Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Help- Gluten/dairy Free Intravenous Options?


neerdowell

Recommended Posts

neerdowell Rookie

please advise me if you can. my father just last night, after having had a doctor attempt to 'stretch' his esopagus (supposedly due to hiatal hernia) suffered from a gastric perforation/puncture due to the procedure.

they then were forced to perform emergency gastric repair and used part of his stomach to add to his esophagus. anyway, he will have to be fed intravenously now and he and mom are finally willing to consider going gluten and dairy free after this latest episode.

i'm not certain, however, if there is an option and if the doctors can or will honor that request. i am almost certain that his life long worsening symptoms are due to food intolerances. and they are finally willing to follow up. they live in el paso texas and need a gastroenterologist who will get on board with prevention rather than more surgical intervention.

i am new to this forum but have been gluten and dairy free myself for 6 months. if anyone has a better way to list my question so it will get more attention, perhaps from the medical community please advise me or move my subject. i am not terribly computer literate so i haven't figured out how to manipulate this site well yet. thank you in advance soo much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I'm sorry, I don't have an answer to your question. It's pretty quiet here on the weekend, so you might want to post a reply to this thread Monday morning if you don't have an answer by then so that it becomes a "new post" again.

I hope your dad is feeling better soon and I wish you luck finding a doctor, that's a difficult task!

neerdowell Rookie
I'm sorry, I don't have an answer to your question. It's pretty quiet here on the weekend, so you might want to post a reply to this thread Monday morning if you don't have an answer by then so that it becomes a "new post" again.

I hope your dad is feeling better soon and I wish you luck finding a doctor, that's a difficult task!

thanks much, i appreciate your reply and advice. i'll take your advice and repost during a weekday.

happygirl Collaborator

No need to repost (duplicates are marked for deletion by moderators).

What is your question exactly? I was a bit confused--- Are you looking for a doctor in your area? Are you looking for advice on how to broach this with him or the doctors? If you need advice on if the IV food is gluten free/casein free, this is something that should be pretty easily identified, for people with food allergies. You would need to express your concerns to the doctors, discuss it with them, and see what options they have in terms of IVs. How long will he need to be on IVs? This might play a role in your decisions, based on the options available.

You might want to post in the "doctors' section looking for a doctor who deals with Celiac/food issues in a specific area.

Has your dad been tested for Celiac?

Best of luck to you and your dad. I hope that he finds some answers and his health improves. Let us know what we can do to help.

CarlaB Enthusiast
No need to repost (duplicates are marked for deletion by moderators).

Yes, just reply to this post to "refresh" it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

    2. - knitty kitty replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

    3. - Sheila G. replied to Sheila G.'s topic in Related Issues & Disorders
      11

      No red meat

    4. - yellowstone posted a topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,002
    • Most Online (within 30 mins)
      10,442

    Boikanyo William Mompati
    Newest Member
    Boikanyo William Mompati
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search for "whole genome sequencing"). It's not guaranteed to get you an answer, but if your symptoms are caused by a genetic condition you might get the answer that is stumping standard differential diagnosis. These days there are quite a few companies offering this service. I wish I could tell you which one was best but I've been out of that field for a decade. Talk to your Dr about this and see what they think. Price is probably ~$500-$1,500 including the sequencing and detailed reports. Sounds like a lot, I know, but consider that 25 years ago just the sequencing (no reports) cost $2.7 B and took 3 years to complete.
    • knitty kitty
      @yellowstone, You poor thing!  I'm not a medical doctor, but it sounds like "Refeeding Syndrome".   I suggest you seek medical attention.   Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy.   This can occur in Malabsorption due to Celiac Disease.  Malabsorption prevents the absorption of B vitamins, especially Thiamine. The B vitamins and Thiamine cannot be stored long in the body.  When you run out of Thiamine, your body burns fat for energy which produces the Ketones, hence your weight loss. With medical attention, Thiamine and other B vitamins need to be replaced before giving any more sugars.  Doctors can give you an IV containing B vitamins including Thiamine, called a "banana bag".  Riboflavin  Vitamin B2 causes the yellow color.   Doctors can also monitor your electrolytes which can become unbalanced and cause further serious health issues. I've experienced Refeeding Syndrome.  It's very scary.  Health can deteriorate quickly in Refeeding Syndrome.  It's correctable, but complicated.   I strongly urge you to get professional medical attention as soon as possible.   Our prayers are with you! https://my.clevelandclinic.org/health/diseases/23228-refeeding-syndrome Thiamine Deficiency in Self-Induced Refeeding Syndrome, an Undetected and Potentially Lethal Condition https://pmc.ncbi.nlm.nih.gov/articles/PMC4295429/ Keep us posted on your progress!
    • Sheila G.
      Thank you for sending me this information 🙏🏻❤️✌️
    • yellowstone
      Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice?
    • glucel
      I ate sprouted buckwheat and hard boiled egg last night instead of cereal and got extra 1/2 hour sleep but more importantly feel better this morning. I do sleep in cycles that seems to rotate btwn 3 and 6 hrs but I will monitor next time I make a pot. Bwheat is a complete protein with good amounts of thiamin, magnesium, fiber and iron. High carb but much lower glycemic and much healthier than refined flour cereal.
×
×
  • Create New...