Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Next steps towards well being


Gunni
Go to solution Solved by trents,

Recommended Posts

Gunni Rookie

Thanks to a wealth of knowledge and tips here on the forum I've made some meaningful progress towards better health.

I most certainly was deficient in B1, causing the symptoms I described in this post as diabetes like

Diabetes like symptoms and more - Celiac.com

and those symptoms have now mostly subsided with that supplementation.

Also, some of my more pronounced symptoms at night, usually following high fat containing meals, have largely faded due to supplementing with betaine and pepsin during meals.

 

I am however still dealing with severe constipation regularly, I feel this issue has been lessened but (and this has been confirmed via imaging) a lot of what I eat is still just getting held up in my digestive system causing issues.

My solution is drinking a lot of hot drinks and an occasional enema..

Now while it does feel like I'm on the right path, I'm unsure of whether I should up my dosages or if I might be missing some other integral digestive aid via vitamin/mineral.

Would love to hear your thoughts and suggestions, thanks!

My current supplement regimen is
  Daily with first meal
    100mcg selenium
    Vitamin d3 4000IU
    Strong b complex

  1-2x daily with meals
    3x 650mg betaine hci, 250.000 pepsin
    400mg Magnesium citrate
    100mg B1 thiamin

And I crush most of these before ingesting.
 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

How much fiber are you getting each day? Have you done the math on that? The medical community recommends getting 25-30 grams per day but most people fall well short of that. This is especially true when people rely a lot on processed gluten free foods. The celiac community doesn't have the benefit of being able to consume a lot of mainline whole grain foods because they usually contain wheat, typically, the main source of the fiber in them.

Gunni Rookie

Thanks @trents, I have for sure been slacking on the fibers... I used to ingest a lot of psyllium husk so I'll get right back on that :D

And happy to hear any more suggestions/ideas from the forum gurus here!

  • Solution
trents Grand Master

30 grams of fiber seems to be the magic number for me insofar as regularity goes. And make sure you drink plenty of fluids with it if you take psyllium.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,483
    • Most Online (within 30 mins)
      7,748

    Basimm8622
    Newest Member
    Basimm8622
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You may want to search the same site for other makers of the drug, if there are any. Many times generic manufacturers make the same drugs using different inactive ingredients. To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Jane878
      Thank you for your kindness. I have just begun CPTSD treatment & it's so hard to go through all this history realizing I could have had a healthier life had my mother had my best interest as she did her own needs and desires. I often thought she had kids to work for her. She did the bills and the laundry. She wore the pants in the family, I knew that & I know my stepfather was elated to tell me no. He had no interest in taking care of me ever. And he doesn't even understand that he caused these horrible health issues of my mothers and myself. His ignorance is bliss. He said he didn't want to hear about my health issues. Thanks again for being here and responding. It gives me a place of safety and understanding I haven't had for years. thanks, Jane
    • JA917
      Thank you.  I certainly take it seriously, no matter what my diagnosis is, and I do a lot of my own research also.  I just want to make sure I'm doing everything "right" as much as I can without jeopardizing any test result accuracy since this may be my last shot at getting an official diagnosis since I plan to go fully gluten-free afterwards! Yup, I am certainly making a current effort to eat plenty of it!  Not only for test accuracy, but I figure I may as well enjoy it now just in case it's my last go at it also.
    • CeliacPsycho246
      @Scott Adams I would say it means , no it is not verified gluten free. I am extremely sensitive and I also have OCD. So that answer is entirely too vague for me. However , if it suits others then I am happy for those individuals 
    • RMJ
      Have you considered eating plenty of gluten from now until your capsule endoscopy? If you truly have celiac disease that would increase the chances of damage being seen.
×
×
  • Create New...