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Severe Recessive Dystrophic Epidermolysis Bullosa (SRDEB) and Celiac Disease

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Hi, i am a father of three children whom have Severe Recessive Dystrophic Epidermolysis Bullosa (SRDEB). despite every attempt at good nutrition bar tube feeding they had faltering weight.. and we lost them to foster care nearly two years ago under neglect.. mum was just diagnosed with coeliac after i told the dr she had coeliac following research online. i had hoped that the children would receive a positive test for coeliac (something they had not considered until i mentioned it recently but one child's blood test result has just come back negative according to the social worker, whom has been informed by the hospital specialist. i have asked for the test results. i am aware they are tube fed mainly, and feel this may have interfered with the test, also they have a condition which can cause blistering and damage to their bowels with SRDEB.  

do you have any advice, do you think i am right in the tube feeding reducing chances of a positive test. what are the odds of a false result? 

The local authority here is totally geared against my family, and i am not just saying that as an angry person, after two years and depression, i have emerged and looked into our case and simply they did not support my family, ran the case purely on opinions of professionals rather than evidence based on fact and ignored our pleas that we did feed the children. since being in foster care, the child whom tested negative for coleiac has worsened iron deficiency, something she now needs occasional infusions or blood transfusions for. 

sadly their symptoms of SRDEB cover all symptoms of coeliac, so they would never be identified as such as sufferers. any advice or medical quotes/references, gladly welcomed. 

thank you for your time and consideration of my trouble. 

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