Gluten exposer

[MelissaLMandrick]

3 years ago I had a gluten exposed well in the hospital. I lost my gallbladder more medication I have to take trips to the ER for dangerous constipation. I had not feeling in my bowels and only go to the bathroom if I had spasms.at the same time my eyes went crossed. Had to get surgery to fix it back in Nov 2021 the worst was I had sieures my nerves would be cold and pickily. The strange part my head in the back and on the crown was swalloen and had tenius and headaches I would use ice cubes to relief the pain. I got tested for lupus and ms didn't have them. the neurologist said it was from my celiac but the weird part was the same spot as my scar tissue from a hemrge from birth would be the pain at. As time went on I would have seiures weekly lasting hours. Then for now reason I had a addition to new mental health medication and never again did I have seizures it was a miracle. Have you or someone had neurological problems like mine from. Celiac. I really wanted to take part in a celiac study but when review my condition have neurological problems at the time I was not able to take part in the study.

[trents]

Welcome to the forum, MelissaLMandrick!

Various neurological problems are known to be associated with celiac disease, including headaches/migraines and ataxia. Are you consistent in your efforts to eat gluten free? Are you taking any vitamin and mineral supplements. Vitamin and mineral supplements could be a great deal of help to you in finding relief. The damage to our small bowel lining caused by celiac disease typically results in nutritional deficiencies.

[knitty kitty]

Welcome, Melissa,

It's really important with Celiac Disease to make sure your body is getting plenty of essential vitamins and minerals.  

I understand what you are going through.  I developed severe nutritional deficiencies, too.  

The vitamin that runs out first is Vitamin B 1 Thiamine.  

Thiamine deficiency can cause problems with the gallbladder.  I had mine removed, too, and my Thiamine deficiency got worse, too.  Thiamine deficiency in the digestive tract is called Gastrointestinal Beriberi.  

Thiamine deficiency and magnesium deficiency can cause constipation. 

Thiamine deficiency can cause Ophthalmoplegia, the paralysis or weakness of the eye muscles (crossed eyes) and nystagmus.

 Thiamine deficiency causes neuropathy making us feel "pins and needles" or "cold and prickly nerves".  Neuropathy is also connected to Cobalamine B12 deficiency and Pyridoxine B 6 deficiency.

 Thiamine deficiency causes headaches, tension headaches, cluster headaches, migraine headaches. 

 Thiamine deficiency can cause localized swelling and water retention, and edema of the feet and hands.

 Thiamine deficiency and Vitamin C deficiency can cause poor healing of wounds.

Thiamine deficiency causes seizures.  Seizures are not fun.  

Thiamine deficiency causes neurological problems, problems with thinking and comprehension, and memory problems.  

Yes, I've had Thiamine deficiency.  I've lived through these same symptoms.  My doctors did not recognize the symptoms of Thiamine deficiency.  

I studied Microbiology and Nutrition at university.  I learned how cells work and the vitamins needed to make them work.  Thiamine.  Out of desperation, I tried high dose Thiamine.  I had symptom improvement within an hour of taking high dose Thiamine.  I took a B Complex supplement, too, because Thiamine needs the other B vitamins and magnesium to make life supporting enzymes.

High doses of Thiamine are needed to get inside cells to make them function properly again.  I used Thiamine Hydrochloride (500 - 2000 mg/day), and Allithiamine (Tetrahydrofurfuryl Disulfide - TTFD), and Benfotiamine.   

Doctors think Thiamine deficiency only happens in alcoholism and presents only with Wernicke's-Korsakoff syndrome, but outside of alcoholism, Thiamine deficiency presents with all these seemingly unrelated illnesses.  

Ask your doctor to check for nutritional deficiencies, although blood tests are not accurate measurement of thiamine inside cells.  Ask for an Erythrocyte Transketolase test which tests for evidence thiamine is actively being used properly.  Ask for intravenous thiamine if  available.

Keep us posted on your progress!