Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Supplements - Please Help

Guest Babbia

By Guest Babbia
in Post Diagnosis, Recovery & Treatment of Celiac Disease

Recommended Posts

Guest Babbia
Guest Babbia
Posted

I have heard people mention these on this board. Just wondering what to look for when going out to buy these.

Can anyone help????

Thanks,

Babbia

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shayesmom Rookie
shayesmom
Posted
I have heard people mention these on this board. Just wondering what to look for when going out to buy these.

Can anyone help????

Thanks,

Babbia

In a probiotic, I usually look for a refrigerated brand as the potency is higher and thereby more effective in smaller doses. In my dd's case, I also look for a dairy-free version as she has a dairy allergy. One of the more studied and effective probiotic strains is Lactobacillus GG. There is also a lot of research out on acidophilus and bifobifidus. You can choose between, capsules, powder and pearls. I've also read that Culturelle is a very good brand but we use one by Metagenics as it is almost tasteless.

As for digestive enzymes, I go for a good protoelytic enzyme. However, you really have to be careful with the more powerful ones if you are on any blood-thinning meds like Cumadin (sp?). Protoelytic enzymes also thin blood and must be used with extreme caution if there is any meds for heart problems or strokes. Serralone, made by Generations is excellent. It is also being used in Europe as an alternative to open heart surgery and even amputation as it really can reduce inflammation and eats all non-living matter in the system (including scar tissue, cysts and arterial plaque). I believe Germany is where most of the studies on it comes from. In any case, I've understood Celiac Disease to also come with a deficiency in producing enzymes so to me, it seems like a good idea to supplement....even if it's with something as simple as a chewable papaya or bromelain enzyme (which helps a lot of with lactose problems).

HTH

Rachel--24 Collaborator
Rachel--24
Posted

Hi,

I use HLC probiotic by Pharmax.....I'm not sure if its sold in stores but I get it from my doctor. I use this one because it doesnt have any extra stuff in it and its gluten and casein free and good quality....I dont trust stuff thats not refrigerated.

Open Original Shared Link

For a digestive enzyme I use Digest Gold by Enzymedica. I got it at whole foods and its expensive but its working great for me.

julie5914 Contributor
julie5914
Posted

My doctor recommended Jarrow formula bifidus and prescribed an enzyme called Creon to help me digest protein.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

      Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search...
    2. knitty kitty
      - knitty kitty replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

      @yellowstone, You poor thing! I'm not a medical doctor, but it sounds like "Refeeding Syndrome". I suggest you seek medical attention. Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy. This can occur...
    3. Sheila G.
      - Sheila G. replied to Sheila G.'s topic in Related Issues & Disorders
      11

      No red meat

      Thank you for sending me this information 🙏🏻❤️✌️
    4. Scott Adams
      0

      Emergency Aid Launched to Deliver Gluten-Free Food to People with Celiac Disease in Gaza

    5. yellowstone
      - yellowstone posted a topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

      Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,002
    • Most Online (within 30 mins)
      10,442
    Boikanyo William Mompati
    Newest Member
    Boikanyo William Mompati
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Hypoglycemia, ketones in urine and weight lost. I need advice.

      By Aretaeus Cappadocia · Posted

      Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search for "whole genome sequencing"). It's not guaranteed to get you an answer, but if your symptoms are caused by a genetic condition you might get the answer that is stumping standard differential diagnosis. These days there are quite a few companies offering this service. I wish I could tell you which one was best but I've been out of that field for a decade. Talk to your Dr about this and see what they think. Price is probably ~$500-$1,500 including the sequencing and detailed reports. Sounds like a lot, I know, but consider that 25 years ago just the sequencing (no reports) cost $2.7 B and took 3 years to complete.
    • knitty kitty
      Hypoglycemia, ketones in urine and weight lost. I need advice.

      By knitty kitty · Posted

      @yellowstone, You poor thing!  I'm not a medical doctor, but it sounds like "Refeeding Syndrome".   I suggest you seek medical attention.   Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy.   This can occur in Malabsorption due to Celiac Disease.  Malabsorption prevents the absorption of B vitamins, especially Thiamine. The B vitamins and Thiamine cannot be stored long in the body.  When you run out of Thiamine, your body burns fat for energy which produces the Ketones, hence your weight loss. With medical attention, Thiamine and other B vitamins need to be replaced before giving any more sugars.  Doctors can give you an IV containing B vitamins including Thiamine, called a "banana bag".  Riboflavin  Vitamin B2 causes the yellow color.   Doctors can also monitor your electrolytes which can become unbalanced and cause further serious health issues. I've experienced Refeeding Syndrome.  It's very scary.  Health can deteriorate quickly in Refeeding Syndrome.  It's correctable, but complicated.   I strongly urge you to get professional medical attention as soon as possible.   Our prayers are with you! https://my.clevelandclinic.org/health/diseases/23228-refeeding-syndrome Thiamine Deficiency in Self-Induced Refeeding Syndrome, an Undetected and Potentially Lethal Condition https://pmc.ncbi.nlm.nih.gov/articles/PMC4295429/ Keep us posted on your progress!
    • Sheila G.
      No red meat

      By Sheila G. · Posted

      Thank you for sending me this information 🙏🏻❤️✌️
    • yellowstone
      Hypoglycemia, ketones in urine and weight lost. I need advice.

      By yellowstone · Posted

      Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice?
    • glucel
      iron digestibility

      By glucel · Posted

      I ate sprouted buckwheat and hard boiled egg last night instead of cereal and got extra 1/2 hour sleep but more importantly feel better this morning. I do sleep in cycles that seems to rotate btwn 3 and 6 hrs but I will monitor next time I make a pot. Bwheat is a complete protein with good amounts of thiamin, magnesium, fiber and iron. High carb but much lower glycemic and much healthier than refined flour cereal.
×
×
  • Create New...