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debmidge

Another Condition Related To Celiac

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Welcome Elaine

Who cares what thread you come to join on..we're just glad your here.

Can you tell me what test your dr is doing to prove Leaky gut.

i'm needing to be tested for that also

Good luck

were glad you joined.

judy in philly

Hi Judy, I grew up in Media, by the way :), graduated from Penncrest, and still live in Delco.

The test I am having is an intestinal permeability test. I am doing it at home. I have to drink a sugar mixture and then spend six hours collecting all my urine, then mixing it in a few test tubes and sending it back to the lab. My doctor is at the Myrna Brind Center for Integrative Medicine at Jefferson in Philly. He said they will see if I am spilling things I should not be into my urine because my gut is letting through things in bigger chunks than it should be. If this is the case, then I imagine I am going to be allergic or having to avoid a whole lot of foods until we can get this healed, if this is indeed the case. I am gathering they think wheat and/or other food allergies caused this, but this is all very new to me so I might be messing up some of the info right now.


Elaine 40

Diagnoses

Possible leaky gut

Wheat/gluten intolerance

Milk intolerance

Sugar intolerance

POTS (postural orthostatic tachycardia syndrome)

dysautonomia

rectal spasm/proctalgia fugax?

Polycystic ovarian syndrome

endometriosis

adenomysosis

multiple chemical sensitivity

infertility

two second trimester miscarriages

Family history

Mother with B12 deficiency, neurologic symptoms, tachycardia and early-onset dementia (has a terrible doctor who told her all these things are from anxiety)

Sister with multiple sclerosis and polycystic ovarian syndrome

Son with asthma, allergies, hyperactivity

Niece in remission from leukemia/asthma

Niece with polycystic ovarian syndrome

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Hi Judy, I grew up in Media, by the way :), graduated from Penncrest, and still live in Delco.

The test I am having is an intestinal permeability test. I am doing it at home. I have to drink a sugar mixture and then spend six hours collecting all my urine, then mixing it in a few test tubes and sending it back to the lab. My doctor is at the Myrna Brind Center for Integrative Medicine at Jefferson in Philly. He said they will see if I am spilling things I should not be into my urine because my gut is letting through things in bigger chunks than it should be. If this is the case, then I imagine I am going to be allergic or having to avoid a whole lot of foods until we can get this healed, if this is indeed the case. I am gathering they think wheat and/or other food allergies caused this, but this is all very new to me so I might be messing up some of the info right now.

Hi

Thanks for the fast rely..

Son whose 31 graduated from Penncrest also.

Wish i could remember the year..wow my brain fog..

this place at Jeff sounds great.

how did you find your way there?

Did you get a celiac disease dx from a gasto or internist or this place?

lots of questions..I've been gluten-free for 16 months and was doing so well and now seems like alot of this 'leaky gut and possible adrenal fatigue' are coming up.

thanks for the info on the test.

can you get this though you personal dr.?

judy


Judy in Southern CA

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I don't know if a GI can do what a Proctologist does.....seems like the same territory but only your GI can tell you ......

You might need to go to separate doctors after all....

We are going for a second opinion next week...


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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this place at Jeff sounds great.

how did you find your way there?

Well my son and I had been to a ton of different purely medical doctors. Some were totally not helpful and some were trying really hard to be helpful but had no real answers for us. My sister has MS (now I'm thinking she's celiac), and she has done totally holistic therapies including dietary restrictions and has done fairly well. I know my husband is pretty leary of holistic docs, plus I haven't really worked significantly since my health problems started so I needed to find a place that took my insurance for financial reasons. I went online and googled integrative medicines and just gave it a shot. I have been pretty pleased so far.

Did you get a celiac disease dx from a gasto or internist or this place? I actually don't have a diagnosis yet, but this Dr who is an MD is nearly 100 percent that I have a leaky gut. He is going to have me take this test (am waiting on receiving the sugar compound from the pharmacy), and he sent my son to a nutritionist, who also felt I had progressed from wheat/milk allergy into leaky gut. She wants me to start on elimination diet right after I take this Mannitol test (intestinal permeability).

lots of questions..I've been gluten-free for 16 months and was doing so well and now seems like alot of this 'leaky gut and possible adrenal fatigue' are coming up.

thanks for the info on the test.

can you get this though you personal dr.? I don't think I can get this through my personal md. I only go to him for sore throats and flu shots. I am having to pay for the intestinal test but it is only $100.

Hope this helps.


Elaine 40

Diagnoses

Possible leaky gut

Wheat/gluten intolerance

Milk intolerance

Sugar intolerance

POTS (postural orthostatic tachycardia syndrome)

dysautonomia

rectal spasm/proctalgia fugax?

Polycystic ovarian syndrome

endometriosis

adenomysosis

multiple chemical sensitivity

infertility

two second trimester miscarriages

Family history

Mother with B12 deficiency, neurologic symptoms, tachycardia and early-onset dementia (has a terrible doctor who told her all these things are from anxiety)

Sister with multiple sclerosis and polycystic ovarian syndrome

Son with asthma, allergies, hyperactivity

Niece in remission from leukemia/asthma

Niece with polycystic ovarian syndrome

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tHANKS ELAINE

SO MUCH HELP HERE. PLEASE KEEP ME POSTED ON THIS THREAD OR IN A PM OR EMAIL FROM HERE.

HUGS

JUDY


Judy in Southern CA

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