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- knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders16Headaches / Migraines and Hypoglycaemia
@glucel, I encourage you to reconsider Benfotiamine. Talk to your doctor! There's many articles that have found a link between thiamine and heart problems. Here are some articles worth further discussion with your doctor: Pyruvate dehydrogenase activity and quantity decreases after coronary artery bypass grafting: a prospective observational... -
- glucel replied to Sarah Grace's topic in Related Issues & Disorders16Headaches / Migraines and Hypoglycaemia
Sorry I was not clear. I never took benfotiamine due to the alleged side effects. I never had irregular heart beat before bypass surgery or at least it was never detected. -
- knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders16
Headaches / Migraines and Hypoglycaemia
@Sarah Grace, Thanks for answering. I'm sorry you're not bouncing back as quickly as we would like to see. Are you taking a B Complex? Thiamine interacts with each of the other B vitamins somewhere along the line. Taking a B Complex helps boost absorption and ensures there's plenty of the other B's for thiamine to work with. Thiamine needs... -
- knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders16
Headaches / Migraines and Hypoglycaemia
I'm so glad you're still taking Benfotiamine! It's interesting to note that elevated liver enzymes and brachycardia are symptoms of thiamine deficiency and you've had these before taking the Benfotiamine. Many cardiac patients have low thiamine. I have also had these, but since taking Benfotiamine I no longer have them. I hope you can find the courage... -
- knitty kitty replied to Bebygirl01's topic in Related Issues & Disorders16
How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
@Liquid lunch, so glad you're going to continue with the thiamine! Good to keep in mind that tannins in tea and coffee can break thiamine in two, rendering it useless. Caffeine can destroy thiamine, too. Take your thiamine separately from these drinks, by an hour or so. Green tea (not macha, though) only has about thirty percent of caffeine as black...
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By knitty kitty · Posted
@glucel, I encourage you to reconsider Benfotiamine. Talk to your doctor! There's many articles that have found a link between thiamine and heart problems. Here are some articles worth further discussion with your doctor: Pyruvate dehydrogenase activity and quantity decreases after coronary artery bypass grafting: a prospective observational study (This article found thiamine deficiency can occur after heart bypass surgery, so it's not surprising you developed bradycardia after your surgery. Bradycardia is a symptom of thiamine deficiency.) https://pmc.ncbi.nlm.nih.gov/articles/PMC4472607/ Association of vitamin B1 with cardiovascular diseases, all-cause and cardiovascular mortality in US adults https://pmc.ncbi.nlm.nih.gov/articles/PMC10502219/ Association of thiamine administration and prognosis in critically ill patients with heart failure https://pmc.ncbi.nlm.nih.gov/articles/PMC10076601/ Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ -
Sorry I was not clear. I never took benfotiamine due to the alleged side effects. I never had irregular heart beat before bypass surgery or at least it was never detected.
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By knitty kitty · Posted
@Sarah Grace, Thanks for answering. I'm sorry you're not bouncing back as quickly as we would like to see. Are you taking a B Complex? Thiamine interacts with each of the other B vitamins somewhere along the line. Taking a B Complex helps boost absorption and ensures there's plenty of the other B's for thiamine to work with. Thiamine needs magnesium to make enzymes, too. Are you taking a magnesium supplement? I really like Magnesium L-threonate. I had been supplementing with magnesium, but I tried Magnesium L-threonate after reading articles on PubMed which said it improves cognition, migraines, memory, mood, and intestinal permiability! The difference has been very noticeable. Magnesium L-threonate crosses the blood brain barrier easier than other forms of magnesium. Low magnesium in the brain contributes to migraine and depression. Taking magnesium regularly can help prevent more migraines and is helpful during migraine. Magnesium L-threonate has also been shown to improve insulin resistance and improve glucose metabolism. This really helps with my Type Two diabetes. A form of thiamine called tetrahydrofurfuryl disulfide (TTFD) is also beneficial for brain function since it crosses the blood brain barrier very easily. Since you are so active outside, you might try this form since it improves athletic performance, strength, and endurance as well. I like to take TTFD with Magnesium L-threonate. Really a great combination. I'm taking it for improving cognition. I increased my Omega Threes because the brain is mostly fat. Olive oil and avocado oil are good sources. Our bodies can burn both carbs and fat for fuel. Maybe having some healthy fats in the evening meal would keep your blood glucose more stable and improve your morning hypoglycemia. Fasting seems to be making the hypoglycemia worse. If we don't have sufficient thiamine or magnesium, our bodies store carbs as fat. I feel better on a low carb/high healthy fat diet. I stick close to the AutoImmune Protocol Diet, but I've added in some carbs. Yes, it's really easy to over do it on carbs. I found taking a drink of water before snacking on carbs helps me realize I was just thirsty, or the water fills my tummy and I'm not really hungry. The tannins in coffee and tea can cleave thiamine in two, making it useless. Thiamine and coffee need to be taken an hour or two apart. Alcohol is going to contribute to further damage of the intestines and cause vitamin malabsorption, thiamine and niacin especially. Tryptophan, a form of niacin, helps immensely because it helps heal the intestines and is needed to make Serotonin, that feel good neurotransmitter. Tryptophan is very relaxing, so much so that I take it before bed time along with magnesium Threonate and don't have a problem with insomnia. You might try taking your Benfotiamine in the morning and throughout day, but not in the evenings. Since the B vitamins are involved in energy production, the Benfotiamine could be contributing to the insomnia. I've kept myself awake taking thiamine too close to bedtime. Tryptophan and magnesium at bedtime. Passion flower tea or extract is helpful for falling asleep without any side effects, no groggy feeling the next day. Are you taking Vitamin D? Vertigo can happen with Vitamin D deficiency or thiamine deficiency. Thiamine is needed to activate Vitamin D. Vitamin D levels should be in the eighties to get the most benefit. I hope this helps. Let me know if you have more questions. Best wishes for you! -
By knitty kitty · Posted
I'm so glad you're still taking Benfotiamine! It's interesting to note that elevated liver enzymes and brachycardia are symptoms of thiamine deficiency and you've had these before taking the Benfotiamine. Many cardiac patients have low thiamine. I have also had these, but since taking Benfotiamine I no longer have them. I hope you can find the courage to increase your dose to 300 mg of Benfotiamine. Something extraordinary happens at higher doses of thiamine, a whole different array of health benefits starts happening. I was sceptical, in the beginning, too, but took the plunge and have never looked back. The difference is really astounding. Thiamine is nontoxic and safe even in high doses. I took mine in small doses throughout the day with magnesium. (Mine added up to 2000 mg a day at my most ill without any side effects.) Are you taking magnesium? Any form of thiamine will work better if magnesium is taken, too. Magnesium and thiamine make enzymes essential to life. Celiacs are frequently low in magnesium. (Magnesium Threonate is a really good kind to take.) I found taking tryptophan before bed really helps relieve the bloating. Tryptophan helps heal the intestines and is needed to make Serotonin, a neurotransmitter that helps regulate intestinal functions. Some people don't get digestive symptoms, they get other symptoms outside of the digestive tract, like brachycardia or tachycardia, thyroid problems, arthritis, or liver damage. Gluten free and making sure you get sufficient vitamins and minerals will help in the long run. Thanks for giving us an update. Keep us posted on the next leg of your journey! -
By knitty kitty · Posted
@Liquid lunch, so glad you're going to continue with the thiamine! Good to keep in mind that tannins in tea and coffee can break thiamine in two, rendering it useless. Caffeine can destroy thiamine, too. Take your thiamine separately from these drinks, by an hour or so. Green tea (not macha, though) only has about thirty percent of caffeine as black tea, but Oolong tea can act as a laxative, so be aware. Yes, physical illnesses like pneumonia can precipitate a thiamine deficiency. We need more thiamine when we're physically ill, mentally stressed or physically active especially in hot weather. Studies showed that patients with Covid who had higher thiamine and Vitamin D levels had better outcomes. Vitamin C is important, too. Thiamine is needed to keep mast cells from releasing histamine. Without sufficient thiamine, mast cells get really touchy trigger fingers and degranulate at the slightest provocation. I'm hoping your reactions to lectins will become lessened as your mast cells get control of their degranulation. Tryptophan, a form of niacin, is very helpful in healing the intestines and making the feel good neurotransmitter Serotonin. Yes, neurotransmitter formation starts in the digestive system! My tummy feels so much better after upsets if I take tryptophan for a while. So happy to help you on your journey!
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