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- trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Coeliac or not coeliac
Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope. -
- cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Coeliac or not coeliac
Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal. My TTG score was completely through the roof at the time, greater than 100 which was then the cut...- 1
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- trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Coeliac or not coeliac
My bad. I should have reread your first post as for some reason I was thinking your TTG was within normal range. While we are talking about celiac antibody blood work, you might not realize that there is not yet an industry standard rating scale in use for those blood tests so just having a raw number with out the reference scale can be less than helpful... -
- knitty kitty replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Coeliac or not coeliac
@CC90, Your Lansoprazole is a proton pump inhibitor and has immunosuppressive effects!!!! This is why your endoscopy didn't show much damage to the intestinal lining!! The Lansolprazole is suppressing tTg IgA antibodies in the intestines, but those antibodies are getting into the blood stream and causing inflammation and damage in other organs... -
- knitty kitty replied to kevert93's topic in Gluten-Free Foods, Products, Shopping & Medications4
Having issues with chips
Hi, @kevert93, Those Gluten Assist enzymes digest carbohydrates, not just gluten specifically. Eating a high carbohydrate meal can deplete Thiamine Vitamin B 1 causing digestive symptoms like you describe. You could also be having difficulty digesting the oils used in those chips. Thiamine in the form Benfotiamine can help. We need the eight...
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Posts
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Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
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Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal. My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab. Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale. I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
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My bad. I should have reread your first post as for some reason I was thinking your TTG was within normal range. While we are talking about celiac antibody blood work, you might not realize that there is not yet an industry standard rating scale in use for those blood tests so just having a raw number with out the reference scale can be less than helpful, especially when the test results are marginal. But a result of 87.4 is probably out of the normal range and into the positive range for any lab's scale. But back to the question of why your endoscopy/biopsy didn't show damage despite significantly positive TTG. Because they took the trouble to take seven samples, it is not likely they missed damage because of it being patchy. The other possibility is that there hasn't been time for the damage to show up. How long have you been experiencing the symptoms you describe in your first post? Having said all that, there are other medical conditions that can cause elevated TTG-IGA values and sometimes they are transient issues. I think it would be wise to ask for another TTG-IGA before the repeat endoscopy to see if it is still high. Knitty kitty's suggestion of getting genetic testing done is also something to think about. About 35% of the general population will have one or both genes that are markers for the potential to develop active celiac disease but only about 1% of the population actually develop celiac disease. So, having a celiac potential gene cannot be used to definitively diagnose celiac disease but it can be realistically used to rule it out if you don't have either of the genes. If your symptoms persist, and all testing is complete and the follow-up endoscopy/biopsy still shows no damage, you should consider trialing a gluten free diet for a few months to see if symptoms improve. If not celiac disease, you could have NCGS (Non Celiac Gluten Sensitivity).
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By knitty kitty · Posted
@CC90, Your Lansoprazole is a proton pump inhibitor and has immunosuppressive effects!!!! This is why your endoscopy didn't show much damage to the intestinal lining!! The Lansolprazole is suppressing tTg IgA antibodies in the intestines, but those antibodies are getting into the blood stream and causing inflammation and damage in other organs. Proton pump inhibitors cause intestinal damage in the long run. If you get off the Lansoprazole for a few months so your immune system is not blocked, then do a gluten challenge, and an endoscopy, THEN they would see intestinal damage. Sheesh! Doctors can be so ignorant. I've seen this so many times it's frustrating! Take the B Complex and Benfotiamine. Get off the Lansoprazole. Go with the DNA test results. Welcome to the tribe! P.S. B vitamins are needed to correct anemia! Not just iron. -
By knitty kitty · Posted
Hi, @kevert93, Those Gluten Assist enzymes digest carbohydrates, not just gluten specifically. Eating a high carbohydrate meal can deplete Thiamine Vitamin B 1 causing digestive symptoms like you describe. You could also be having difficulty digesting the oils used in those chips. Thiamine in the form Benfotiamine can help. We need the eight B vitamins to digest our food, carbs, fats and proteins. Poor digestion can cause symptoms like vomiting and stomach pain, brain fog, headaches, exhaustion. Try taking a B Complex with the activated forms of the B vitamins (Life Extension's Bioactive B Complex is great!) and additional Benfotiamine. The B vitamins are used to make digestive enzymes and will allow your digestive system to function properly. The B vitamins also will improve headaches, exhaustion, and brain function. Taking Thiamine in the form Benfotiamine will improve digestive symptoms and lower inflammation, too. Benfotiamine and the B vitamins are safe. The B vitamins are chemical compounds found in whole foods, not in highly processed foods like chips. The body cannot make the B vitamins, so supplementing is beneficial. Benfotiamine is safe and nontoxic even in high doses.
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