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    Do you have questions about celiac disease or the gluten-free diet?

amybeth

Bucks County Courier Times

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The Bucks County Courier had an article in this morning's paper...About 3 or 4 weeks ago they ran another story. Today's was on the bottom of the front page.

I think you can find previous articles on www.phillyburbs.com if you're interested in reading it.

I skimmed the article - it mentioned a Dr. at CHOP who treats and also has celiacs.

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The Bucks County Courier had an article in this morning's paper...About 3 or 4 weeks ago they ran another story. Today's was on the bottom of the front page.

I think you can find previous articles on www.phillyburbs.com if you're interested in reading it.

I skimmed the article - it mentioned a Dr. at CHOP who treats and also has celiacs.

was this the article?

1. At Gluten-Free Spree, students are really cooking

KRISTEN COPPOCK A Chilean sea bass in a wine reduction with parsley and chive mashed potatoes on the side was presented by Angela Park of Cinnaminson. Her classmate, Michelle Vendetti of Evesham, made a grilled rare Ahi tuna with mango salsa and mushroom empanadas. Other entries were Duckling and Fruit Filled Crepes, Seared Sea Scallops with Sweet Corn Bread Dressing and Three-Cheese Ravioli with Dried Cranberry and Bourbon Reduction. Everything was gluten-free, including the hors d'oeuvres. O ......

(Published: 05/02/2006)

judy in philly

i heard the woman Alice Blast who had the idea to do this 'cooking spree' speak at our Martindale's Natural Foods seminar last week. She was an amazing speaker who talks alot with dr's.

Love to know the dr at CHOP who specializes in this.

judy in philly

can you please put a link to the article in yesterday or todays paper.

thanks.

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jEN

THANKS IT WAS GOOD BUT DIDN'T MENTION THE DR AT CHOP.

WONDER IF THERE IS ANOTHER ONE ALSO.

JUDY

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Ugh - Just looked online and don't see the article there. The article was titled "The disease of a thousand disguises".....I'll try to get ahold of a copy today and post some of the key points including the dr.'s name.

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Ok --

Article -- "Disease of a thousand disguises"

writer -- Jo Ciaviaglia of Bucks County Courier Times

Tagline -- "Many people have celiac disease and don't realize it. The cure is simple, though not easy, experts and sufferers say."

The article goes on to discuss a teenager with celiac disease. "For [her] gluten is poison...her body reacts as if it were a toxic substance. The immune system is kicked into high alert......"

It then goes on to discuss how it was once believed to be rare, etc. quotes Alice Bast ......

Then discusses Dr. Petar Mamula, a pediatric gastroenterologist at CHOP.......who says "the presenting symptoms have also changed...in the last century, a text book celiac case was a 1-year-old with a big belly, slow physical growth and a lot of diarrhea.....today medical experts know some people are diagnosed later or experience few or mild symptoms...."

"With 250 symptoms celiac is nicknamed the disases of a thousand disguises. It's long term complications include tumors, low bone density, intestinal lymphoma and other problems...."

Then it goes on to describe what gluten is........where it can be found...

AND I actually misread the article....Dr. Mamula (CHOP) goes on to say that the diet is difficult and gauging the damage caused by a little gluten is difficult.......I thought it said he specialized, but actually he is a celiac patient as well as a GI.....(I would venture to guess though that he would then be very knowledgable - even if not specializing.....)

There's also a pretty detailed list of products that contain gluten next to the article.....

The paper also indicated "Coming Wednesday: gluten free foods offer new cooking and dining choices for those with celiac disease" (in the food section of the courier.)

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