Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Skinesa


BoiseNic

Recommended Posts

BoiseNic Apprentice

Anyone try this? No matter what the brand, probiotics have ALWAYS made me break out bad. I am hesitant to try this simply for that fact, but I ordered a 3 month supply. Any input would be appreciated. Wish me luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master
(edited)

@BoiseNic

Have you tried the Autoimmune Protocol Diet?  This Paleo diet cuts out most everything except meat, veggies and some fruits.  By cutting out all the carbohydrates, especially processed ones, the carbohydrate loving bacteria and fungi like Candida get starved out and die off.  After that, taking probiotics to help repopulate the gut is beneficial.  The new strains of bacteria don't have to fight the established unhealthy yeasts and bad bacteria which causes a rise in histamine levels which can make one feel sick.  

Certain vitamins help keep bad bacteria and fungi at bay.  Thiamine is one.  Antibiotics can deplete Thiamine stores.  The Gluten free diet can be low in Thiamine and the other vitamins and minerals needed for healthy skin and digestive tract.  Vitamin C, Vitamin D, zinc, and Niacin B 3 are important to skin health.  Niacin is especially helpful in Dermatitis Herpetiformis.  I like the kind that flushes (Nicotinic Acid - not the same as nicotine in cigarettes).  The flushing gets less and less the longer it's taken, but Niacinamide which doesn't cause flushing can be taken instead.    

Here's an interesting article.  Compare the bacteria mentioned in the article with your Skinesa and then with the Visbiome probiotics.  

The Role of Probiotics in Skin Health and Related Gut–Skin Axis: A Review

https://pmc.ncbi.nlm.nih.gov/articles/PMC10385652/

Visbiome

https://www.visbiome.com/collections/all/products/visbiome-capsules

 

Edited by knitty kitty
Typo correction
BoiseNic Apprentice

Thank you for this information and your post. I have tried just about every diet there is. I have been experimenting with diet for years and years. I am a vegan, so the diet you mentioned is not an option. Fasting always works for me. Probably because I am detoxing and not feeding candida or parasites. Meat eaters have a higher prevalence of parasites, just so you know. I have a feeling that every time I break out on probiotics it's due to some kind of war with my gut biome. I definitely need to find a system of flushing out my gut so that the probiotics don't have to fight as hard to populate.

Scott Adams Grand Master

Does the same issue happen if you eat a vegan yogurt, kimchee, pickles, etc? Those might be better ways for you to get your probiotics.

knitty kitty Grand Master

The AIP diet does have a vegetarian version.  

Dr. Sarah Ballantyne developed the AIP diet for herself and her children, all Celiacs.  The AIP diet has been shown in scientific studies to promote intestinal healing.  You might visit her website.  https://www.thepaleomom.com/ 

BoiseNic Apprentice

Yes it happens if I eat yogurt to.

knitty kitty Grand Master

Many probiotics start with growing the bacteria on a dairy substrate leaving traces of dairy in the probiotics.  

Many Celiacs react to dairy in the same way as they react to gluten because certain protein chains in dairy resemble gluten protein chains.  

@Wheatwacked ferments his own pickles.  Perhaps he can chime in.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BoiseNic Apprentice

Agreed. Dairy is just as bad as gluten for me.

Wheatwacked Veteran
(edited)
On 11/29/2024 at 4:51 PM, BoiseNic said:

probiotics have ALWAYS made me break out bad.

In what way?

Skinese:  You paid for it, might as well try.  They are the usual mix and is gluten free. "Free of milk/casein, eggs, fish, shellfish, tree nuts, peanuts, wheat, gluten, and soybeans. Contains no artificial colors, flavors, or preservatives."  

Are you using whole milk yogurt or the no fat yogurt.  The no fat has varius ingrediEnts to mimic fats texture but some people react to the  gums used.  

Sibo: Foods that do not contain carbohydrates or fiber do not usually cause problems. This includes meats (beef, pork, lamb, venison); poultry (chicken, turkey, duck); fish and shellfish; eggs; and butter, oils, and hard cheeses.

On 12/1/2024 at 10:14 AM, BoiseNic said:

Meat eaters have a higher prevalence of parasites

Quote

 

"The scientists analyzed samples of retail meat obtained from nearly 700 stores nationwide. More than 6,000 samples—2,000 each of pork, chicken and beef—were purchased from stores in 28 major U.S. geographic areas. Each sample weighed a minimum of 2.2 pounds, for a total of more than 14,000 pounds of meat tested.

None of the raw beef and chicken meat samples contained live T. gondii parasites, based on a controlled analysis. In raw pork from retail meat cases nationwide, the prevalence of live T. gondii parasites was estimated at a low 0.4 percent, or about four per 1,000 samples.   https://www.ars.usda.gov/news-events/news/research-news/2007/retail-meat-analyzed-for-parasites/

 

Stonyfield Whole milk yogert, I think, is the only one with lactase for lactose intolerance. 

Naturally Fermented Pickles [The Complete Guide]

For your skin health you need dietary iodine intake around 500 to 1000 micrograms a day.  I take Liquid Iodine 500 mcg a day.  It is the amount I ate daily in the 1960/s before they stopped using it in bread.  Since 1970 the daily intake of iodine has decrease 50%.  50 mcg/drop in the brand I use.  The dose used to prove Wolff-Chaikoff Effect was upwards of 11 grams The USDA lists the safe range from 125 mcg to 1000 mcg (1 gram).  Japanese say 3000 mcg is safe.  Look at tradition japanese hair, skin, and their childrens intellegence.  They must be doing something more right than us. 

 

Edited by Wheatwacked
BoiseNic Apprentice

The study you posted was done by the USDA. Not much more needs to be said about that. It only tested for one type of parasite. There are many types of parasites that are typically only found in meat. I have tried all different kinds of dairy - whole, nonfat, skim, etc. I cannot eat any dairy, no matter what kind. I have wondered about iodine. Some people claim it makes them break out more, especially with celiac. I have been toying with my diet for decades now. I am 46 years old, and have known about celiac since my early twenties. I will keep you guys posted about the Skinesa. Usually after about a week I start breaking out on probiotics. It's been 3 days so far and everything's good. I'm on Dapsone also. I appreciate all the feedback.

Wheatwacked Veteran

Research indicates that a significant portion of people with dermatitis herpetiformis (dermatitis herpetiformis) can experience worsened symptoms when exposed to high levels of iodine; however, not everyone with dermatitis herpetiformis will react to iodine, and the exact percentage depends on individual sensitivity and dietary factors. 

I don't have dermatitis herpetiformis, but iodine is essential.  I would start with 1 drop of Liquid Iodine (KI + I2).  One drop is 50 mcg and evaluate.  The RDA for iodine is 150 mcg a day.  It's $8 for a 2 ounce bottle, about 1000 drops per bottle from pipingrock.com.

To me it seems logical that with no gluten coming in, eventually your skin would run out of gluten for the iodine to attack.  One of iodines functions is to break down defective cells to make room for new cells.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,378
    • Most Online (within 30 mins)
      7,748

    Kelvin Chola
    Newest Member
    Kelvin Chola
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In case your tests turn out negative you may still want to try a gluten-free diet. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Jack Common
      Thank you for your answer. Well, I'm going to eat at least 5 slices a day, each of them is 35 grams. I think I'll do blood tests again after four weeks. If the results are negative or not clear, I'll continue the challenge and repeat blood tests again after another four weeks.
    • Scott Adams
      You are correct in looking closer at her diet, as there may still be trace amounts of gluten, even from a gluten-free bakery (are their ingredient suppliers certified gluten-free?). You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/  For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:    
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      You're doing an amazing job planning ahead for your son's first ski trip with celiac disease! It’s great that the hotel and organization are supportive, which makes a big difference. For dinners, consider simple gluten-free meals like pre-cooked rice or quinoa bowls with a protein (like grilled chicken or turkey slices) and steamed or roasted vegetables. These can be prepped at home, frozen, and reheated safely at the hotel. Gluten-free pasta with a simple tomato or cheese sauce is also a kid-friendly option that travels well. As for snacks, packing things like gluten-free crackers, cheese sticks, fruit, or granola bars will help ensure he has safe options throughout the day. It’s also wise to carry some single-serve condiments or seasonings he likes to make meals more appealing. Regarding accidental gluten intake, reactions vary from person to person. Some children experience immediate symptoms like stomach pain or diarrhea, while others might not react until hours later. It’s a good idea to carry supplies like wet wipes, an extra change of clothes, and medication if prescribed by your doctor. You might also want to brief the ski instructors about his condition and what to look for in case of exposure. With careful planning and preparation, you’ll set him up for a fun and safe experience. Enjoy your trip!
×
×
  • Create New...