Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allentown/bethlehem/easton Support Group?

Guest GlutenFreeGirlfriend

By Guest GlutenFreeGirlfriend
in Meet Up Room

Recommended Posts

Guest GlutenFreeGirlfriend
Guest GlutenFreeGirlfriend
Posted

I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


daisy232 Newbie
daisy232
Posted
I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

Did you ever find your support group? How long have you known that you have celiac disease? Are you having a hard time doing the new lifestyle? I have been gluten-free for a couple of years, and it is still hard!!

Let me know if you need any receipes for breads or whatever!!

Tricia, Kutztown, Pa

princealbertofpa Newbie
princealbertofpa
Posted
I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

My husband was recently diagnosed with celiac disease, along with my niece (6 yr old). I do not know of any support groups in the Lehigh Valley, but I can inform you of what I know so far. Wegman’s is a great place to buy gluten-free foods and their list is expanding everyday. You do not have to go to the gluten-free aisle either! Their labeling is changing to include gluten-free foods. You can also go online and print out all of their gluten-free items. NCCC is offering a celiac cooking class on October 16th; $19 for the class & $16 for supplies. There is an awesome bakery in Philly that is 100% gluten-free. It is a little pricey, but very high quality. I have made several baked goods using their flour mixture and the results are incredible! I have tasted a lot of gluten-free foods that I would not even feed to my dogs!! Here is the link to the bakery: Open Original Shared Link. They ship and since we are so close, we can order almost anything off of their list.

  • 10 months later...
gfgirl23 Newbie
gfgirl23
Posted

Hi,

I live in Allentown and am a celiac. My mother is too and we'd like to form a Lehigh Valley gluten-free group. Let us know!! :)

blueeyedmanda Community Regular
blueeyedmanda
Posted

Wegmans is the best store possible!!! They aren't changing their labels, they have been doing the gluten free labeling, the G in the orange circle for quite a few years. Hello from Harrisburg!

  • 9 months later...
starrymazed Rookie
starrymazed
Posted

Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more! :rolleyes:

  • 2 weeks later...
RunnerGrl Newbie
RunnerGrl
Posted
Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more! :rolleyes:

Hi Starry

I too have been recently diagnosed and while I thought I was going to cope really well, I am finding that I am having a really difficult time with it. I am in the LV...did you get any response?

~Kris

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Hi Everyone

I'm not in your area but I have started a gluten-free group on the other side of the state! We had nothing here & shopping is always at least an hour or more away. It has become a large group & I line everything up each month on my own. I have people who have survived on only five foods for years !!!! I'm so glad I'm able to bring happiness back into their lives...

I can help you in regards to the best of best in gluten-free & help satisify your cravings!!! Feel free to contact me through a private pm...

blessings

mamaw

starrymazed Rookie
starrymazed
Posted
Hi Starry

I too have been recently diagnosed and while I thought I was going to cope really well, I am finding that I am having a really difficult time with it. I am in the LV...did you get any response?

~Kris

Hello! Nope, I have not heard much. Right now I am doing a gluten challenge of sorts, so that I can have my biopsy done on June 5th. I cannot wait to feel better again! Eating out with my family is what is hardest for me, as hardly anything is gluten free :angry: However, in case you never heard of it, there is a pizza place in Bethlehem called Manny B's, and they serve gluten free pasta dishes as well as pizza. As soon as my biopsy is done, I am going right back to a gluten-free diet, regardless of the results, and I am going to go to Manny B's for sure. They are located on Freemansburg Ave if you are interested, and they have a web site with their menu www.mannybspizza.com

  • 5 weeks later...
mac0521 Newbie
mac0521
Posted
Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more! :rolleyes:

Hello - I live in Macungie as was just diagnosed with Celiac .

We do have a very good support group in the Lehigh Valley - have you gotten the information on it yet?

Maureen

mac0521 Newbie
mac0521
Posted

:rolleyes:

Hello! Nope, I have not heard much. Right now I am doing a gluten challenge of sorts, so that I can have my biopsy done on June 5th. I cannot wait to feel better again! Eating out with my family is what is hardest for me, as hardly anything is gluten free :angry: However, in case you never heard of it, there is a pizza place in Bethlehem called Manny B's, and they serve gluten free pasta dishes as well as pizza. As soon as my biopsy is done, I am going right back to a gluten-free diet, regardless of the results, and I am going to go to Manny B's for sure. They are located on Freemansburg Ave if you are interested, and they have a web site with their menu www.mannybspizza.com

HERE IS THE INFORMATION ON THE Lehigh Valley Celiac Support Group meets five times a year at 2166 S. 12th Street in Allentown. Speakers and participants provide information, tips and support, covering everything from restaurants and products to health concerns. They have food you can try and recipes to share. You can even participate in a food co-op, saving you money and allowing you to buy in smaller quantities. For more information, contact Kathleen Heist at 610-767-1622 or Beverly Kistler at 610-776-1178.

Neet meeting is July 7 - I hope this helps - Maureen

RunnerGrl Newbie
RunnerGrl
Posted
:rolleyes:

HERE IS THE INFORMATION ON THE Lehigh Valley Celiac Support Group meets five times a year at 2166 S. 12th Street in Allentown. Speakers and participants provide information, tips and support, covering everything from restaurants and products to health concerns. They have food you can try and recipes to share. You can even participate in a food co-op, saving you money and allowing you to buy in smaller quantities. For more information, contact Kathleen Heist at 610-767-1622 or Beverly Kistler at 610-776-1178.

Neet meeting is July 7 - I hope this helps - Maureen

Thanks so much for getting back to me! I will definitely contact someone about it!

mac0521 Newbie
mac0521
Posted

Great -I will be at the July 7 meeting. I hope to see you there. Maureen

Thanks so much for getting back to me! I will definitely contact someone about it!
starrymazed Rookie
starrymazed
Posted

Thank you for this information! I was trying to get a hold of someone regarding the meeting just yesterday!

mac0521 Newbie
mac0521
Posted

Thank you for this information! I was trying to get a hold of someone regarding the meeting just yesterday!

Glad I could help - its tough doing it on your own in the beginning!

  • 3 years later...
ciavyn Contributor
ciavyn
Posted

Any news on this old topic? I'm new to the area and looking for restaurants and such to enjoy, and would love to connect with other gluten free folks in the area.

  • 10 months later...
ccassid1 Newbie
ccassid1
Posted

I'm a 42 year old living in Allentown who just got diagnosed last week. This was years after being pricked and pried by every specialist in the LV. I'm relieved to finally have a diagnosis, but yet frustrated! I don't know where to begin, ugh, but I'm happy I found this website (great info, but I'm overwhelmed ....Anyway, I spoke with Kathleen Heist (very nice person) from the LV support group and she told me they are meeting on April 24th and they have a guest speaker (Dr. Harmad). The meeting is at: 2166 S. 12th Street in Allentown at 7:00.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Babygirl877
      - Babygirl877 replied to Babygirl877's topic in Coping with Celiac Disease
      2

      Recently diagnosed with Celic disease

      Thank you so much
    2. trents
      - trents replied to Babygirl877's topic in Coping with Celiac Disease
      2

      Recently diagnosed with Celic disease

      Welcome to the forum, @Babygirl877! You may find that your gastritis and your gastroparesis improve once you begin following a gluten free diet consistently. But to arrive at consistency in eating gluten free can involve a real learning curve. This might help:
    3. trents
      - trents replied to ErinV's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Decreasing tTiga?

      @ErinV, from you first post: " Her doctor’s office recently changed EMRs so I can’t remember the exact numbers of all her other blood tests, but I know she was positive for both genetic markers." But then you say in your most recent post, "We’ve all tested and neither of us, nor my other daughter have the genetic markers for it." Those two state...
    4. ErinV
      - ErinV replied to ErinV's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Decreasing tTiga?

      Hi- thanks for the reply. Happy to give more information. No one in my family or the fathers family has celiacs. We’ve all tested and neither of us, nor my other daughter have the genetic markers for it. these are what the lab results say: Endomysial Antibody Titer- Normal value: <1:5 titer. Hers were at 1:10 the past 3 times and t...
    5. plumbago
      - plumbago replied to ErinV's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Decreasing tTiga?

      Hello and welcome, Could you please publish the reference ranges for each test, including tTG-IgA and the endomysial antibodies? When your daughter had her endoscopy, was she eating gluten? I agree with your position, I would not want to subject her to another endoscopy and biopsy. It sounds like your doctor is saying that since her tiredness is...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,575
    • Most Online (within 30 mins)
      7,748
    Jo Gibbons
    Newest Member
    Jo Gibbons
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Babygirl877
      Recently diagnosed with Celic disease

      By Babygirl877 · Posted

      Thank you so much 
    • trents
      Recently diagnosed with Celic disease

      By trents · Posted

      Welcome to the  forum, @Babygirl877! You may find that your gastritis and your gastroparesis improve once you begin following a gluten free diet consistently. But to arrive at consistency in eating gluten free can involve a real learning curve. This might help:   
    • trents
      Decreasing tTiga?

      By trents · Posted

      @ErinV, from you first post: " Her doctor’s office recently changed EMRs so I can’t remember the exact numbers of all her other blood tests, but I know she was positive for both genetic markers." But then you say in your most recent post, "We’ve all tested and neither of us, nor my other daughter have the genetic markers for it." Those two statements are in direct contradiction to one another. Where did she get the genes for potential celiac disease then?
    • ErinV
      Decreasing tTiga?

      By ErinV · Posted

      Hi- thanks for the reply. Happy to give more information. No one in my family or the fathers family has celiacs. We’ve all tested and neither of us, nor my other daughter have the genetic markers for it.    these are what the lab results say: Endomysial Antibody Titer- Normal value: <1:5 titer.  Hers were at 1:10 the past 3 times and then this time it came back on her portal as just “negative” Her platelets this time came back at 451, and the normal range is 150-400. They have been in the normal range the past three times. Tissue Transglutaminase Ab-  <15.0 Antibody not detected > or = 15.0 Antibody detected Her Value 76.1 this time. 8 months ago it was 140, 6 months before that it was 120 and the time before that it was 72. From what I’ve read and from the doctor, this is the most specific test for celiac and what we should focus on the most. 76 is still extremely high, but why did it decrease when nothing in her diet has changed?
    • plumbago
      Decreasing tTiga?

      By plumbago · Posted

      Hello and welcome, Could you please publish the reference ranges for each test, including tTG-IgA and the endomysial antibodies? When your daughter had her endoscopy, was she eating gluten? I agree with your position, I would not want to subject her to another endoscopy and biopsy. It sounds like your doctor is saying that since her tiredness is not new that there's no real health status change. Personally, I don't like that assessment, and I would question it. From the bits you have posted, it does look like she has Celiac, but I would want to see a more comprehensive panel. It's good you've continued doing the blood tests, and are in general staying on top of it. (Are there others in either your family or the child's father's family that have had Celiac?) People without Celiac do not test positive, regardless of the level. Other moderators on this board may have more up to date information than I do, but I think that's still true. Plumbago
×
×
  • Create New...