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M-3 Gal

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M-3 Gal Rookie
M-3 Gal
Posted

Does anybody have this problem???? I have been eating gluten, wheat, soy and chocolate free for 2 weeks now and I have not been tested yet...I go back to my gastro guy Wed. to do a follow up and be referred to a specialist. Anyway, I go along for a couple days feeling fine then all of a sudden I eat a safe food and I feel sick, body ache, etc. Then it takes a day or two to get back to normal......I assume it just takes a while to get out of your system????? HELP!

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CarlaB Enthusiast
CarlaB
Posted

Are you sure the food is safe and not contaminated in any way? If it was peanut butter, did anyone else use the pb on bread? Same with mayo? Did you eat out -- that's a common source of contamination? Was the food processed? Some aren't from dedicated facilites. Was there any chance of hidden gluten? Soy sauce? Does your makeup have gluten in it?

I would suspect since you've been off it for such a short time that there's some gluten hidden somewhere. It's pretty insidious and difficult to get rid of!

Lisa Mentor
Lisa
Posted

I'll try this again.........lighning storm about.

You are not healed. Even though you have been gluten free, the damage is done and it will take some time to heal. If you continue on the gluten free diet (including, lotions, shampoos, lipstick, cosmetics, any potentioal oral injestion), you will gradually feel better.

The healing process will take some time and you need to be patient and diligent. It will come.

If you have concerns over certain products, please ask here.

Doctors are now just learning about how prevelent Celiac is, but you have come to the experts. Please read, read and read somemore, here. This is the best source there is.

Please post if you have questions, that's why we are here. Experience is Knowledge.

Lisa

Lisa Mentor
Lisa
Posted

Lisa:

I saw your other post,...lots of Lisa's here.

If you are going to see a specialist, do NOT go gluten free. I am sure that this will cause you alot of discomfort. In order for you to have an accurate testing, you MUST remain on gluten. If not, the result will not be accurate.

On the other route, you could become gluten free and see how you feel and if you feel better after a period of time...well, there is you answer. Others will post by morning.

Take care and I hope you feel better. Lisa

M-3 Gal Rookie
M-3 Gal
Posted
  • Author
My symptoms have been dianosed as so many other things...acid reflux, gall bladder.....then they did all the test, put me on medication and still nothing.....I get very sick to my stomach and then I ache all over and sometimes pass out......it was causing me to not be able to live my life. I even had to cancel a trip to Africa this year because I did not know what was going on with me...so I decided to try the wheat gluten free thing and then ate something that made me sick and found out it had soy it, so I ate soy again a couple days later and got sick again, so I knocked that item out as well and chocolate. Even if the test don't show allergies to foods, I am still going to continue because it seems strange that I only get really sick when I eat certain things. Within 5 or 10 minutes of eating an item, I get sick. Then it takes a day or two to recover. Thanks!

Lisa

I'll try this again.........lighning storm about.

You are not healed. Even though you have been gluten free, the damage is done and it will take some time to heal. If you continue on the gluten free diet (including, lotions, shampoos, lipstick, cosmetics, any potentioal oral injestion), you will gradually feel better.

The healing process will take some time and you need to be patient and diligent. It will come.

If you have concerns over certain products, please ask here.

Doctors are now just learning about how prevelent Celiac is, but you have come to the experts. Please read, read and read somemore, here. This is the best source there is.

Please post if you have questions, that's why we are here. Experience is Knowledge.

Lisa

gfp Enthusiast
gfp
Posted
I have been eating gluten, wheat, soy and chocolate free for 2 weeks now

If this isn't a typo:

Why blame the safe food - I would think that the 'safe food' is pretty irrelevant in this. You have been eating gluten and it has built up, if you were gluten-free before then it takes a certain amount of time for the damage to build up and start some of the peripheral symptoms. (I feel sick, body ache, etc. )

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    • akebog
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      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
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      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
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