Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Seeing The Specialist In 3 Days :-x

num1habsfan

By num1habsfan
in Related Issues & Disorders

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

I shouldnt be afraid of seeing this specialist---I saw him twice before (he was the one that performed my first colonoscopy)

I guess I'm just afraid of him not knowing the answer to my problems either! I have the copy of the letters from my recent test results (to give to the specialist) I'm gonna type both up and maybe you guys can decipher lol .. all my family doc said was they both turned up negative obviously, but half these words I cant even say!

"BARIUM ENEMA FOLLOW-THROUGH:

CLININCAL HISTORY:

This is a 22-year-old female with a historhy of weight loss, blood diarrhea

FINDINGS:

Normal small bowel and the ascending part of the large bowel. Normal preistaltic movement and flow. No evidence of abnormal dilatation of the small bowel. No transiet intussusception or filling defect. Normal fill pattern of the jejunum and the ileum. Normal appendix has been demonstrated.

IMPRESSION:

Unremarkable study."

and.....

"INDICATIONS: HISTORY OF BLOODY DIARRHEA.

...blah blah blah...

PROCEDURE: COLONOSCOPY.

FINDINGS: Examination was carried up to the cecum. The cecum was identified by the triadiate fold and ileocecal valve. Examination up to the cecum was normal. No mucosal lesion was found to explain her symptoms. It is likely that her diarrhea is of infective origin.

ENDOSCOPIC DIAGNOSIS: NO MUCOSAL LESION FOUND - IT IS LIKELY THAT HER DIARRHEA IS OF INFECTIVE ORIGIN"

...................

Well theres the OFFICIAL wording :lol: If anyone can understand that, great, cause I cant haha ... we know it isnt infection causing it because like I said, I've been on the meds 3 times this year already (this'll be my 4th) and he gave me one of the strongest doses, so it should have killed it the first 3 times if it was an infection!

~lisa~

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

It is saying that your food and waste are moving normally through the various parts of your intestines and that there are no signs of damage to the intestines that would cause bleeding. The bleeding you have had, they believe, was caused by an infection in your intestines that appears to be healed.

Steve

Link to comment
Share on other sites
Carriefaith Enthusiast
Carriefaith
Posted

This is my opinion: They are not sure where the blood came from. Your small and large intestine seem normal. They didn't seem to find any direct evidence of the blood origin (such as hemroids, infections, lesions, ect). The blood you had may be from something that they can't see or something that was there and is now gone.

I wish you luck at your appointment and I hope that they can help you find an answer.

Link to comment
Share on other sites
num1habsfan Rising Star
num1habsfan
  • Author
Posted

God, I cant even concentrate on homework tonight, too busy thinking about Tuesday no matter how hard I try not toooooo

Remember: This specialist decides me next step--if I should be tested again for something else, or if not, do I go to another province?

I'm thinking of taking my list of Crohn's symptoms that I put together and that I've checked off which of them I've had (which is almot all), see what he thinks of that...

~lisa~

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted

Lisa--

Definately take in your list of Chron's symptoms, and jot down anything else you can think of that might give the doctor a clue as to what is wrong.

Your new picture is cute! Good luck on Tuesday :)

Link to comment
Share on other sites
Rikki Tikki Explorer
Rikki Tikki
Posted

Nothing to add Lisa:

Just wanted to wish you luck

Link to comment
Share on other sites
num1habsfan Rising Star
num1habsfan
  • Author
Posted
Lisa--

Definately take in your list of Chron's symptoms, and jot down anything else you can think of that might give the doctor a clue as to what is wrong.

Your new picture is cute! Good luck on Tuesday :)

well like i said, I still swear I have it..it would explain my trouble with eating veggies too, and anything else! And I know what its like to have a disease and have no proof: thats how it was with Celiac!

Thanks for liking the pic, I figured I should show that I really AM the #1 Habs fan ;) (and thats how I look during any hockey game I watch--ALWAYS must wear a hat and jersey!)--just wish it wouldnt make me look squished :lol:

~lisa~

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nantzie Collaborator
Nantzie
Posted

Yep. Definitely bring in the list.

Love the picture too!

Nancy

Link to comment
Share on other sites
num1habsfan Rising Star
num1habsfan
  • Author
Posted

They have free internet access in the hotel here, so I got internet for all of today.. yay! So i promise as soon as I get back to the room after my appointment (which is less than 3 hours from now!) I'll come here and post about it!

*NERVOUS*

~lisa~

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748
    Aventine
    Newest Member
    Aventine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Anmol
      Recently Diagnosed Celiac- Need advice

      By Anmol · Posted

      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Recently Diagnosed Celiac- Need advice

      By trents · Posted

      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      50 YO Male Recently Diagnosed with Celiac Disease

      By trents · Posted

      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Recently Diagnosed Celiac- Need advice

      By Anmol · Posted

      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
×
×
  • Create New...