Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Food Allergies


Carriefaith

Recommended Posts

shai76 Explorer
shai76, if you don't mind me asking, which foods cause your severe reactions?

I'm a class 3-4 with soy, and a class 2 with milk, eggs, corn, wheat, oats, and yeast. And a class 1 with turkey, tree nuts, fish, and coffee.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 58
  • Created
  • Last Reply
Michi8 Contributor
They say spice mix is allspice, cinnamon, colves, ginger, and nutmeg.

Marcia, thanks for your reply. Does your daughter know for sure what causes her reactions? This is all very confusing for me as I am not 100% sure what caused the reaction. I wish my epipen were free, I had to pay $140! And I don't have insurance! Ah!

I had a skin prick test and they tested for a lot of different foods. I'm not too concerned about the foods I'm allergic to since most of them are easy to avoid except potatoes. I'm not really sure what peanuts do to me since I eat peanut butter all the time! And peanut allergy was very high on the test :blink:

Carrie,

That price for the Epipen was very high. I bought my sons at the Walmart pharmacy (in Alberta) for around $95-99. Fortunately, for us, the price is covered by insurance. I recommend shopping around for a better price the next time you have to buy one (the shelf life isn't very long unfortunately.)

In terms of the peanut allergy, it is possible that you will never have an anaphylactic reaction (given you eat peanut butter regularly.) I never did, I only ever reacted with itchy tongue, throat, ears and lips. The allergist had me carry an Epipen for a while (I think a lot of allergist are being very cautious nowadays), but I think it was overkill (I had lived with my peanut allergy for 26 years at that point!)...there was never a sign of anaphylaxis for me.

I "outgrew" that peanut allergy after I had my first baby. I've since develped new foods allergies in its place. :) From what I understand, completely avoiding peanuts was what helped my body "outgrow" the allergy...now I ingest them on a regular basis to keep my allergy at bay.

Michelle

Link to comment
Share on other sites
Carriefaith Enthusiast

Thanks shai76 :)

That price for the Epipen was very high. I bought my sons at the Walmart pharmacy (in Alberta) for around $95-99. Fortunately, for us, the price is covered by insurance. I recommend shopping around for a better price the next time you have to buy one (the shelf life isn't very long unfortunately.)
That is a lot cheaper! Mine is a Twin EpiPen, maybe that is why it is so expensive?
Link to comment
Share on other sites
Michi8 Contributor
Thanks shai76 :)

That is a lot cheaper! Mine is a Twin EpiPen, maybe that is why it is so expensive?

It could be. I've never seen a "Twin EpiPen"...is it a double injection kit? My son's epipen is the standard adult dose, single injection. Because he has a penicillin allergy I only buy and carry one epipen at a time...it expires before it's needed, because it's pretty hard to get penicillin accidentally (although I really need to advocate for my son with doctors, because they prescribe penicillin without thinking.) :rolleyes: I really need to get my son a medic alert bracelet instead, as I think it would be way more helpful if he ever needed medical attention in an accident away from home and family.

Michelle

Link to comment
Share on other sites
Carriefaith Enthusiast

Michelle,

Mine is called a Twinject and there are two doses. I'm assuming that's why it is so expensive! There is one auto injector and one manual needle. They have two in case the first dose wears off before you can get medical attention.

A medic alert bracelet is always a good idea for someone with severe allergies. The bracelet would definately help him away from home. I am thinking of getting one myself now that I have this allergy.

Link to comment
Share on other sites
sasha1234 Newbie

I'm in Alberta too and was just recently told to switch over from Epipens to Twinjects because of the reassurance that you have 2 dosages, especially good for travellers. However, they are currently quite a bit more expensive (I don't remember what mine was, insurance paid, but it was about what you paid $140 I believe), anyway it is cheaper than having two Epipens. I expect as they become more prominent (they are a new product) the price will slowly come down, they certainly did with Epipens.

Link to comment
Share on other sites
Carriefaith Enthusiast
I'm in Alberta too and was just recently told to switch over from Epipens to Twinjects because of the reassurance that you have 2 dosages, especially good for travellers. However, they are currently quite a bit more expensive (I don't remember what mine was, insurance paid, but it was about what you paid $140 I believe), anyway it is cheaper than having two Epipens. I expect as they become more prominent (they are a new product) the price will slowly come down, they certainly did with Epipens.
Hopefully the Twinjects will get cheaper with time. I think that they are a great idea! I got a practice one with no needles from my allergist and they are fairly easy to use.
Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munchkinette Collaborator

Wow, that's really scary. I've never had that kind of reaction from just eating wheat, but my other allergies (dust mites and pets) can get really bad like that after I've been glutened. If it's within a week of eating a little wheat (it usually ends up being soy sauce in a marinade instead of contamination) then the addition of my pets often causes me to need my inhaler. It just seems to be a cumulative thing for me. One allergy alone won't make my throat close up, but the combination of two things will.

I definitely keep benadryl and claritin in my purse. I have a few inhalers in various places.

Link to comment
Share on other sites
Carriefaith Enthusiast
One allergy alone won't make my throat close up, but the combination of two things will.
I am really glad that you shared that. I am wondering if my reaction was from a combination of being exposed to wheat and milk. I was having breathing problems the week leading up to the reaction and I now know that I was eating large amounts of gluten contaminated chips that entire week. I started unknowinly eating dairy contaminated chips a few days before the reaction. I almost wonder if it was an allergen overload. I am hoping that is what happened. But I am pretty sure that the gluten contaminated chips were causing my respiratory problems.
Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748

    Aventine
    Newest Member
    Aventine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
    • Tanner L
      Constantly! I don't want everything to cost as much as a KIND bar, as great as they are.  Happy most of the info is available to us to make smart decisions for our health, just need to do a little more research. 
    • ekelsay
      Today, I received the results of my Tissue Transglutaminase (tTG) Ab, IgA test. I am not sure how to interpret the results. I have left a message for the doctor that requested the test but have not heard back. The results stated that the normal range is from 0.00 - 4.99 FLU. My results came back at 92.08. Is this concerning? This seems extremely high for someone who has reached the age of 50 before finding out he has celiac disease.  The reason that I was administered the test in the first place is due to bloating issues that started about a year ago. I met with a Gastroenterologist and after a short question and answer session she wanted to test me for celiac disease and a bacteria test via the H. Pylori Breath Test. She seemed more concerned with the fact that I am a healthy male suffering from Anemia. Is it possible the anemia could be a result of celiac disease? I have been on an iron supplement for the better part of 5 years.      
×
×
  • Create New...