Information On Dh

[PeggyV]

Hi everyone

[Sophiekins]

Personally, I find that my DH always looks worst about 7-10 days after I get glutened - it itches like crazy the day I get glutened, and then goes red and blistery a few days later. Medically speaking, gluten can remain active and harmful in your bloodstream for up to 30 days following a glutening - so it's possible you are reacting to something that happened earlier, or that you are missing something in your current diet. Helpful, I know. . .

[nora-n]

The IgA on the DH lesions is used up, so the biopsy must be done on healthy skin close to it.

IgA gets used up they say.

I wonder if that also applies to other IgA tests...there are some people that make less IgA and it might get used up in teh process.......

The biopsy was done incorrect. Just google for how they should do it.

nora

[SpikeMoore]

Hi Peggy

I had a very similar experience. My GP biopsied a lesion, not the clear skin next to it, and it came back "inconclusive", but like you, I was told that it could be DH. And, like you, I did a little research and the light bulb went on as I linked the digestive symptoms, weight loss, anemia etc. So I started gluten free immediately and had no more episodes. And I felt great and gained 5 pounds. I had been getting an outbreak every 2 weeks or so for 5-6 months.

I went gluten-free for 3 weeks, ate gluten for 4-5 days and had a negative blood test. GP concluded that I do not have celiac. As you will read from the posts here, you cannot draw that conclusion from a negative blood test. I too, felt like a hypochondriac.

I'm not going back on gluten to get a biospy and I'm not going back to part with another chunk of my bottom.

Basically, do what works for you and continue to read the posts from this board. It has helped me immeasurably.

[PeggyV]

Hi Peggy

I had a very similar experience. My GP biopsied a lesion, not the clear skin next to it, and it came back "inconclusive", but like you, I was told that it could be DH. And, like you, I did a little research and the light bulb went on as I linked the digestive symptoms, weight loss, anemia etc. So I started gluten free immediately and had no more episodes. And I felt great and gained 5 pounds. I had been getting an outbreak every 2 weeks or so for 5-6 months.

I went gluten-free for 3 weeks, ate gluten for 4-5 days and had a negative blood test. GP concluded that I do not have celiac. As you will read from the posts here, you cannot draw that conclusion from a negative blood test. I too, felt like a hypochondriac.

I'm not going back on gluten to get a biospy and I'm not going back to part with another chunk of my bottom.

Basically, do what works for you and continue to read the posts from this board. It has helped me immeasurably.

Thanks, I agree with you. Even though I would like to know for sure, I do not want to go back on a gluten diet to prove it. I am thankful I dont have past problems and will continue with this healthy diet.