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Just Got Done With Endo.

erin24

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erin24 Explorer
erin24
Posted

Just got done with endo so I will keep in short since I want to fall asleep right now.

From the endo he saw that I have esophagitis, gastritis, and a small hiatal hernia. He also took 2 biopsies (sp?). I don't know where he took the biopsies from. The way he talked to me was that he didn't think I had celiac.

Are the 3 things I listed have any relation with celiac or are they completely seperate and have nothing to do with celiac? Any suggestions?

Did anyone else get sick to their stomach after the endo? I feel like I have a hangover. I guess I basically do b/c I am dehydrated from not drinking so that explains the headache and tiredness, but that doesn't explain the nautiousness (too tired to even about how to spell that one right).

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Jnkmnky Collaborator
Jnkmnky
Posted

ooohh... Feel better! :(

Ursa Major Collaborator
Ursa Major
Posted

Yes, I had all of those problems, too, and I do believe they're related to celiac. Two biopsies really isn't enough, it's unfortunately possible that he would have missed the damage, if there is any. Maybe he also didn't go far enough with the camera to find spots with damage.

No matter what the results are, if being gluten free makes you feel better, then you are gluten intolerant at the very least.

erin24 Explorer
erin24
Posted
  • Author

Well, I am feeling a little better this morning than I did last night.

Rusla - that stinks that you dont that he took enough biopsies.

He basically made his mind up before he even did the endo that I didn't have celiac b/c my blood work was negative. I think I need to find a new dr b/c he's not trying to figure out what is wrong with me he just wants to see what medicines work. Does that make sense? Instead of saying "let's try to figure out what is causing these problems" has says "let's figure out what medicines will make the problems go away". That doesn't make any sense to me and I dont want to just "mask" over my sympotms b/c I want to know what is really going on.

The only positive thing he did say though was that he wanted to do this thing where I swallow a pill then he takes an x-ray every couple of days to see where it goes. I don't think I am going to do it b/c I am sure my insurance will look at a 23 yr old with a colonoscopy, endoscopy, and endless dr visits and drop my butt! :D<_<

Gluten and dairy free from now on!!!!

jenvan Collaborator
jenvan
Posted

hey girl! am slammed at work today...will write you this weekend. you basially got the exact same diagnosis my best friend got last week! ttys!

Ursa Major Collaborator
Ursa Major
Posted
Well, I am feeling a little better this morning than I did last night.

Rusla - that stinks that you dont that he took enough biopsies.

He basically made his mind up before he even did the endo that I didn't have celiac b/c my blood work was negative. I think I need to find a new dr b/c he's not trying to figure out what is wrong with me he just wants to see what medicines work. Does that make sense? Instead of saying "let's try to figure out what is causing these problems" has says "let's figure out what medicines will make the problems go away". That doesn't make any sense to me and I dont want to just "mask" over my sympotms b/c I want to know what is really going on.

The only positive thing he did say though was that he wanted to do this thing where I swallow a pill then he takes an x-ray every couple of days to see where it goes. I don't think I am going to do it b/c I am sure my insurance will look at a 23 yr old with a colonoscopy, endoscopy, and endless dr visits and drop my butt! :D<_<

Gluten and dairy free from now on!!!!

Right, if he is determined that you don't have celiac before he starts, he will try hard not to find it to support his preconceived ideas. Many doctors and so-called scientists do that. And if what they find isn't what they wanted, they'll dismiss it and keep looking for what they want to find. Idiots!

Our 'health care' these days really is 'sick care', as it's far more profitable to just prescribe pills to manage the symptoms, rather than find the cause and fix it. If they'd fix everybody, they'd soon be out of business! And of course the pharmaceutical companies wouldn't make much money, either, poor people! :huh:

I am glad you're not listening to this doctor, but to your body. Finding another doctor is a good idea, because, there actually are some good ones out there! Unfortunately, finding a good doctor seems to be like finding a needle in a haystack these days.

mmaccartney Explorer
mmaccartney
Posted

Hi, sorry you're feeling sick :(

I wasn't sick to my stomach after my 2 endos, but yes the hangover symptoms were there. I felt better by the next day.

I also was told I had a small hiatal hernia, not sure if that is related or not, GI told me not to worry about it for now. I also was told that I had esophagitis and gastritis. He told me to elevelate the head of my bed (Stops acid from flowing into your esophogus at night), and put me on Nexium.

I figured out on my own that once I stopped all the vomiting that was resulting from my celiac and casein intolerance my throat healed up, and I stopped the Nexium. I feel that the esophagitis and gastritis were directly related to my celiac symptoms, one of which was alot of vomiting, hence the acid damage to my throat!

On the Camera Endoscopy, I had one. At the time my GI thought I had Chrons and this justified it to my insurance company and they paid for it...perhaps you can talk your doc into writing that up to get the ins to pay for it ;) . The Camera Endscopy is usually just over $1000.00 BUT for me, it ruled out Crohns, and tipped off my GI to Celiac as he saw "patterns and folds" in my intestines that were simliar to Celiac. The cool thing is that you swallow a pill, and wear a jacket/harness around for the day. You can actually go about your normal daily routine while it is filming your guts..

If you need a biospy, the camera deal is no good, but for just looking around I think it should be the preffered method. it gets great pics, and is non invasive. It also requires no anesthetic which reduces the risks to the patient!!!

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