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    • mytype1diabetes
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By mytype1diabetes · Posted

      Thanks for this Wends and appreciate your insights! I'm not sure what you mean by "Your toddler is unlikely igA deficient with a titer of 22, as a positive test." ? I had a look at Dr Bernstein's work and we've definitely noticed that on lower carb days her blood glucose levels are much easier to manage. Our nutritionist advised against a low carb diet for toddlers as they said young children, unlike adults, rely on carbs for their growth and development. What's your view on this? Regarding malabsorption - it's so hard to know what's "normal". My daughter's poos have always been on the softer side as she's breastfed and we eat very healthily. I've booked an appointment with our GP and...
    • mytype1diabetes
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By mytype1diabetes · Posted

      Thank you all for your kind wishes, it means so much. The information you've all shared has been so useful. We have a great diabetes team and trust the consultants decision to wait a few months to repeat the blood test. We also don't want to put her through any more tests than she needs as it's so tough on her and us! It feels unbearable waiting when she has some unexplained symptoms and as her mum I want to make sure we're doing everything we can to keep her healthy. That's interesting re: iron levels. I hadn't thought about that but I'm pretty sure this would've been checked as she was in hospital with DKA and they did lots of tests. I have requested a copy of her results.
    • Scott Adams
      Pepsid alternative

      By Scott Adams · Posted

      It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!!
    • Stephanie Wakeman
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Stephanie Wakeman · Posted

      Thank you so much for your response! It's been a challenging journey with this condition! 
    • milana
      Pepsid alternative

      By milana · Posted

      Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically,  there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also gluten-free. So there are other options there thankfully. In case someone will come across of this dilemma.
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