Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Gutened! Anyone Else Get Cravings And Retain H2o?

anerissara

By anerissara
in Coping with Celiac Disease

Recommended Posts

anerissara Enthusiast
anerissara
Posted

I guess every now and then I need a little reminer as to the fact that this gluten thing is *not* all in my head! I know it is important and that I should be careful, but I hadn't had a bad reaction for awhile.

I went to Outback Steakhouse...normally a very safe place to eat...and *forgot* to order my salad gluten-free! I can't believe I did that. I was 1/2 way through the salad when I suddenly felt my gut blow up like a balloon (seriously...yipes!) and felt reeeaaalllly sick. I've never had that happen so quickly, normally my reations start a day or so after glutening and peak 3 days afterwards, this one hit hard and right away. Turns out the salad had some sort of little noodle in it (wheat) and dressing with gluten, too. YIPES! I've not had that much gluten for over a year, usually if I'm reacting it's from some tiny trace in something, cross contamination etc. I felt really crummy but then was looking on the bright side...it was a reminder as to how careful I really need to be. I then ended up eating a piece of cheesecake at my aunt's house this weekend...she knows about the gluten and *she* isn't supposed to be eating it either...but she does often cheat. I ate the top off the cheesecake thinking she made it gluten-free, which she ususally does...turns out it *wasn't*! So, any crumbs in the cake were wheat.

Now I am doubly sick and feeling stupid (for getting glutened *twice* in a bad way!).

One thing I've noticed this go-around, when I've had a bad glutening....I am retaining water like crazy! I mean, I gained 3.5 pounds *overnight* for no particular reason. My face is puffy and my rings are stuck to my finger. This is crazy! Plus I've got the rash from last week's gluten...I'm sure it will go on for several weeks now that I've been glutened twice! And I am having the most insane cravings...I want to eat *everything* and just feel like grazing all over the kitchen....I had forgotten how bad I felt before going gluten-free, and this is really an un-fun reminder. I think I wont' eat *anything* for a couple of days in hopes that it will clear up faster...or at least that I won't be in the bathroom as much as I have been. Sigh.

Does anyone else get the retaining water thing or the cravings?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mythreesuns Contributor
mythreesuns
Posted
Does anyone else get the retaining water thing or the cravings?

I don't know about reaction to glutening (still new, trying to figure out if I've been glutened or not) but I do know that before I went gluten-free I had an insatiable hunger. Even if I just ate, sometimes I would be so hungry my stomach hurt and I would eat EVERYTHING in sight.

That's probably why I'm overweight. ;)

anerissara Enthusiast
anerissara
Posted
  • Author

I think that's why I was overweight, too. I had about 15 pounds that just *wouldn't* come no matter what I did...I could eat nothing at all, go jogging, whatever and I still couldn't lose it. I lost about 5 pounds the first week gluten-free just due to the fact that I quit retaining water!

It's been almost 2 years, and I am very close to the weight I'd like to be...it feels great *except* for weeks like this when I feel like I'm back to square one...I can't believe that about 1/4 ounce of wheat noodles can make me gain 3.5 pounds!

I always like meeting people like me who gain rather than lose with this disease, because my dr. initally wouldn't test for celiac's because I hadn't lost 15 pounds in a month. Sigh. It's good to know I'm not alone!

Nantzie Collaborator
Nantzie
Posted

I get bloated too. Anywhere from 2-4 pounds. You can really see it in my face. And my stomach swells up. I also get cravings when I'm glutened that normally don't even cross my mind. It doesn't need to be anything gluteny necessarily, but I notice that I crave candy or chocolate a lot when I'm glutened. The other day I had to go to the grocery store after being glutened, and I entered through the bakery. I wanted one of each, I swear... :rolleyes:

I was overweight when I was diagnosed too. I couldn't get it off. Very frustrating. Now, I'm about 25-30 pounds down, and wouldn't mind losing another 15-20. But it wouldn't bother me if I stayed where I am either. I've gotten to where I feel like I look good in clothes and it's pretty easy to shop now, but not quite good enough for walking around in a bikini. :lol: Maybe next summer.

Nancy

anerissara Enthusiast
anerissara
Posted
  • Author

I got the gluten cravings, too...much worse in the months just after I went gluten-free, but I still get them now. Usually the thought of something wheat just turns my stomach but if I've been glutened it can start sounding good.

One of the funny (or not so funny) things about my experience was that before I went gluten-free I craved bread and wheat things constantly. Maybe it was part of the disease for me, but I do remember just wanting to eat a slice of bread for no reason sometimes.

Glad I'm not the only one, but I'm sorry other people have to deal with the bloating and cravings! It's miserable.

Nantzie....just noticed below your signature the bit about anxiety! I had anxiety before being dx'd and I get it back when I've been glutened. That's another thing I"ve been dealing with is that terrible anxious feeling...at least this time I have been able to remind myself what's going on and have been trying hard to keep things in perspective. I get anxiety attacks in my sleep if I've been glutened...I wake up with my heart racing and feeling totally panicked for no reason. This will happen a couple of times a night, usually right when I've just fallen asleep. Sigh. So, add dark circles under my eyes to the list of ailments I'm experiencing this week!

Oh, yeah...and acne, too. That flares up when I've had gluten. Good thing we're not doing any family portraits in the next few weeks!!!

JennFog Rookie
JennFog
Posted

Well for me, I know the second I wake up and look in the mirror if something I ate had gluten in it, my face is puffy, i feel bloated and there is usually a quick dash to the bathroom.

If it was only a little gluten, the D calms down by midmorning, but the puffiness and bloating will still last a few days.

In the beginning, maybe for the first 2 weeks, cravings were bad, but after that, the only time I ate things with gluten is when it was inconvient to be gluten free. Like waking up late in the AM, and running out the door only to find myself eating a bagel, bcuz there wasn't a gluten-free option.

I find if I have gluten-free foods options around, I don't crave. If I am lookin for gluten-free foods because they aren't around, I am more than likely to sneak a piece of toast from my husband's stash.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

      @glucel, There's a strong correlation between thiamine deficiency, hypoxia, and insomnia. Thiamine is needed to help red blood cells carry oxygen. In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

      Thanks. Not a big thing, particularly because most likely it is "true" but not yet demonstrated.
    3. glucel
      - glucel replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

      Thanks for the thoughtful comment. You are right that the study’s main conclusion was cautious: the researchers found that inherited antibody-gene variants significantly shape the naïve B-cell receptor repertoire, including usage of some gene segments involved in celiac-related antibody responses, but they did not find strong evidence that polymorphisms in...
    5. knitty kitty
      - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      I have osteoporosis and have crushed three vertebrae. I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health). I tried Fosomax, but it tore up my insides. I prefer the supplements. I feel better and my bones feel stronger. References...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,004
    • Most Online (within 30 mins)
      10,442
    Bothy
    Newest Member
    Bothy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      iron digestibility

      By knitty kitty · Posted

      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      iron digestibility

      By glucel · Posted

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      By knitty kitty · Posted

      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      Coeliac And Cardio Vascular Disease

      By knitty kitty · Posted

      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
×
×
  • Create New...