Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Gluten challenge, how to ease the pain?


Lilyofthevaley

Recommended Posts

Lilyofthevaley Newbie

After years of feeling unwell I decided to go gluten free for 12 days and it helped me a lot. The intestinal issues were almost non existent. 
Now I had to go back to gluten for 2 weeks as the doctor asked me to make my blood tests. I have 9 more days to go and I feel so miserable.

The pains in my back are killing me and the sharp random pains on my tummy came back again, not to mention the several trips to the toilet and no energy.

Is there something I can do to ease the pain?

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Welcome to the forum, and I'm sorry to hear you're feeling badly on a gluten-challenge.

I have some good news and some bad news. The good news is that you've clearly linked your symptoms with eating gluten, so you're half way there. The bad news is that for a celiac disease blood test to be accurate you need to be eating around 2 slices of wheat bread per day for about 6-8 weeks, at least according to the Mayo clinic and most experts, and 2 weeks before an endoscopy/biopsy, which your doctor my order if you have a positive blood test:

 You may wish to contact your doctor and discuss this with them, as it would be a big waste of time and suffering if you don't get this right the first time.

Last, keep in mind that there is something called non-celiac gluten sensitivity, which around 10x more people than celiac disease have, and unfortunately there is no test yet for it. So, if you end up with a negative test for celiac disease, it sounds like you likely have NCGS.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,036
    • Most Online (within 30 mins)
      10,442

    NCGS Celia
    Newest Member
    NCGS Celia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Vitamin A is important for vision health. But be careful in supplementing it as it can lead to toxicity. Research it and consult with your medical professional. I do not have a definite answer to your original question but I was pursuing the possible cause of nutritional deficiency. But your visual deterioration could be unrelated to your celiac disease so don't rule that out.
    • Name
      Currently 19. Doctors think I was 1 year old when celiac started, but I wasn't diagnosed until 18, because they didn't do lab work on minors. I've been on a strict gluten-free diet for 14 months now. For example only certified gluten-free nuts and I've researched best brands a lot. I take B vitamins, vitamin D, vitamin C, Curcumin with black pepper, black sesame and green tea extract, magnesium, iron, and a little selenium and zinc, beef liver capsules. I recently had my vitamin and mineral levels retested and D is the only one I don't have enough of now. I had my eyes tested at 17 and they were good back then.
    • Scott Adams
      Not everyone with dermatitis herpetiformis needs to avoid iodine. DH is caused by gluten exposure, but iodine can worsen or trigger flares in a subset of people, especially when the rash is active or not yet controlled by a strict gluten-free diet. Some people react to iodized salt, seaweed, shellfish, or iodine supplements, while others tolerate normal dietary iodine without problems. In most cases, iodine restriction is individualized and often temporary, not a lifelong rule for everyone.
    • trents
      Questions: How old are you now? How long ago were you diagnosed as having celiac disease? Do you practice a strict gluten-free diet? Are you taking vitamin and mineral supplements to offset the nutrient malabsorption issues typical of celiac disease and if so, can you elaborate on what you are taking?
    • Name
      My vision was good as a teen and now has gotten worse in the last year. Could that be caused by my celiac disease?🤓😎🥸👓🕶️
×
×
  • Create New...