I was normal....

I just don't know, other than that I feel better with no gluten.

Any comments would be great!

-Lollie

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lollie Enthusiast
Lollie
  • Author
Posted

I accidentally, spelled Enterolab wrong.... my bad!

-Lollie ;)

Link to comment
Share on other sites
Nancym Enthusiast
Nancym
Posted

Enterolab can detect the antibodies for quite awhile after being gluten free. I had been gluten-free for about 3 months. And, of course, the DNA test isn't dependent on eating anything.

Link to comment
Share on other sites
Lollie Enthusiast
Lollie
  • Author
Posted

Will it tell you if your just intolerant-or is it just indicative of celiac.

And is it expensive? I undersood that it is something you do your self? I guess I still have lots of questions!

Lollie

Link to comment
Share on other sites
dlp252 Apprentice
dlp252
Posted
Will it tell you if your just intolerant-or is it just indicative of celiac.

And is it expensive? I undersood that it is something you do your self? I guess I still have lots of questions!

Lollie

I'd say it's expensive, I got almost all the tests so it cost around $400 with shipping. It definitely told me I was intolerant and since I also bought the gene testing as well, it told me I have one of the main genes associated with Celiac...that was enough for me. That cemented in my mind that I can never eat gluten again without suffering the consequences. The treatment for intolerance is the same as for Celiac in any case. You order the tests from them, they express it out to you. The gene test is done with a swab on the inside of your cheek. The others are done with a stool test which you collect in a special container. They include all the shipping materials to sent it back to them. They run the analysis and a doctor interprets the tests, then they email the results back to you.

Link to comment
Share on other sites
Lollie Enthusiast
Lollie
  • Author
Posted

$400 doesn't sound so bad, if I hadn't already spent $400+ to my doc to do testing....I don't know if he even knew what to look for! <_<

Thanks for getting back to me! I guess I'll look them up on the net and see about taking care of it....And I can stay gluten-free?

-Lollie

Link to comment
Share on other sites
Guest barbara3675
Guest barbara3675
Posted

Donna has done a very good job of explaing the Enterolab process to you. I did it and had been gluten-free for a while too. They got the results back to me within two weeks via email. I consider it a well spent $400 and will never eat gluten again. I do not have celiac disease/I have a gluten intolerance, but I do have a gene. I could develop full-blown celiac disease somewhere down the line if I would not eat gluten-free, and I have a granddaughter that has celiac disease. It is thought that the method of testing that Enterolab does will eventually be the gold standard for gluten intolerance and celiac testing as it is much more sensitive than testing through the blood. Barbara

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lollie Enthusiast
Lollie
  • Author
Posted

Thanks! I'm going to give it a try! I appreciate all of you responding!

-lollie

Link to comment
Share on other sites
Rachel--24 Collaborator
Rachel--24
Posted

Good luck!!

I got tested after 4 months off gluten and was positive in all areas but with no Celiac gene. I have 2 intolerance genes. Enterolab cannot offically diagnose Celiac...it will just tell you if you're immune system is responding negatively to gluten and if you posess the gene to develop Celaic or not.

Link to comment
Share on other sites
dlp252 Apprentice
dlp252
Posted
$400 doesn't sound so bad, if I hadn't already spent $400+ to my doc to do testing....I don't know if he even knew what to look for! <_<

Thanks for getting back to me! I guess I'll look them up on the net and see about taking care of it....And I can stay gluten-free?

-Lollie

You're welcome! I feel my $400 was money well spent. I had been on a low carb diet for about 2 years so I doubt the standard blood tests and biopsies would have shown much. I'd been gluten free for a few weeks before I sent for my Enterolab tests. Their website says you can be gluten-free for up to a year I believe.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,070
    • Most Online (within 30 mins)
      7,748
    TT24
    Newest Member
    TT24
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      This forum might be the last hope I have in my life. Please I beg you

      By knitty kitty · Posted

      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      14 year old with Celiac & EOE still suffering...

      By Scott Adams · Posted

      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...