Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Ongoing fatigue and stomach pain


Catherine pearl

Recommended Posts

Catherine pearl Rookie

Hi everyone ,not really sure these days how I feel ,diagnosed coeliac 4 years ago and follow gluten .free diet  however over last few months symptoms are much worse ,brain fog ,fatigue ,stomach pain, nausea and wondered if anyone else experienced anything like this, scheduled for a sigmoidoscopy soon as doctor baffled as to what's going on ,also been diagnosed subclinical thyroidism recently feel at my wits end with all this its so depressing and debilitating any ideas or thoughts appreciated 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

I'm really sorry to hear that you're feeling this way. It sounds incredibly frustrating and overwhelming to deal with worsening symptoms despite following a gluten-free diet. Here are a few thoughts and suggestions that might help:

Cross-Contamination: Double-check your diet and kitchen practices to ensure there's no accidental gluten exposure. Even small amounts can cause significant symptoms for some people.

Other Food Intolerances: Sometimes, people with celiac disease can develop additional sensitivities or intolerances, such as lactose or FODMAPs. It might be worth exploring this with your doctor or a dietitian.

Check Nutrient Levels: Celiac disease can lead to deficiencies in vitamins and minerals like iron, B12, and vitamin D. Your doctor can check for these and recommend supplements if needed.

Subclinical Thyroidism: Your recent diagnosis of subclinical thyroidism could also be contributing to symptoms like fatigue and brain fog. Make sure your thyroid levels are being monitored and managed properly.

Gut Health: Other gastrointestinal issues, such as SIBO (Small Intestinal Bacterial Overgrowth) or IBS, can mimic or exacerbate celiac symptoms. Discuss these possibilities with your gastroenterologist.

Support and Mental Health: Dealing with chronic illness can take a toll on mental health. Don't hesitate to seek support from a counselor or support group. Sometimes, just talking about it can make a big difference.

I'm glad you're scheduled for a sigmoidoscopy, as it's a good step towards finding out what's going on. Hang in there and keep advocating for your health. You're not alone in this, and I hope you find some relief soon. Take care!

Catherine pearl Rookie

Hi Scott, thank you for your reply ,as its provided some more information for me ,I'm making another appointment with my doctor to discuss if maybe I have nutrients deficiencies and as its over a year since I've saw a gastro doctor this is well overdue too ,really hoping that my sigmoidoscopy shows what's wrong as still have pain fatigue etc every day though at same time kind of dreading it too in case it's something more serious though a recent scan showed nothing malignant except an uncomplicated colon change however as I'm not sure what that means I will ask at my scope also got a letter from doctor saying that I have very high thyroid antibodies however as my hormone levels are still within normal limits there's no treatment ,this is frustrating as I'm desperately looking for answers ,thank you for this forum and for your support you take care too 

Scott Adams Grand Master

Please let us know what you find out.

Catherine pearl Rookie

Hi everyone  ,I posted a few days ago about going for a flexi sigmoidoscopy and I've now had my results so thought I would all let you know  I've been diagnosed with diverticular disease ,only advice was to follow a high fibre diet to try to control symptoms ,think this might be hard to do along with having coeliac as any fibre I've eaten in past causing stomach upset ,seeing my own Dr tomorrow to ask if they have any advice as to management, anyone else have this horrible condition and any tips on fibre intake etc ,is welcome ,take care everyone 

Scott Adams Grand Master

The articles below offer info on how to get more fiber into your gluten-free diet:

 

 

 

  • 2 weeks later...
Catherine pearl Rookie

Hi Scott thanks for your reply and thanks for all the information


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...