Unexplained symptoms- celiac disease?

[El10]

Hi,

I'm 27 y.o male. 18 months ago I started to suffer from unexplained symptoms. First one was hair loss(400-500 per day) from my scalp,eyelashes,eyebrows, legs,armpit and basically all over my body. Then I developed muscle pains, extreme fatigue, unexplained weight loss(about 9kg), my always looking pink nails turned ridged and yellowish(I'm not a smoker),memory problems(it was never like this before. my memory is super sharp), IBS symptoms(my stomach is rumbling no matter what I eat. I was diagnosed with IBS), in the last 2 months I have mild constipation and bright yellow stool(sorry if its TMI) , geographic tongue, insomnia, night sweats(on and off) , tingling in my legs and sharp stabbing pains in my back and stomach. Everywhere I get the stabbing pain, out of nowhere appears a red dot. My derm told me its noting. I did every possible test(ANA,full thyroid panel,zinc, vitamin D,STDs, parasites) including celiac and everything is normal/negative besides unexplained iron deficiency and B12 that didn't respond to 4 different pills/liquid for 10 months. My dr gave me an iron infusion and B12 injections eventually and now its good but symptoms persists. I did colonoscopy and endo and everything is good besides atrophic gastritis. My GP told me that its better if I do a capsule test for small intestine and to went through another endo test to take a biopsy from my small intestines(where celiac is happening). I was also sent to hematologist who rule out lymphoma. My GP wants me to do a full body CT scan in spite of what the hematologist said. I would be glad for any ideas/thoughts about my symptoms. I was suffering for so long 😕 . Thank you!

[Scott Adams]

Well you have many symptoms that are consistent with celiac disease, and I recommend that if you got a celiac disease blood panel done to get the results of the test and share them with us. I wonder what your doctor might mean by “negative.”

For example my daughter, who has an ~44-48% chance of having celiac disease because I and her grandmother have it (and she has the genetic markers for it), was told that her blood tests were negative for it, and she could continue eating gluten. She had various symptoms and when I looked at her blood test results they were one point under the cutoff line for CD...like 19 if the CD level was 20.

She didn’t feel better until she went gluten-free. So at the very least her test results indicated non-celiac gluten sensitivity, but had I not pursued the actual results she might have continued eating gluten, had symptoms that would probably get worse, and might eventually end up with full blown CD.

So, try to get the blood test results. Also, we’re you gluten-free when any tests were done? This can lease to false negative results.

[El10]

Oh I got it but I think my result was way below the threshold. I think it was 0.75. It was done a year ago. Actually, I did an anti candida diet(I tried so many things just to get a relief but to no avail) before the test which is a diet with almost zero carbohydrates so I didn't eat many gluten products like breads,pasta etc before the test. could it have significant impact on the results? I really don't know what to think... I just know I was completely healthy symptoms free before all this started. what is more confusing is that my father has unexplained iron deficiency also that doesn't respond to iron pills. he gets iron infusions regularly also and his colonoscopy+endo were normal also. the gastro advised him to do the small intestine capsule test also. He wasn't tested for celiac as far as I know. 

[Scott Adams]

If you were not eating gluten daily in the weeks leading up to your blood test for celiac disease is could lead to false negative results.