Question Re Testing & Being Gluten Free...

[buttonburger]

Hi all

From what I have read it would seem that being gluten free (or at least gluten light!) would have a bearing on the result of the tests for Celiac... just wondering if there are *any* tests that dont require you to be eating gluten at the time of being tested as my youngest DS is pretty much everything free right now lol & still has some symptoms - I would hate to have to put him through a few months of misery in order to get a diagnosis...

TIA

Julie

[CarlaB]

Open Original Shared Link is the only test I know of that can be done while gluten-free.

Are you sure that ALL the gluten is out of his diet? What about your body lotions? Small things like that matter ... when he cuddles or kisses you, or when you prepare his food. Even a small amount of gluten will cause symptoms. I don't know if he's gluten-free or gluten-lite, but it needs to be gluten-free. I'd keep the diet simple for some time till he's better -- meat, eggs, veggies, fruit, rice, potatoes. I would also avoid restaurant food for him, too much of a chance of contamination.

It does take time to heal, so even if you do have all the gluten out of his diet, it still could take time.

Is he off dairy, too? Sometimes that makes a difference in the beginning.

[buttonburger]

Open Original Shared Link is the only test I know of that can be done while gluten-free.

Are you sure that ALL the gluten is out of his diet? What about your body lotions? Small things like that matter ... when he cuddles or kisses you, or when you prepare his food. Even a small amount of gluten will cause symptoms. I don't know if he's gluten-free or gluten-lite, but it needs to be gluten-free. I'd keep the diet simple for some time till he's better -- meat, eggs, veggies, fruit, rice, potatoes. I would also avoid restaurant food for him, too much of a chance of contamination.

It does take time to heal, so even if you do have all the gluten out of his diet, it still could take time.

Is he off dairy, too? Sometimes that makes a difference in the beginning.

Many thanks for your reply

Yep, my youngest son is off dairy - basically all he eats right now is rice (or rice pasta/bread/milk), 5 fruits, 5 veg, chicken & beef & arrowroot (for making custard/white sauce)... he has multiple food allergies so his diet is v restricted. I suppose he could be getting gluten from elsewhere though - from me like you say, or bath products etc. It wasnt til I found this site (about 2 days ago) that I realized how easily he could be CC

We are in the UK though and I assume that enterolabs is in the US?

I will speak to the allergy specialist next week but I would much rather go with all the right info - for-warned is for-eamed as they say.

Thanks again

Juliex

[CarlaB]

I don't know whether they can test from the UK or not. You can look at their website ... they are in the States.

CC can be a big problem. Even toasters, cutting boards, wooden spoons, body care products (shampoo, etc.). Plus, it takes time to heal ... it doesn't happen overnight.

I hope you get some answers soon.

[buttonburger]

I don't know whether they can test from the UK or not. You can look at their website ... they are in the States.

CC can be a big problem. Even toasters, cutting boards, wooden spoons, body care products (shampoo, etc.). Plus, it takes time to heal ... it doesn't happen overnight.

I hope you get some answers soon.

Thanks for getting back to me again Carla

What should I be looking our for in body care products then? I assume the culprit isnt actually listed as gluten in shampoo etc?? I did see a list of 'safe' toiletries on the site but with being in the UK I imagine I'll be using alot of different brands.

Also, is there any link between low levels of B6 & B12 & celiac? (I ask only because when I was told of my wheat intolerance/allergy last week I was also told I was lacking in both & have seen other posters mention one or other...)

Finally... (sorry!) I take it the gene test simply shows if you have the Celiac gene and not if you are Celiac? I just wonder if I should ask for this & the blood tests for DS1 & 2 when I see the consultant on Friday as a starting point...

Many thanks in advance once again

Julie )