Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Biopsy On Wednesday

wonkabar

Recommended Posts

wonkabar Contributor
wonkabar
Posted

I'm scheduled for my biopsy Wednesday morning. I'm not sure why, but I'm actually a little nervous. Maybe it's because I've had time to think about it.

I'm also starting to go through my cabinets to rid my house of whatever gluten is left in it! :P Even if the biopsy comes back negative, we're going to make the entire house gluten free. My son is gluten free and subsequently so is my daughter. It's just going to be a lot easier (and healthier) if there isn't any gluten in the house. Now I'm really curious to see how I feel *and* if I loose weight once I stop eating gluten. The only time I've been able to loose weight and keep it off is when I've been on WW...I ate very limited carbs and they were usually in the form of a potato or rice.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BostonCeliac Apprentice
BostonCeliac
Posted

Hey Wonka --

Don't be nervous! It's not bad.. I just had mine recently and it was really a piece of cake (gluten free cake that is!). I was really out of it for most of the day due to the anesthesia, I think they gave me alot. But I don't remember any of it, and I had a slightly sore throat afterwards which felt better with some tea & honey. No sweat!

Also, in my case, when I started the diet I quickly began loosing weight, even though I was eating alot (as normal) but now it seems to have leveled out... I guess I've been gluten-free about 2 months or so... Good luck!!

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted

Hi Kristy,

I was completely out for mine--I remember nothing from shortly after they put in the IV until I woke up in recovery. I didn't even have a sore throat after.

Really, it's nothing to worry about, and it's over pretty quickly. Good luck on Wednesday :)

Link to comment
Share on other sites
dlp252 Apprentice
dlp252
Posted

Yep, I've had THREE endoscopes since April! Really, it's not bad at all. I don't remember anything after they administered the sedatives until I woke up in the recovery area. The worst part was the pin prick for the IV and even that wasn't too bad. I was fairly groggy for a while afterwards on the first scope, maybe because they also did a colonoscopy at the same time, but the second and third scope I came out pretty quickly. By the time my mom dropped me off at home I was completely coherent, lol. After each scope I had a VERY SLIGHT sore throat...hardly noticable really, which went away by the next day.

Oh, and about losing weight...that depends I think. I didn't need to lose or gain, but I gained 10 pounds, but in my case it was because I went CRAZY on gluten-free foods like cookies, brownies, cakes, etc. I hardly ever ate that stuff before, but something clicked in my head and I ate them like a fiend, lol. So be careful of the junk food, lol. :P

Link to comment
Share on other sites
DingoGirl Enthusiast
DingoGirl
Posted

You'll do fine, it's a nice nap :) , I, too did not have a sore throat at all afterwards, couldn't feel a thing.

Link to comment
Share on other sites
wonkabar Contributor
wonkabar
  • Author
Posted

Thanks! I'm sure it'll be over before I know it. If my throat hurts it'll give me a reason to eat icecream...gluten-free of course! :P

Link to comment
Share on other sites
Canadian Karen Community Regular
Canadian Karen
Posted

The closest I have gotten to heaven is the five seconds between them administering the sedative and when you go out like a light! Aaaahhhhh, that feeling...... :rolleyes: I would go through another endoscopy just to get that feeling again! LOL! :lol:

You will do just fine. It's no sweat, really........

Hugs!

Karen

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted
Thanks! I'm sure it'll be over before I know it. If my throat hurts it'll give me a reason to eat icecream...gluten-free of course! :P

See, there ya go, lol!

Link to comment
Share on other sites
wonkabar Contributor
wonkabar
  • Author
Posted
The closest I have gotten to heaven is the five seconds between them administering the sedative and when you go out like a light! Aaaahhhhh, that feeling...... :rolleyes: I would go through another endoscopy just to get that feeling again! LOL! :lol:

You will do just fine. It's no sweat, really........

Hugs!

Karen

That's an absolute riot!!! :lol: It's probably the most peace and quiet I'll get all day...my kids are 3 1/2 and 21 months. It's amazing what one does for a little bit of solitude, isn't it??!! :lol:

Link to comment
Share on other sites
wonkabar Contributor
wonkabar
  • Author
Posted

So it's 210am, and I'm wide awake! :blink: I slept sound for four hours and here I am!! I, of course, am dying of thirst b/c I know I can't have anything to drink. My stomach is also churning which is probably the result of the Applebee's dinner I ate........I was going with the whole "last meal hoorah" angle. Applebee's is always good at the moment but makes me feel like s@%$ in the end. I can't wait for the bipsy to be done; I'm really nervous about it which is so out of character for me. My husband is even surprised by how "twitchy" I am over it.

Link to comment
Share on other sites
dlp252 Apprentice
dlp252
Posted
So it's 210am, and I'm wide awake! :blink: I slept sound for four hours and here I am!! I, of course, am dying of thirst b/c I know I can't have anything to drink. My stomach is also churning which is probably the result of the Applebee's dinner I ate........I was going with the whole "last meal hoorah" angle. Applebee's is always good at the moment but makes me feel like s@%$ in the end. I can't wait for the bipsy to be done; I'm really nervous about it which is so out of character for me. My husband is even surprised by how "twitchy" I am over it.

This is absolutely the worst part...I hate being hungry, lol. I think I did the same thing on my first scope...didn't sleep at all, but don't worry, they'll give you some nice drugs soon. :lol: I actually took a Cliff Nectar bar with me and on the ride home wolfed that sucker down, lol. :ph34r:

Link to comment
Share on other sites
wonkabar Contributor
wonkabar
  • Author
Posted

So, I was sent off to a very nice place this morning, however I have no recollection of where it was! :) Right now I feel like I have a hang-over but missed the party!! :lol: (bummer!) I slept in recovery for two hours, during the ride home and for another 3 when I got home...and I'm still groggy. No wonder it's a controlled substance. :P

The doctor told my husband that there was no visible damage but that he took biopsies--I think 6. I have a f/u appointment in four weeks. In the mean time, our house will be gluten free as of tomorrow and we'll take it from there. If the biopsy is negative, there really isn't anything else to do but remove gluten from my diet to see how I feel.

Forgive my grogginess, but what are the names of some good books that you all have read as adults dealing with gluten issues? I know I've read some titles on here in the past. I just don't have the mental energy (or ability) to do that kind of a search right now! Thanks!

Link to comment
Share on other sites
dlp252 Apprentice
dlp252
Posted
Forgive my grogginess, but what are the names of some good books that you all have read as adults dealing with gluten issues? I know I've read some titles on here in the past. I just don't have the mental energy (or ability) to do that kind of a search right now! Thanks!

Dangerous Grains was a good one. Hum, what others did I read...the brain fog hasn't completely left me yet, lol.

One of my doctors just recommded "Going Against the Grain", but I haven't read it to comment.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748
    Suzi374
    Newest Member
    Suzi374
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    • Smith-Ronald
      Lymph nodes

      By Smith-Ronald · Posted

      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    • Random.user556
      I think I might be celiac?

      By Random.user556 · Posted

      Hello! I’m sorry in advance for the long post!   Over the past few months I’ve been having a lot of issues with my stomach and have recently been referred to a Gastroenterologist. I’ve had stomach pain and issues since I was a baby. I had bad constipation (still do) and couldn’t tolerate most formula as a baby. When I was around 8 I started experiencing a lot of lower abdominal cramping (just below the belly button) and ended up missing a fair amount of school because of this. It would start about 2 hours after eating breakfast and I’d have lower abdominal cramps and feel nauseous . After a visit to my family doctor it was brushed off as separation anxiety.. or as the doctor put it “I was just a kid who wanted to stay home from school”. This stomach pain persisted all through my elementary and high school years. In fact I still experience it to this day and I’m now 24. Along with this my doctor believes I have a form of disautonomia called POTS (Postural Orthostatic Tachycardia Syndrome). I frequently feel unwell and exhausted. I also experience Raynaud’s phenomena especially during the winter months or when I’m sick. I also can not tolerate heat for the life of me.. although I’m not entirely convinced my symptoms are from POTS. The last few years I’ve also started experiencing frequent chronic sinus infections up to 5 a year most of which I require antibiotics for… Up until two years ago I have never had allergies or sinus problems. Back to my stomach issues… The last year I have been experiencing lots of stomach bloating and discomfort especially at night.. this has led to a few nights of 3am vomiting.. my doctor tested me for H. Pylori which was negative as well as full work ups to test my kidneys, liver, pancreas, gallbladder.. all of which were normal. At this time he also started me on Rabeprazole 20mg twice daily which is a Proton pump inhibitor (PPI) … as he believes it could be GERD. The PPI has not helped at all and I have since been moved down to once daily which I wait for a referral to a Gastroenterologist for an endoscopy as well as an abdominal ultrasound to verify I have no gallstones.. The pain I feel in my abdomen feels very heavy right around my bellybutton and frequently is accompanied by nausea and occasionally I also experience sharp stabbing like pain left of my belly button. I began tracking my symptoms, what I’m eating and bowel habits on an app called “My IBS” which track’s symptoms and flags foods that could be potential triggers.. all of my flagged potential triggers seem to be gluten related foods like pasta and breads. I asked to be tested for Celiac as I have an uncle with it. My doctor only sent for TtG IGA.. no other tests. My results came back negative at “<0.5 U/ml” the reference range being “ <12 U/Ml”. I am aware that total IGA should of been ordered as well but my doctor is confident we have ruled out celiac so I guess I will have to wait for the Gastroenterologist for more testing.. The other red flag for me is I have a rash that shows on both my knees and recently I have developed a similar rash behind both of my ears, on my neck and into my scalp.. there is dozens of small red and skin coloured lesions that sort of? resemble pimples but have a “head” and don’t pop (yes, i know don’t pop your pimples!) they are also itchy and sore.. I have tried washing and scrubbing them with antibacterial soap and body wash to no avail as well as ensuring I rinse my neck thoroughly after a shower, keeping my neck dry, frequently changing pillowcases and even keeping my hair off my neck as much as possible … it doesn’t have any effect on it.  In your experience does this sound like I could be experiencing celiac? I’ve debated going gluten free to see if my symptoms persist or begin to clear up.. any suggestions or help is appreciated! 
×
×
  • Create New...